Please help, I need some advise

OK I need some advise from you guys with expereince about this god awful disease on my current situation and some advise on what I should do next.

so a quick background, I was diagnosed with LPR in January this year after 12 months of repeated sinus problems, I had a throat scope and my Larynx was very red and angry with a lot of mucus, I was put on 80 mg a day PPI's and Liquid Gaviscon after every meal, in March I had an endoscopy and a biopsie taken showed a small about of inflamation at my lower junction, the GI DR said this was not something to worry about and the PPI should take care of this and he would like me in time to come off them altogether.

I had my throat scoped again two weeks ago and the ENT said things were better there was still some redness and swelling and mucus but a lot less than there had been and he has asked that for the next two months I take just one PPI a day and then stop, he has also said I should only take the gaviscon at bedtime and not after every meal

so, the questions I have is that I am still refluxing, and it does not yet feel in control, I could do with losing a couple of stone and I am finding sticking to the bland diet really really hard, I know if I do both of these things it will help

the question I have is, how worried about the longer term should I be?

should I be worried that the small amount of inflamation in my espohagus could get worse and if so what time scale should I be looking at?

should I be getting scoped again for my throat and espophagus the two DR's did not feel the need to see me again

I am really worried that my body has turned into a ticking time bomb and I am on death row just waiting for this to turn into Cancer, how likely is this

I would really appreciate anybody's thoughts with expereince on this to give me their thoughts on where I am at and what I should or should not be worried about and what I should be pushing the DR to do or no do

thanks in advance, this board has been a real blessing

Best Wishes

Tourmantiger

Tourmantiger -
Did the meds help your symptoms? If so you may want to stay on them at a lower dose maybe. It has been my experience that the root problem causing the symptoms doesn't fix itself. Mine was so bad that I had to go the surgery route. If the doctors aren't giving you satisfactory answers I would get another opinion. You didn't say which PPI you are taking. For me Prilosec never worked. Nexium and Prevecid did for a while, but stopped working and instead of going to 4 doses a day I opted for the surgery. I have been on Protonix and Aciphex the last few weeks because of complications from my Nissen redo, but will be off them in another week. If you are taking Prilosec and aren't getting relief you may want to ask for a different one to try.
You said you had a couple scopes, but have they mentioned anything about a manometry or PH study? If you are refluxing bile the PPIs won't help and I believe the only way to tell if it is bile or acid is a PH study. I have developed Barretts and have to have an EGD every year now to make sure it doesn't get worse. If it was me I would find a different GI doctor. When I first was diagnosed with GERD I was told I would have to probably take meds from that point on to control it.

Take care,
Bill

Tourmantiger,

 

I understand exactly how you feel. My Father and his 5 siblings died of cancer.  My oldest sister had cancer but died of a heart problem.  My middle sister just died in April of Ovarian Cancer.  I have a long family history of cancer and I  had 4 skin cancers removed last year. Yes, I have fears too but I have learned not to  dwell on what may be ahead for myself.  I just take it one day at a time.  I do have my moments however and then I have to pull back to staying in the moment.

It is normal to experience some fear. Telling yourself not to worry or criticizing yourself for being afraid won't make these feelings go away. Accept that you are going to experience some fear and focus on finding ways to help yourself manage the anxiety is the best advice I can give you. 

It may also help to remember that the fear usually lessens over time, and that you won't always feel so anxious.

Talking about your fears and feelings or writing down your thoughts in a journal can help reduce your anxiety. Talking and thinking about your concerns can help you explore the issues underlying your fear.

For me, I chose therapy and it helped me a great deal.

Please do feel comfortable continuing to post your fears and anxieties here in your own thread.  We are here to support you and please know we care.

Wishing you the best,
Kitt