Posted 9/5/2012 6:34 AM (GMT 0)
Hi, I am a new member and have a long history with this - but I promised myself that if I ever discovered relief, I would come back and join and share it here - that was two years ago. So, please bear with me for the story ...
I had GERD since I was 12 and started medication. I've been on every class of drug since. By the time I was in my early 30's, I had an upper endoscopy that revealed inflammation - and healed ulcers (because I was on medication). Pain and time continued ... then in my 50's, I was diagnosed with SHORT SEGMENTED Barrett's Esophagus. This meant that the cells lining my esophagus changed from epithelial, to squamous (squamous cells are in the intestines - so now my esophagus looked like my intestines). This also meant I was now pre-malignant, however, my chances of developing Long Segmented Barrett's (malignant) were not that high, but of course higher than "normal."
about two years ago, I also started to have episodes or "events" where I aspirated - usually while asleep. The burning acid entered my mouth and scalded my voice box. At first, I tried ice, cold water, even icecream ... the water made me feel like I was drowning ... it was hard to keep it down ... and breathe. The pain on a scale of one to ten was a 250. I thought I would die. It felt like someone was "branding" my vocal chords! I found the emergency room was never helpful, and GI cocktails did NOTHING but temporarily numb my tongue at best. That only made me feel worse. Usually, they just wanted to do tests, which bothered me because I was in acute PAIN!
I went through this a couple of times and finally switched GI specialists ... he understood what I was explaining above and told me a "quick fix." Upon the instant of feeling that intense acid burn, take TWO Zantac immediately, and start chewing antacids (liquid helps, but solids work better). It does take about 30-45 minutes to start working, but it's the fastest and starts to bring real relief in one hour. For someone who suffered hours, it was a Godsend.
I also discovered on my own, that rather than drink cold water for the pain - which is only a temporary solution of a few seconds - to suck on medicated menthol cough drops that helps numb the throat ... my favorite is cherry. What also happens to me is (my apologies for being graphic), a thick mucous wraps around my vocal chords - I imagine to protect them - and I can't speak. I try to clear my throat, and I cannot! It takes time, but if you use an expectorant cough medicine and cough drops, it loosens and comes up. Now is the time to drink water, to help dilute and bring it up.
Now, this may not happen to others, but I've had it happen so much now that it has progressed to this. As a result, I develop a "functional" (meaning, self-inflicted, not viral or bacterial) bronchitis from aspirating. It takes a few weeks sometimes to get rid of it and I have to cough it up to do so, just like anyone with bronchitis. But, I'm not contagious
I've just had a recent episode, and a less acute one two weeks later ... but I managed to act fast with the above and not have as a severe bronchitis this time.
What this is leading to is my having surgery soon. Two doctors have recommended the Nissen Fundoplication for GERD, which would help repair the lower spincter muscles (and the hernia found on a previous upper endoscopy). There are pros and cons to the surgery, and if anyone here is in this situation, I recommend you look into it. This is major surgery if done the traditional way, but I've also heard of a new procedure using laproscopy, which only requires 1 or 2 weeks, rather than 6 weeks of healing. You're only in the hospital a day or two!
On the positive side, the new spincter muscle may prevent further episodes and a lesser need, or no need at all for medication, if successful. But, you can only eat small meals at any one time, you do lose 14 lbs. initially, and you will be unable to vomit in the future (they say things are lost the other direction)! Also, I need to check that the examining doctor will be able to look for cell changes once the lower stomach is wrapped around the top of the esophagus to form a new spincter muscle ... in other words, how can he see if there are cell changes under the wrapping ... that would be the only negative. However, some people who have had it done say they have a new lease on life, so I am considering it because the cells lining the throat are so much more susceptible to malignant changes than those lining the esophagus ... the danger is repeatedly scalding the voice box.
Lifestyle changes such as losing weight, exercise, not eating hours before bed or lying down, keeping your bed elevated at the top end, going to a dietician to find which foods are agreeable to you, etc. etc. can be tried before considering surgery. I have tried every class of drug and I'm on double adult dose with my doctor's permission, but now it looks like surgery is my only other option.
I recommend lifestyle changes and taking this seriously before it gets this far, if you can help it.
I just wanted to share.
Best,
Flying Through ...