HealingWell
Search Close Search
☰

new here

Support Forums
>
GERD & Acid Reflux
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 3/9/2015 4:05 PM (GMT 0)
upcoming surgery cry well, I have had a lot of weird symptoms for a long time, it all started five years ago with one itchy spot that turned into idiopathic urticaria with facial swelling as well. Full body covered from head to feet.then I started to have joint aches, btuising for no reason, sore throat, swollen nodes in my neck that I have had for months now, etc. I have everyday shoulder neck pain, lower back pain fingers that hurt, I guess too much to list, lol. Finally got to a gastroenterologist for my excruciating heartburn that feels like I am having a heart attack. After barium swallow, endoscopy colonoscopy, bravo test and blood, and urine tests I found out I have a kidney stone and a demeester score of 86. The doctors said that is the highest they have seen in their practice. So, now I have an appointment next wednesday to discuss surgery, I forgot to mention that I have a hernia in my chest too. That is what I know at this point, I am ready to feel normal again. I forgot to mention my mostly everyday severe nausea with dry heaves, I think I am going nuts, lol.I can't remember anything! I could say a lot more about aches and pains, but that is probably enough. I have also tried every type of pill for the nausea, etc, but nothing works. I am taking dexilant and famotodine, and they don't solve anything either. I can' t wait to see the doctor. Very sorry for the length of this and the rambling on, thanks for reading this.
Posted 3/9/2015 10:36 PM (GMT 0)
Welcome to the forum, trena.


We're not doctors here, but we can talk about our own experiences.

From my experience and what I've read:
Nexium and other PPIs often work for nausea besides helping with heartburn. My GI prescribes it for me for that. Just make sure to take them first thing in the morning half an hour before eating, and then eat, or they don't work very well.

If you seriously can't get control of the dry heaves, ask the doctor about a prescription for Donnatal. See if he can get some free samples because they are expensive. If that doesn't work try to get some paragoric. You'll probably have to go to a compounding pharmacy for that.

What sort of hernia do you have? Hiatal hernia? Paraesophageal? It makes a big difference. A little hiatal hernia usually doesn't cause problems by itself or need treatment.
Posted 3/9/2015 11:12 PM (GMT 0)
Thanks for replying. I don't know anything yet, my appointment to talk to the doctor is this wednesday. I got a call from his nurse to set up the appointment, and she told me my bravo score was 86 and that I have a hernia and all 3 of the doctors I see want me to have surgery.I had to get off the phone because I was just leaving for another dr appointment. So it will be interesting and scary to hear what he has to say.I have tried to research different hernias to get information. Would you mind telling me your experience with the different types of hernias? Thank you.
Posted 3/11/2015 12:32 AM (GMT 0)
I had a small sliding hiatal hernia, found many years ago but not a problem. I found out what foods "triggered" my reflux/heaving, eliminated them and lived with non-acid reflux (on PPIs) happily unless I ate too late in the evening.

Then 5 years ago I was in a high speed accident that shoved my stomach into my chest - paraesophageal hiatal hernia. A big part of my stomach sitting up alongside the heart, right through the diaphragm. I could feel it trying to roll when I turned over in bed. My reflux went from very tolerable to feeling like I was having a heart attack, and I'd had one of those a few years previously.

So, I went for the surgery after 4 months of testing and agony. Toupet - partial Nissen, because I have very "wimpy" swallow to start with. Long recovery because it's major surgery and I had other co-morbidities. Definitely worth doing! I still have trigger foods, but that's a sort of allergy (sensitivity).

I was never given any sort of "score." Surgeon said a paraesophageal hernia "won't go away on it's own," so he put me on the schedule.

There are probably months of reading in the archives on this forum. Put some keywords in the search box at the top of the page, and read the info at the top of this section.
Posted 3/11/2015 12:42 AM (GMT 0)
Thanks😸
✚ New Topic ✚ Reply