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Sounds like LPR or something else?

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GERD & Acid Reflux
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Posted 1/5/2015 7:03 PM (GMT 0)
Feeling deperate here and needing some feedback from other possible LPR sufferers! I have been dealing with this for about 6 months now and am beyond frustrated. I just had a baby around that time and towards the end of my pregnancy was placed on Omeprazol 40 mg due to my heartburn getting bad. I have had heartburn most of my adult life and I am now 35 years old. Shortly after delivery I was VERY stressed out due to things going on and dealing with no sleep and a newborn. So my symptoms are as follows:

  • throat tighness, about 15 minutes following eating anything
  • tight wheezy feeling in throat area after eating
  • backwash of a bitter/acid sometimes metalic taste following eating (10-15 mins later)
  • whitish/yellow coating on tastebuds (clear back of tounge)
  • belching/burping feeling to clear pressure

Ive had a swallow study which was normal

Scope which showed a hiatal hernia that ive had for years and a "ring" (cant remember the name of it)

I also just had my gallbladder removed due to all of this to see if it would help and that did nothing of course...but my Hida scan only showed 30% so I guess it would have happened eventually.

I just stopped the PPI two weeks ago and thinsg actually got better for about a week and now are getting bad again, except for my digestion seems improved and quicker....

To me it sounds like LPR BUT I know vitamin deficiencies can cause weird things as can hormones following a pregnancy, ect.

I have also lost alot of weight due to this and I am currently down to 93 lbs :( and want to gain back at least 15!

Will be greatfull for any and all advice and tips on healing (naturally hopefully).

P.s. I have been gluten free for 7 years, and I am also dairy and egg free also..all due to allergies.

Thanks!!!

 

Posted 1/5/2015 7:16 PM (GMT 0)
Hi those are the symptoms that I had along with burning throat and back of my nose, ear popping and post nasal drip. I also feel wheezy and congested in my chest for a few hours until I've coughed it up. I also get very congested after eating. Can I ask what you mean by wheezy in throat? Sounds like you could have LPR but they could also be due to other conditions too. The fact you have hiatal hernia could also suggest that you may be refluxing. As I'm sure you are aware stress is terrible for reflux and I'm sure if you are stressing over it will only make you feel worse but It isn't easy to not stress when you are worried. You say you have had a swallow study, presume you mean a barium swallow??? They are notorious for missing reflux and think you are far better off with a manometry plus an impedance test rather than a standard ph as it doesn't pick up reflux to the throat. I'm currently waiting to have this test performed due to my ph test being apparently normal even though I can actually feel reflux travel to my throat and ears.
Not sure if I've been any help but I can only advise if your symptoms persist to ask for referal for further testing.
Take care
Posted 1/6/2015 5:13 PM (GMT 0)
Stacks

It's possible that you are having rebound symptoms from stopping your PPIs. I agree with Trotters that you need to have further testing. Hiatal hernias are not uncommon, a lot of people don't realize that they have them until they have an endoscopy. Have you been trying to avoid caeffine, chocolate, sodas, etc? And, stress will cause any of your problems to worsen. I've also heard that people still experience symptoms after gallbladder removal. Please keep us posted.

Sharon
Posted 1/6/2015 9:20 PM (GMT 0)
So the syptoms I am having were all occuring prior to stopping the PPI, and they are actually even improved since stopping. It it possible that I was on too much causing VERY slow gastric emptying? My bowel habbits are becoming far more regular than when I was on the Omeprazol. That could have partially been blamed on a sluggish gallbladder too maybe? Lately I am having good days and bad days with my throat and swallowing, but if I eat the right amount or the right food, I get the taste of acidic like saliva into my mouth shorly after eating.

The hardest part is no coffee for me, working full time with a newborn that doesnt sleep! :( I dont do soda or chocolate however.
Posted 1/6/2015 10:06 PM (GMT 0)
I'm like you and really didnt get on with ppi. They did the job when I was initially diagnosed by healing up a very raw patch I could feel in my oesphagus. Unfortunately my stomach did not like ppi and I found they made me very gassy, bloated and was diagnosed with ibs which I'm convinced was due to them as it has eased lots since stopping and taking probiotics. I also had palpitations which were a lot more frequent whilst on them. I'm not down crying ppi as I think they help an awful lot of people and for the majority they do a good job just the negatives outweighed the positives and never took the lpr symptoms away completely for me. I'd try and stick to a strict diet for a while and try all the standards such as raising bed, no eating 3 hours before bed. Have you tried gaviscon advance? Pretty good for putting a sort of layer on top of your stomach before bed. If no success I'd request further testing. Good luck.
Posted 1/7/2015 3:04 PM (GMT 0)
I will absolutely try the Gaviscon Advance, thanks so much for that suggestion.

Does anyone have any info on zinc and reflux? I have been told by my GI doc to take a zinc supplement and have also read some things online in connection to reflux.
Posted 1/10/2015 7:07 PM (GMT 0)
Hi i haven't heard about the connection between gerd and zinc... Interesting, will have a look. I know a lot of people who are on ppi for a long time can possibly have deficiencies in magnesium and b vitamins. I take a good multivitamin with probiotic in plus an extra probiotic and extra vitamin d3 too as that's meant to be good for the immune system, for absorbing calcium and inflammation apparently.
Posted 1/11/2015 9:14 PM (GMT 0)
I was on different ppi's for three months and my throat burning was worse, I had a blood test before taking ppi's and everything was normal level, however after three months of ppi's I had another blood test and it showed I had iron deficiency and zinc and I really think this is due to ppi's.
Posted 1/11/2015 10:02 PM (GMT 0)
To be honest they really didn't do a great deal for my throat symptoms either. Different strokes for different folks I guess. Have you tried Zantac. Again don't think they are brilliant for stomach if you are prone to digestion problems but they are a little less harsh than ppi. I am currently back on 150mg before bed and it helps about 30/40% the trouble is the effects don't last for me and I think I become a bit immune to them. They are good for giving a bit of relief when things get tough though.

Think you are right re the iron and zinc. I had quite a lot of hair loss on ppi and think this was due to low iron and other vits. Can get spatone liquid iron which is gentler on the stomach and also effervescent orange vit c and zinc. Should get you back on the right track vitamin wise.
Posted 1/11/2015 11:58 PM (GMT 0)
Definitely sounds like LPR. When I was uncertain I ordered something online called a peptest. It confirmed that I had incredible high levels of stomach contents present in my saliva, which is a big indicator of LPR.
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