Good morning,
First of all I hope everyone is doing well or at least trying. I apologize in advance for the mistakes in the text, I am from France and although I speak English, it is not my mother tongue.
For as long as I can remember, I suffer from chronic halitosis. My main symptom is a sabural, extremely white viscous tongue that does not leave even with a tongue scratch. I also have a constant lump in the throat, bloating after eating, caseum about
every 4 months, and finally I always wake up with a hoarseness in the throat and a stuffy nose feeling.
In my youth I tried for a long time to understand my problem and it was when I was 19 that I started to take steps to solve my problem.
So I performed several tests (including the test for mycosis/thrush which came back negative) and saw several doctors without an answer to my problem.
The first potential explanation for my problem came at age 21 when I performed a Helikit test that confirmed the presence of the helicobacter pylori bacterium. This result was then confirmed by fibroscopy, confirming the presence of my bacterium and also showing many heartburn and some gastric problems. Unfortunately I can not find the results of this fibroscopy and I think I have to pass other endoscopic examinations.
After a week of treatment, the bacteria disappeared. During my treatment, I was on PPI which allowed my tongue to regain a normal color for 1 day. Nevertheless my symptoms remained and my tongue regained its 'natural' white color just after.
After that, I consulted an ENT who suspected an inflammation of the esophagus. He explained that my problem could come from GERD.
Member of a forum against halitosis, since unfortunately closed "http://www.atoute.org/n/article347.html", a medical student suffering from the same problem as us, with the pseudonym "Opiniatre" advised me to test my acidity via a pH Metry. The forum has closed, I unfortunately no longer have contact with him. It is unfortunate because it is a real glimmer of hope for those who are suffering like us.
The pH Metry could deliver an interesting result: I suffer from a significant pathological acid reflux. My gastroenterologist prescribed an antacid to take for a few weeks but it did not work.
Faced with the absence of a gastroenterologist seriously concerned about
my problem and busy with my academic life, I put aside my problem in recent years.
Today, I put everything aside to devote myself almost fully to my chronic halitosis.
I contacted an ENT specialist in reflux and after a ph impedance examination, I was diagnosed with a chronic, non-acidic, gaseous reflux that goes up to the nose and mouth: it is a laryngopharyngeal reflux or what you guys call call LPR/ Silent Reflux.
I have been on treatment for 2 months of PPI and antacid but this does not improve my pathological halitosis and every other symptom that I suffer from.
I try to consider the future with for example the option of surgical treatment but I do not think it would change anything: https://www.fmcgastro.org/texte-postu/postu-2023/rgo-les-alternatives-urgicales-ou-endoscopiques-aux-traitements-medicated/ https://www.sciencedirect.com/science/article/abs/pii/S1878786X18300081
https://www.refluxgate.com/lpr-surgery
I took the liberty of writing my experience to ask for your help on the paths to explore. I am
open to all information and can be reached on my email address
[email protected].
Here are some articles I could find on the internet, they seem interesting to me. https://www.healthline.com/health/fetor-hepaticus https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10241618/ https://www.westsidehn.com/managing-acid-reflux-gerd-lpr/how-does-acid-reflux-affect-the-tongue/ https://www.medicalnewstoday.com/articles/acid-reflux-and-bad-breath https://www.fauquierent.net/lpr.htm
Also, some forums that may be interesting to explore: https://www.healingwell.com https://www.rareconnect.org/en/profile/feed https://www.reddit.com https://patient.info/forums/discuss/coated-tongue-712524 https://www.badbreathhalitosis.com/phpB2/viewtopic.php?t=5921
Wishing us a total recovery!