The SIXness..

Hello trotters,

Breathing issues are a scary thing, I can't say for sure whats really going on with me. I've been to the mayo docs in Minnesota and I was diagnosed with hypersensitivity. The asthma doctors their said that I had something in my throat that causing my breathing issues and that it was not lung related. It was my upper airway that was the problem.

The methacholine challenge was slightly helpful, just for the fact that I found out that I did have restriction in my airway after doing the challenge and that a inhaler did help a little, but the doc did say that it was my upper air, specifically my throat that was the problem... so pretty much my LPR causing some kind of vocal cords dysfunction. I went to see jamie Koufman after going to mayo and she found that my left vocal cord vibrates a lot. Which could cause the feeling of not getting enough air in.

What helps me.

Breathing from the stomach
Staying relaxed and realising that it's just nerve endings that are sensitive.
Gabapentin helps me a bit. More so than the anti acid meds.
A very alkaline diet. Breads, Fish, Tater Tots haha

If you're having problems breathing in, it's more likely to be from LPR bothering your nerve endings in your throat or bothering your vocal cords causing a vocal cord dysfunction. An inhaler shouldn't help to much with this, unless you have restriction in your lower airway also.

If you're having problems breathing our, it's more likely your lower airway/lungs. An inhaler should help out with this.

TheSiXness said...
Hello trotters,

Breathing issues are a scary thing, I can't say for sure whats really going on with me. I've been to the mayo docs in Minnesota and I was diagnosed with hypersensitivity. The asthma doctors their said that I had something in my throat that causing my breathing issues and that it was not lung related. It was my upper airway that was the problem.

The methacholine challenge was slightly helpful, just for the fact that I found out that I did have restriction in my airway after doing the challenge and that a inhaler did help a little, but the doc did say that it was my upper air, specifically my throat that was the problem... so pretty much my LPR causing some kind of vocal cords dysfunction. I went to see jamie Koufman after going to mayo and she found that my left vocal cord vibrates a lot. Which could cause the feeling of not getting enough air in.

What helps me.

Breathing from the stomach
Staying relaxed and realising that it's just nerve endings that are sensitive.
Gabapentin helps me a bit. More so than the anti acid meds.
A very alkaline diet. Breads, Fish, Tater Tots haha

If you're having problems breathing in, it's more likely to be from LPR bothering your nerve endings in your throat or bothering your vocal cords causing a vocal cord dysfunction. An inhaler shouldn't help to much with this, unless you have restriction in your lower airway also.

If you're having problems breathing our, it's more likely your lower airway/lungs. An inhaler should help out with this.

Hi TheSixness,
May I ask if you take Gabapentin daily or can you just take it when when required? The reason I ask is that it was suggested to me for sensitivity by a surgeon last year, but my doctor wasn't sure it was the right way to go.

Noelle

Trotters said...
Thanks for getting back to me😊 touch wood the shortness of breath isn't a major thing at the Monebt it's more the cough that I'm plagued with. Feeling of needing to cough up lots of mucous particularly in the morning for about 3 hours and after eating. It's driving me insane! I'm not sure if my airways are sensitive dye to asthma/gerd or combo of both. I may request the methacholine challenge and see what that shows. Thanks again for getting back to me.

That cough/phlegm issue does sound like a sensitive nerve problem. I know when I started my gabapentin, my phlegm issue got better for me.

TheSiXness said...
I take it daily. I can feel it when It wears off and when I take it. It kinda feels like taking a tylenol to me. It's not a huge differences, but theres a little bit of a dullness to the pain. Also, It seems to wear off for me at about 5 hours. Which is why I'm assuming I need to dose 3 times a day. I didn't really start feeling a huge difference till I got to about 1200 mg.

For side effects, I do notice a little bit of memory problems, but not much. My Doc says it's a relatively safe drug to take, just don't stop taking it suddenly.

Thank you for that information. I was also told this year by a gastroenterologist that I could go on either Amitriptyline or Mirtazapine for the sensitivity. The problem with those two medications is that they cause dry mouth and throat, which are symptoms I already have and don't really want to make worse. So I'm kind of researching what else I can take, if anything. But maybe I'll give the Amip a try first as it seems less 'heavy-duty' than the others.

Take care.

Noelle

Strange. I got an email alert for this thread. I have two posts on here dated yesterday and today. Thing is I wrote and posted them last year not this one! Maybe some technical glitch going on with the forum??