Roemheld Syndrome

A cure?

this is my story and I hope it can help anyone who reads its. For years now I have been aware of ectopic beats. At first way back in 2011 I would feel one every now and again then in September last year they suddenly got very bad - I had two 48hr Holters which showed I had around 7 to 10% of my beats were ectopic. I was also suffering from a lot of burbing and of course had the constant feeling of anxiety and dread you get with ectopic beats. I went to several different doctors - all said the same thing - your heart is fine - no idea why you have these beats - yes it is horrible, sorry nothing we can do. By march this year the situation was so bad I was in permanent state of bi and tri gemini with some periods where the ectopic and normal beats would alternate. It got so bad they were battling to do MRI's and Untrasounds - same response - do not know what it is sorry. I then went to a highly recommended cardioligist who after one exam said we have to put in a pace maker immediately one with an icd. He told me the ef of my heart was 40% and I had cardiomyopathy. I was in a state of shock. He told me I had to have the op done immediately. Fortunately I had my doubts and I visited yet another cardio who told me that this guy was just trying to make money and that a pacemaker would not help me - that said he could not help me either. So I did tons of research and adopted a shotgun approach to cures and SOMETHING HAS WORKED - I have not had an ectopic beat in 4 weeks - they gradually started diminishing about 7 weeks ago. I am so happy for the first time in nearly a year I have no anxiety and I can sleep at night without my heart thumping and skipping in my chest. So here is what I did - hope something works for you.

Chiropractor

I read that Chiro's can treat Roemholds syndrome - my chiro did the research in his community and started various treatments to my back and chest and even stomach.

Supplements

I read that magnesium and potassium deficiency can cause ectopic beats and that it can take a long time to build your magnesium back up - so I started taking high quality supplements

Holistic Doctor

I went for a full panel of tests - one strange thing came back - I had a very violent and strong reinfection of epstein bar - doc gave me some treatments for that as well as something called solunat 5 and Folgar12

Diet
I went LCHF - and followed the whole 30 for a month

Church
I am not religious - but on a trip to Malta we were taken to a church on a tour where the guide assured me that any health condition you asked to be cured would be cured in a year - so I asked for my heart to be fixed

So which one of these worked? Was it all a coincidence? Who knows and to be honest I do not care - Something worked and I am so happy i cannot describe it

I was recently diagnosed with Roemheld Syndrome and I am very glad that I finally have a name for the symtoms I have been having for 42 years. When I was 16, I started getting fainting episodes, but could never connect them to any reason. I was usually out for only a few seconds, sometimes a few minutes. They happened on average once a year, and I didn't pay any attention to them cos I had no other symptoms. At the age of 43, the fainting episodes stopped, maybe because I changed my diet, cut out wheat and dairy, however, I was never able to do a fast exercise class as I started to get palpitations, sweating, etc. heart rate went up to 160 and when I called the instructor and showed him on the treadmill, he said it's impossible!! Treadmill must be out of order. After menopause, the palpitations became much more frequent and I had 24 hr holters a few times and all the relevant tests and they never found anything wrong. My family doctor said its anxiety, and sent me to a psychiatrist. A few years later, diagnosis of electrical problem and had an ablation. Helped a little for a short time. I am very anti medications. The doctors wanted me to start taking beta blockers, nexium for reflux, and some other heart pill, I can't remember now. And so it continues. Now at the grand old age of 68, I had a body scan by Global Diagnostics, non invasive, and in only 8 minutes. Brilliant! Among other stuff was Roemheld Syndrome that I had never heard of. I was put on the Paleo diet which means no gluten, no dairy and no grains. Not easy, but my reflux and esophageal pain immediately went away, probably cos of the not eating grains. I find taking magnesium helps a little, but still get palpitations and breathing difficulty. I also am very stressed out, that's just my make up, and I think that's also part of the reason for the problems. So reading about the chiropractor helping was very interesting, now I will try to find a chiropractor who can understand the problem and hopefully help me. My father had an arrythmia and took medication. He refused a pacemaker and died suddenly of heart block. My uncle too. Is there a genetic link here?

Wow! I finally decided to research the fainting episodes I have been plagued with since teen years. I am now 51 years old. Many, many episodes, initially always with onset of severe menstrual cramps (had large benign tumor on my uterus that caused strong contractions to initiate menses). Then any intestinal cramping. Then any sleeping on a full stomach. Or sudden surprise. Or stress. Or fatigue. Several trips via ambulance and full workup of head CT, cardiac and carotid artery ultrasound. Everything fine. At least several episodes of GERD with ease after nitroglycerin dose. On betablocker for many years due to frequent Premature Ventricular Contractions (PVCs).

My grandmother was a "fainter." So was my father. So are my sister and me. So must have a strong genetic predispostion.

If anyone knows a knowledgeable doctor about this, in the US or elsewhere in the world, please let me know. It has happened to me twice in the past week and it is getting scary. Each time I fall off the toilet I end up with bumps and bruises on my head, shoulders, back and I am realizing I run a high risk of serious injury.

Thanks for any assistance!