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Day one off PPI..

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GERD & Acid Reflux
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Posted 9/12/2018 12:31 AM (GMT 0)
So I spoke with my Dr about the PPI's not really working anymore and actually making things worse. She suggested I come off of them and try Zantac for the time being and can always go back on them if need be. So I didn't take my morning dose this morning. Does anyone know what I should be expecting in the days to come? I never had burning to begin with but I've heard this happens when people come off. I've been on them for about 6 weeks. 20mg Aciphex.
Posted 9/12/2018 1:16 AM (GMT 0)
Not everyone gets rebound acid, but if you do then the Zantac should be able to keep it at bay. I take a zantac at night before bed to stop night time reflux. I think the Zantac actually works better than the PPI for me, as it gives me more relief at night.

If you do feel heart burn coming on, you should take tums 15 to 30 minutes after meals, for as long as the symptoms last. Gaviscon after meals will also help a ton if tums are not enough (choose one or the other depending on severity). Best of luck!
Posted 9/12/2018 12:56 PM (GMT 0)
Thanks for the advice mauricesr. I've got Zantac 75, should I go extra strength?

Day 2..haven't noticed much in terms of burning etc. However, food is sticking to the base of my throat again, so maybe I'm getting some silent reflux. The symptoms are so weird and don't make sense to me. I get no burn and then food gets stuck. Other times, I get funny taste in throat for days and no food gets stuck. The food getting stuck only really started happening after I started PPI's...so that doesn't make sense to me either. Still waiting on getting an apt for Barium swallow.
Posted 9/13/2018 12:54 AM (GMT 0)
Coming off PPI's I would suggest Zantac 150mg for sure. Even then, 150mg is significantly weaker than a PPI, but if you take it at the right time then it'll offer some relief. You can take two of them at the same time (300mg is the prescribed dose) or space them out throughout the day at 12hr intervals. So if you take one at 10pm at night, it might be good to take one at 10am in the morning.

The food also started getting stuck for me after PPI's, actually my symptoms got worse after being on PPI's, but the wheezing stopped, so I assumed that the PPI's were working. None of it makes sense to me either, how I can feel better but bad at the same time. I'm waiting on an apt for an endoscopy, so it looks like we're both gonna have to hang in there for a while longer.
Posted 9/13/2018 1:02 AM (GMT 0)
I'll have to head to the pharmacy tomorrow and grab some stronger zantac in case I need it. I decided to taper to every other day on PPI for one week just to be more careful.


So strange about the food sticking while on PPI's, I wonder if it's a side effect that isn't on my pharmacy pamphlet.
Posted 9/17/2018 6:36 PM (GMT 0)
Ok so it's day 7 off PPI. I tapered for the first few days. Now it's been 3 days without any. I feel better than I did on PPI. How is this possible. I went on PPI because of a lump in throat and a gummy sticking in ,my throat once. After a couple of days of PPI's, felt totally better. Then food started to get stuck like crazy, phlegm, regurgitation, bitter taste, stool issues, pressure in throat etc. All while on PPI's and taking them half hour before food. I avoided coffee, alcohol, tomatoes, citrus etc. Now I'm drinking coffee, I had mcdonalds. No regurgitation. What the heck? I can't find anywhere that says PPI's can increase acid so I have no idea what's going on.

Still no call for the barium swallow. Maybe I have low acid? ANybody out there have similar issues with PPI's?
Posted 9/17/2018 8:32 PM (GMT 0)
I am not a doctor, but maybe the PPI's worked too well and reduced your stomach acid significantly to the point where the food just sat there causing all of these problems?

A similar thing happened to me when I was first diagnosed with GERD 8 years ago. I took the meds for a little while and they made me feel worse, so I stopped taking them and I felt way better afterwards. I went back to eating badly, even convincing myself that I didn't have GERD, and here I am 8 years later with acid coming up to my throat. I believe that this is due to the progressive nature of this disease, and my continued overindulgence.

Have you had an official GERD diagnosis? If so, I would continue the diet, but maybe not the PPI's if you feel better without them. I think an endoscopy would be really helpful here as well to find evidence of whether or not acid is really coming up.

I hope that you keeping feeling better as you wean off.
Posted 9/17/2018 9:46 PM (GMT 0)
Thanks Mauricesr,

That definitely sounds possible. I started to feel awful on those PPI's. I haven't been diagnosed other than a physician saying I probably had gerd. I'm not sure what else it could be but I really wish they would call me about the barium swallow. They said that it would be the first diagnostic test then possibly endoscopy. I guess I should probably not resume by bad diet..it's hard though. I love my coffee. arg.

I appreciate your advice and input.
Hope you feel better soon.
Posted 9/17/2018 9:55 PM (GMT 0)
hey guys, I have been reading your posts, I just wanted to chime in, and say thanks for the support you 2 have showed me. I am so sorry at what you two are going through. my symptoms are pretty much child's play compare to yours. best of whishes to both of you.
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