Posted 11/11/2014 1:16 AM (GMT 0)
sbird -
My repair was 5 years ago this month.
I went to a very highly recognized thoracic surgeon in a large university. My gastroenterologist said he was the ONLY one to see in our area, had the best outcomes. With a GPEH I wouldn't even consider just a general surgeon.
First I had to jump through the testing hoops, after waiting a month just to be seen. I had to get my GI's office to make calls just to get an appointment. So, finally after waiting 5 1/2 months after my wreck, I got my surgery. I was getting really scared because I could feel the stomach trying to roll when I was lying down. My lower esophageal sphincter was stuck completely open the whole time. Multiple meds to keep my stomach non-acid kept me from burning out my esophagus.
These things need a team of experts. They're not a one-surgeon job. There are 5 holes punched in us. Maybe one guy can hold instruments in 2 of them. Even the anesthesiologist has to be a specialist for surgery this complex. Mine was nearly 5 hours.
The swelling is what gets worse for a while. The esophagus in most cases has to be "let down" so it's long enough to get below the diaphragm far enough so the wrap can be put around it, and it can't be pulling on the diaphragm. That alone is tricky. You wouldn't be happy if they just sliced along it, cutting nerves and blood vessels.
I just drank liquids for a couple of months, very slowly adding a little thickness. I had a hard time with soft foods even at 3 months. I must say though, I was over 60 and post polio, which had affected my ability to swallow. I still have a hard time swallowing things like beef or uncoated tablets unless I drink something slippery like milk, not just water. But I had these problems before surgery, so I'm back to my normal.
I wasn't able to burp, much less vomit, after surgery. I can now burp pretty well, but still can't vomit. So I keep anti-nausea meds, mostly Zofran, on hand all the time. I got the flu once and the ER docs thought I was just a drug seeker because I was heaving like mad but nothing was coming up. At one annual checkup, a resident wanted to do a dilation on my wrap, so I refused to let him even do the routine scope to look at my throat. I don't want my wrap messed up. It's working fine! Don't even consider dilation for some months unless you can't even swallow water. We went through a lot to get the esophagus to close and we don't want it wrecked.
You can look up lots of stories - just put GPEH in the search box at the top of the page.
Enough of my novel. There's plenty to keep you busy in old posts. Lots of links to look up there too.