Puppetman, so sorry I have only just seen your post.
Everything was fantastic, the Endostim took all the reflux away it was magical
Found out last year the company wasn't doing good, and subsequently found out no batteries are currently available. Then found out this year my batts stopped, but since they stopped, I've been very careful to avoid certain triggering foods like gherkins/pickles. I get reflux, I sometimes have to resort once more to taking maalox antacids, I sometimes again have a hoarse voice, I sometimes feel sick, my chest sometimes makes those funny noises that occured before the Endostim was fitted.
Like others, I am devastated the batts cannot be found, currently.
Rumours sometimes come up here in the UK that perhaps somebody will come up and produce.
But as yet, zilch, nil, but I keep scouring the web and have contacted various doctors abroad but no good news, yet.
I refuse to give up.
I feel, as we know, as do certain others here too, that the Endostim was such a brilliant device taking away severe chronic debilitating reflux in over 90% of cases (yes, that is true), that surely somebody has to come along and produce the batteries and the Endostims, it makes no sense when the Endostim was so brilliant why nobody'll come along and take over.
Just now, I decided to check online once more, to see if there's any hope/news out there.
I found 2 things but am not sure if they are about
old news or new news, but gasped and nearly fell outta my seat as it were, when I saw that both were dated 25-27 October, 2022...!!!!!!!!
Could it be???????
Could we get our batteries???
I don't know.
All I know is I continue to take care of my device regardless just in case ie I always refuse magnetic body scanners etc, just in case of anything.
If I'm allowed, please moderator, the 2 websites in question mention:
EndoStim Receives FDA Breakthrough Device Designation for the EndoStim System for the Treatment of Drug Refractory GERD ****Published: Oct 25, 2022****
and
EndoStim wins FDA breakthrough designation for EndoStim to treat drug-refractory GERD - ****dated OCTOBER 26, 2022**** - EndoStim announced that it received FDA breakthrough device designation for its neurostimulation system for treating GERD.
I scanned online earlier this year. I was absolutely gutted to have missed a zoom regarding some reflux doctors and the question of Endostim, in South Florida, so I emailed them but the response I got back regarding hope for Endostim/batteries, was hopefully someday soon...
I am hoping for a miracle, that there might be light at the end of our Endostim tunnels.
In the meantime the device is still where it's always been for the last 6-ish years.
I refuse to give up.
In the meantime doing all I can to avoid as much reflux as poss ie not eating in the evenings, not lying down after eating, watching how much is eaten of possible triggering foods.
Puppetman (and others who had Endostim), please do stay in touch with any updates about
your reflux and specially anything whatsover to do with Endostim devices, however small a rumour is, who knows we could get lucky in the future with new batteries.
I hope you read this Puppetman, and I hope you are doing okay. Please post. and take care x
Post Edited (321lift0ff) : 10/27/2022 12:46:00 PM (GMT-7)