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LPR - weak UES

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Posted 10/29/2016 8:59 AM (GMT 0)
I've been diagnosed with LPR in October this year. My symptoms started in June.
First it was geographical tongue. Now I have:
- sore throat
- red throat, coated in veins
- tinnitus progressing in both ears

My endoscopy was clera no issues with stomach and esophagus.
Ent diagnosed swollen red larynx and pharynx.
My Restech results: 15,41 upright, 2.9 supine: mild LPR low acid
My manometry results: motility ok, LES ok, UES hypotensive

Culprit of my LPR is hypotensive upper sphincter: what should I do now?
Any ideas how I could help myself?
Posted 10/31/2016 12:16 PM (GMT 0)
How do you sleep at night, does it wake you up and such? Is it worst in the morning? I don't know much about how the UES being faulty would affect you but i know the LES is the primary defense so if that's working right it makes your case quite strange. I would think having a faulty UES should only cause symptoms at night (maybe? I'm pretty sure both the UES and LES relax at night for everyone even healthy people so...) or when bending over (assuming you don't bend your knees but instead bend your whole upper body).

Another thing I can think of because I saw you were saying your problems started after antibiotics is increased stomach pressure. Do you feel bloated often or pass a lot of gas? If you do then any increase in stomach pressure create problems in anybody but without your second defense it might make you more susceptible to throat damage.

If you have none of those problems (especially no bloating/passing gas) I feel like you should go get a second opinion. As far as I know LPR is difficult to diagnosis because there are no unique visible features to it, a sore throat from an infection vs LPR looks the same for example. There's a good youtube video on it called "LPR over diagnosed and poorly understood" it's a 40 minutes presentation by an ENT. I'm not saying it's over diagnosed for everybody especially if you got the classic symptoms of throat clearing and cough but in your case it's... well strange lol.
Posted 10/31/2016 1:20 PM (GMT 0)
Well In case of LPR - UES is not working. This is the only protection from stomach gas with pepsin. If it fails - you have pure LPR. My LES is great, my motility as well.
No I have no bloating, stomach pressure - nothing. My LPR was diagnosed also by Restech -ph metry of throat. So rather not possible to have wrong diagnosis.

Question remains: what to do with hypo UES? :)
Posted 11/1/2016 4:23 AM (GMT 0)
I'm just going to assume you're trolling me at this point.
Posted 11/1/2016 8:28 AM (GMT 0)
Why? Unfortunately I'm not. I whish I could troll in this subject.
Posted 11/1/2016 10:57 PM (GMT 0)
Sorry, no docs here. What did your doctor tell you?

I don't know of anything you can do to strengthen any esophageal sphincter. Surgery can close the LES. Maybe one of the less invasive surgeries could make the upper sphincter tighter, but that doesn't sound like a good thing unless you try everything else first - medical things, not stuff suggested by non-MDs on the internet.

If your doctor doesn't have anything to suggest, I'd get a second opinion, as SD93 suggested.
Posted 11/2/2016 7:09 AM (GMT 0)
Thank you Alcie. I'm looking for solutions.
As far as I know there is no operation for UES.

I wrote here to find people with maybe similar experiences who could possibly point me a direction.
Posted 11/2/2016 10:19 PM (GMT 0)
Jukke: Gas and vapor can get by both the LES and UES without their being anything wrong with either. Best to read my story below and do some research on "low stomach acid" and how if affects reflux. Good luck



about four months ago I was referred to an ENT Clinic complaining of recurring hoarseness, post nasal drip, asthma and frequent throat clearing. After examination and testing I was diagnosed with LPR, a form of reflux. The ENT protocol for treating LPR, as approved by the American Academy of Otolaryngology, calls for a six month treatment with a Proton Pump Inhibitor (PPI) that essentially shuts off your stomach’s production of hydrochloric acid. The apparent theory being that stomach acid is causing the symptoms. At no time was I tested to determine my current level of stomach acid. I was given a prescription for a PPI (Omeprazole-Prilosec), a strong stomach acid suppressant. After two weeks and no symptom relief, I stopped the medication and started researching LPR on the Internet. This led me to the two books, “Stomach Acid is Good for You” by Jonathan Wright, M.D. and “Fast Tract Digestion-Heartburn” by Norman Robillard. PhD. I found many other resources including Chris Kressor, Dr. Axe, Dr. Perlmutter and Dr. Mercola that suggested that low stomach acid and its replacement was the key to treating LPR and even GERD. Accordingly, I tested myself for low stomach acid and determined it was quite low. I started taking supplemental HCL/w/Pepsin and worked up to five 648 mg caps with most meals involving protein. Within a week, all my symptoms vanished. I am now down to taking only three or four caps as my stomach is apparently starting to produce its own acid. Since starting supplemental HCL with Pepsin, I have not had one bout of asthma or hoarseness. Neither have I had a post nasal drip or throat clearing episode.
Most GI and ENT Docs will dismisses the work of Dr. Wright and Dr. Robillard as lacking sufficient scientific evidence to be of value as accepted treatment protocols. However both doctors report success using their methods with Dr. Wright reporting that 90% of the patients he has seen for reflux tested for low stomach acid and were helped by taking Betaine HCL with Pepsin.
Posted 11/6/2016 6:24 AM (GMT 0)
Message to jukke.
I may of read you are in Poland?

I am new to this site. Now a i am suspected silent reflux sufferer. being new to all this the symtoms are very scary.
Jukke i am also in poland.
I would value some help from you with experiences in poland.
Posted 11/8/2016 4:18 PM (GMT 0)
Yes Newminor, I am from Poland.
I cannot pm you or send you an @.

So I'm not sure how to conntact with you?
Posted 11/17/2016 7:50 PM (GMT 0)

IBHIPRU2? said...
Jukke: Gas and vapor can get by both the LES and UES without their being anything wrong with either. Best to read my story below and do some research on "low stomach acid" and how if affects reflux. Good luck



about four months ago I was referred to an ENT Clinic complaining of recurring hoarseness, post nasal drip, asthma and frequent throat clearing. After examination and testing I was diagnosed with LPR, a form of reflux. The ENT protocol for treating LPR, as approved by the American Academy of Otolaryngology, calls for a six month treatment with a Proton Pump Inhibitor (PPI) that essentially shuts off your stomach’s production of hydrochloric acid. The apparent theory being that stomach acid is causing the symptoms. At no time was I tested to determine my current level of stomach acid. I was given a prescription for a PPI (Omeprazole-Prilosec), a strong stomach acid suppressant. After two weeks and no symptom relief, I stopped the medication and started researching LPR on the Internet. This led me to the two books, “Stomach Acid is Good for You” by Jonathan Wright, M.D. and “Fast Tract Digestion-Heartburn” by Norman Robillard. PhD. I found many other resources including Chris Kressor, Dr. Axe, Dr. Perlmutter and Dr. Mercola that suggested that low stomach acid and its replacement was the key to treating LPR and even GERD. Accordingly, I tested myself for low stomach acid and determined it was quite low. I started taking supplemental HCL/w/Pepsin and worked up to five 648 mg caps with most meals involving protein. Within a week, all my symptoms vanished. I am now down to taking only three or four caps as my stomach is apparently starting to produce its own acid. Since starting supplemental HCL with Pepsin, I have not had one bout of asthma or hoarseness. Neither have I had a post nasal drip or throat clearing episode.
Most GI and ENT Docs will dismisses the work of Dr. Wright and Dr. Robillard as lacking sufficient scientific evidence to be of value as accepted treatment protocols. However both doctors report success using their methods with Dr. Wright reporting that 90% of the patients he has seen for reflux tested for low stomach acid and were helped by taking Betaine HCL with Pepsin. I suggest you get Dr Wright’s book as a starter.

hello, what test did you have for low stomach acid?
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