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Laryngopharyngeal reflux sufferers doomed???

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Posted 12/29/2010 11:25 PM (GMT 0)
Hi.

I can't even express my anger and how I feel about the medical world neglecting LPR as desease. Different kinds of surgeries and techniques have been developed to help strenghten the lower spinchter, but noone seems to care enough to investigate any treatments of the upper one. How can this even be possible in 2010?

The more I read about this condition, the more depressed I get.

I didn't have LPR just a few months ago, but I had been dealing with chronic gastritis and erosions in my stomach for 1 year prior to that. During this time I underwent 4 gastroscopies. After the last two I started feeling this nasty bitter taste in my throat and at first didn't know what to think. The last two gastroscopies were without any sedation and I nearly coughed my guts out. It was a terrible experience. I think I must have pulled some of the muscles resposible for keeping the UES tight, because I didn't have this condition before that.

I've been on omeprazole and ranitadine for months because of the gastritis and I experienced severe side effects. I don't think I will be able to handle taking them for life. cry The PPI's would cause such depression and mood swings that I can't even describe...

Fundoplication seems pointless to me as I know my problem is in the UES.. Not to mention there are people who have had the surgery and didn't get any relief in their throat. It's scary...

I've been doing some reasearch on LPR for the past two weeks and the most significant finding I came accross was that: http://www.freepatentsonline.com/y2010/0021554.html You can read more about it here: http://patentauthority.com/content/patents/US20090148530A1.pdf

Anyone tried it? Does it help?

I just pray some scientist comes up with a solution or surgery technique for the UES as well. Why does noone care about that? sad

Posted 12/30/2010 12:02 AM (GMT 0)
The reason they don't try to fix the UES is because the food that gets up to it got past the weak LES. If the LES is fixed there is no real need to strengthen the UES.
Posted 12/30/2010 1:21 AM (GMT 0)
Then why are there a lot of people whose LES was strenghtened but still experienced symptoms in their larynx?

Apparently the voice box is many more times prone to injury than the esophagus and according to research up to 50 episodes of reflux a day in the esophagus are considered normal. The esophagus can handle them, the throat can't. In LPR in doesn't even seem like the food travels all the way up to the pharynx, isn't that like half a feet away from the LES? To me it seems like the throat reacts even to acidic gas/air that comes out of the esophagus.

Post Edited (sad85) : 12/29/2010 6:25:19 PM (GMT-7)

Posted 12/30/2010 1:58 AM (GMT 0)
Yes, it does seem that. For some reason people who suffer from LPR are more sinsitive to the acid than others. I got to watch my video of my Barium swallow and I was amazed to see the barium bouncing up and down my esophagus. I saw it go up into the back of my throat over into my windpipe. It explained every horrible cough I suffered and why.
Posted 12/30/2010 3:07 AM (GMT 0)
Sad84 -
I agree with Joy.

The patents applications you found are not scientific studies. I don't think anybody's really doing that yet. Just coating the esophagus and trachea isn't going to last and isn't going to cure a weak LES. The only potential cure is surgery.

But you can reduce the acid of the stomach and therefore the damage that is done by acid. PPIs work quite well for an awful lot of people. Non-acid reflux will still happen unless you can find what is triggering it.

A lot of people have specific food triggers, which they can find by keeping a food log with reactions for a couple of months. Some people though, just have a wide open LES and everything comes up. If that's a sudden recent happening there may be a physical cause like a large hiatal hernia. That's where the barium swallow comes in. A scope just doesn't show where the stomach is located - as in maybe it's partly in the chest where it doesn't belong. Been there, had the esperience of gastro doc saying stomach is fine, surgeon said it's partly above the diaphragm. Which explains the pain I have after eating the least little thing.
Posted 12/30/2010 1:27 PM (GMT 0)

sad85 said...
Hi.


I can't even express my anger and how I feel about the medical world neglecting LPR as desease. Different kinds of surgeries and techniques have been developed to help strenghten the lower spinchter, but noone seems to care enough to investigate any treatments of the upper one. How can this even be possible in 2010?



The more I read about this condition, the more depressed I get.



I didn't have LPR just a few months ago, but I had been dealing with chronic gastritis and erosions in my stomach for 1 year prior to that. During this time I underwent 4 gastroscopies. After the last two I started feeling this nasty bitter taste in my throat and at first didn't know what to think. The last two gastroscopies were without any sedation and I nearly coughed my guts out. It was a terrible experience. I think I must have pulled some of the muscles resposible for keeping the UES tight, because I didn't have this condition before that.



I've been on omeprazole and ranitadine for months because of the gastritis and I experienced severe side effects. I don't think I will be able to handle taking them for life. [img]/community/emoticons/cry.gif[/img] The PPI's would cause such depression and mood swings that I can't even describe...



Fundoplication seems pointless to me as I know my problem is in the UES.. Not to mention there are people who have had the surgery and didn't get any relief in their throat. It's scary...



I've been doing some reasearch on LPR for the past two weeks and the most significant finding I came accross was that: http://www.freepatentsonline.com/y2010/0021554.html You can read more about it here: http://patentauthority.com/content/patents/US20090148530A1.pdf



Anyone tried it? Does it help?



I just pray some scientist comes up with a solution or surgery technique for the UES as well. Why does noone care about that? [img]/community/emoticons/sad.gif[/img]

that patent is for peptigon http://www.peptigon.com/ but that site has been under construction for AGES, i emailed them the other day and got this:

Hello Pia

Thanks for your interest in Peptigon. We’re still in the development phase and the product is not available. I will add you to the mailing list so you can be updated once it becomes available.

Thanks

Matt

meh
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