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Facing NF Alone

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GERD & Acid Reflux
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Posted 5/23/2015 1:59 AM (GMT 0)
Dear Xinte - So wish you had another person with you, during all this difficult stuff. Your little Pup is a good listener, but he can't prepare food for you, offer suggestions, drive you about, entertain you verbally, etc. And clean the bathroom after you are having problems.

Diarrhea is just the most miserable thing! I always get very discouraged at that point. (Don't suffer that very often) I tried to vomit once, and it hurt just terribly! I am very fearful of popping any stitches internally. It was dry heaves, like yours.

How disappointing not to be able to get Visiting Nurse service, or any other home-care aides. A down-side to country living, I guess. We live out in the country too, but town is 15 minutes away, and neighbors close by plus relatives two streets over and up the block. (Not that I call on them, but they are there if need be.)

20# in 8 days is a lot! I'd be wary of that; it will make you weak. Look forward to chewing; in the mean time tiny sip, sip, sip! about 6 times a day, try to get something nutritious down, please.

Thinking of you, across the Pond!

Ingrid (Color me Fresh Greens)
Posted 6/17/2015 1:47 PM (GMT 0)
Hello All,

Thank you Fresh Greens for your lovely post and yes wouldnt it be lovely if there was a place where all solo people could go just to be taken care of when theyre not well.

Ive not been on the internet for a while as Ive been unwell and not really able to do much at all apart from just surviving.

Its been almost 6 weeks now since my surgery and for the last 2 weeks Ive had terrible pain in both my stomach and my bowels and no one seems to know why. I definitely have lots and lots of gas, I pass wind almost constantly, and they are not little fairy puffs either! they are loud, smelly and explosive! sorry if tmi, so I cant imagine I have trapped gas, my bowel habits are normal, yet still I get cramps and spasming of my lower stomach and bowels, its really incapacitating.

When I tried to contact my surgeon, I am told that he is away for a month prior to his retiring! So I had to see my GP and also a junior Doctor at my A&E department, who really dont have a clue what theyre dealing with and fob me off with Buscopan, antibiotics and Anti-Emetics, simeticone,all too no effect.

So I'd like to ask if anyone else has had these symptoms at this stage of their recovery and how long it lasted, did you find anything that helped? I am on stage one of a soft diet at the moment, still cant manage anything more, would really love to know if my experience is normal at this stage, as I cant seem to get info from the medical profession, thanks and hope you are all keeping well on your journeys xx
Posted 6/17/2015 9:08 PM (GMT 0)
Hi Xinte
I'm 5 week post OP and I also developed a lot of gas problems. Usually they start in the afternoon. I take Gas X for it. The ingredient is Simethicone 125 mg in case you want to look for it in the UK. That usually helps me. Also lying down on my back with my head elevated helps-if I start walking around or sitting up it gets worse for some reason and I also get more pain. If I rest it resolves itself within 1 hour or so.
I hope this is only temporary and we find relief quickly.
Posted 6/18/2015 10:09 AM (GMT 0)
Hi Elke,

Thank you very much for your reply, Im sorry youre going through this too.
For me too, the pain gets worse if I move around or sit up, yes, we have the simethicone here too, but it doesnt seem to do much for me, the only relief I seem to get is holding a hot water bottle to my tummy, but of course I cant walk around all day with one and its quite hot here in the UK at the moment.
I too hope this is only a temporary thing, but it is worrying when you dont know whats going on and how long its going to go on for.

Take care Elke x
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