what is up with the large amount of Nissen surgery failures??? Part 2 of 3

Bill - Good luck & stay strong & in no time - I am sure you will be having that juicy chicken
and steak.

Barb, you are right, it is difficult for me stay like this. The med (PPI) doesn't seem to be affective. My sleep is not good. I take melatonin and it help some, but wake up all the time doing the nite.

I have soar-throat - my neck make click sound - painful.

Am exhaused in the day time at work! Barb, thank much for your advice. Barb, Nexium - how many MG are you taking? I was on Nexium while back - 20mg in the morning and 20 in the evening. It work quite well for some time - but I wasn't able to tolerant it - I have very bad stomach pain -much be the side-effect of Nexium. Than, my doc switch me to Protonix 40mg morning and 40 mg in the evening - it work but not affective. I guess my symptom is getting worse. The doc at USC told me that if I don't get it fix (surgery), my symptom will continue to get worse and deteriorate...

I am scare.

I am looking at surgery. The GI doc that I had given my test to didn't think that I am due for surgery because he think that I am 40 and not 18. I won't be going back to him -that is for sure!

At the moment, I am waiting to change my insurance to PPO, so that I can go to another GI doc and get thing going. I am waitin for my work place - for the new re-enrollment. It going to be some wait.

In the mean time, I went for Linx trial out. I don't kow if I qualify. They told me to be off my PPI for 2 weeks. I was off my PPI for 3 days last time, I felt burn esophosguz, throat, soar-throat, pain, and constantly reguritation all day-sour-mouth. Very uncomformtable for that 3 days.

Now, they have me off my med for 2 weeks, starting tomorrow for the linx trial out test.  They told me that I can't take any antiacid either - such as tum/mylanta, mylot. I am crossing my finger and my toes. Off  PPI for 2 weeks - I don't know how I am going to hold...

My 3 tests will be at the end of this month - Manometry, 48 hr and Endoscopy. Wow - I must say - Maometry was so uncomfortable. I still had that bad chocking memory -experience when I had that months ago.

Barb, please take care of yourelf and get plenty of rest - I am glad you are feeling better with the med :D  thank much -

 Good nite for now :)

Marie

Thanks for the info Bill. I tried the mouth guard for football that you heat up. It didn't work. I just told my hubby about your idea. He went to school and worked in a dental lab and he said that the dentist will have to grind my teeth again to get my bite even before he takes an impression and then the lab has to get right on it that day and have it back to the dentist with in 5 business days before my bite is off again from the grinding. They already have both appointments all set up. I go tomorrow for the impression. He thinks the dentist is the best way to go and he knows the lab that the dentist sends it to and they are the best in the area. I don't always listen to my husband, but in this case he has the knowledge and I trust him. I really hate spending that much, but he says we pay now or  pay later with crowns on my teeth. We found out today that our daughter in law is having a son due on September 1st. I'm so excited. We'll go out in September to see the new baby and our other 2 grandchildren. We are going to take a different way to by pass chicago. I hate driving through there. Not a fun way to start out a 24 hour drive half way across the U.S. Oh well whats at the other end is always worth the trip. Well I am off to bed as I am exhausted after our banquet today and running around. Hope you have a good nights sleep. I'm having problems sleeping again and I think it is because they lowered the amitryptaline. I noticed my throat is more irritated I think because there is more saliva pooling because my mouth isn't as dryed out either. It makes me want to scream. I was just starting to enjoy not being exhausted during the day. Oh well it's always something with me. Have a good night. Barb

Barb -
I tried that amitryptaline once, wow...I couldn't function at all. It was like I was drunk all the time. I'd take one itsy bitsy pill and be loopy for a day. Now they think it was because I was on that and neurontin at the same time. Seems that isn't a good combination.

Have a nice night of sleep.
Take care,
Bill

Marie -
Are you having the wire PH study or the Bravo capsule? The wire PH study is uncomfortable. I think the worst part after it is place is when you eat. Somethings tend to stick to the wire and pulls in your nose. Sounds horrid, but that's what it does. I definitely had acid rebound the first time before surgery. I drank a lot of milk to get by. As far as surgery goes, I remember the wrap area being fairly sore for a couple weeks. The incisions weren't too bad for me, well except for the one right below my left ribs anyway. That reminds me...I hope he moves that one over a little Monday. Sorry, got side tracked. Hang in there, unfortunately the tests won't be accurate if you are on the meds.

Take care,
Bill

 

Hey Bea, that is awesome - it is so cool - way to go, Bea - Congratulation! :)

Bea, before the operation, did any of your med works? As for me, my med doesn't seem to work affectly. Bea, your symptom sounds pretty much like mine. I have this type of symptop for approx more than half year. Bea - how long did you have the  sour / click throat / backwash? Do you have burn throat?

How long did you stay in the hospital after the surgery?  It seem my LES is not working.  I am going to talk to the doc about the linx.

Thank much, Bea.

Bill, I believe I am going to have the Bravo this time. I had 24 PH study last time. Agree - the thing that hang around the nose is sure feel funny. The manometry  is the one that made me sweat.

Barb, thank for the advice on the med - pepcid. Once I get over my test- I am going to talk to my doc to add pepcid to help reduce some of my gerd.

Thank everyone. Please take care. Have a good nite, everyone :)

Marie

Hi all,
Well I have to be at the hospital at 5:30 am Monday. So I have to leave the house at 2:30 am. Dang that's early.

Bill

Bill - that is very early - seem like a long way. R u driving there?
Take care, :)

Oh how awful Bea, I didn't have a tube down into my stomach after my surgery. I wonder why you had too? I had to stay in over night when I had my nissan done.

Bill I'll be thinking of you and praying for you Monday. That would suck to have to leave that early for surgery. And to think I complained about the half hour drive down to the hospital my doctor did surgery at. I had to leave at 5am for mine after being up all night because of the lovely stuff they had me drink. Good luck.

Hey Marie, you have to be off meds for a week for the bravo. I don't think the bravo is as accurate as the 24hr ph study with the tube. I had a contant burning with the bravo capsule down there. Barb

Yes I did have some Marie, but it wasn't as bad as before when I had to do it for the ph study before I had the surgery. Try drinking whole milk to help coat things. Goat milk is another thing that really helps coat things. Also eating thngs like just potatoes and rice cereal(really bland things) seems to help. I wonder if the apple cider vinigar(3tlb.s in glass of water) would help you at all. You could try that too. I would try the whole milk first though. Hope that helps you out. Barb  

Bea, what is demeester scale? what is the normal score for Bravo?
Everyone, why do we need the Bravo test?
I understand that if one have a defective LES valve, than we have acid reflux.
Bea, where do you have your surgery?

Thank everyone for the advice regarding what to take before Bravo. Milk doesn't seem to help me much. I ate ton of watermelon (we got more than 10+ watermelon) left and right - drink coconut juice, eat banana, eat rice cereal, eat green veg, and take a few teaspon of RAW Manuka Honey. I feel a little better -
Bill - good luck on 18. We all here wish you well soon :)
I am going in 19th for my tests Knock on wood.
Take care everyone.
Marie

Hey Marie,
Bill took the words right out my mouth.The normal range on the demeester scal is 14.7 I believe.Any score above this is abnormal. The scroe comes from all data collected by the bravo test. I had my surgery here in Staten Island new York. A great srugeon according to my wrap.He did over 100. I posted 1000 by accident in one of my other posts.
Bill,I thought u were going to take a nap.Dont worry u wil be fine.
Take care,
B

Bill,
Its ok .4 hours. At least they have a range.You want to get a good doctor that will tell u the truth so yay for him. Good luck. I know your a little nervous it is natural. Look @ my scaredy cat a** 10 days ago, I was you, now you will be me lol
b

Ditto, Bill!

I had a score of about 14 when I had my PH test. That was some concern to the surgeon, but he trusted the opinions of my doctors. My GI doc felt that I could even be having bile reflux, and it was affecting my lungs. My lung problems were considered life threatening. I have so many lung problems that are unrelated to GERD that the constant inflammation that my reflux was causing put me over the edge.

Hard as it is to believe (with all the lung problems I've experienced with the flu and allergies) my asthma is much better than it was pre surgery. I even had a few weeks of wonderful, clear, asthma free lungs...that is something I've experienced in years.

So...a low score doesn't always mean that surgery won't help the problems an individual is experiencing.
It has certainly helped me!
Denise