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xubi asked if lpr throats ever heal?

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Posted 10/10/2011 1:40 AM (GMT 0)
a new member xubi asked recently if throats ever heal

i thought this was a great question because as an LPR sufferer ive noticed that my throat gets better and worse but never altogether gets all the way to ok for any length of time

something always seems to re injure my throat and drop me back several squares to the days of lump in throat and pain

then again i refuse to take PPis on a steady basis cause i feel (suspect but cant prove) that i get bad side effects)

what do others say...with or without PPIs how many of us experience continuing lump in the throat and throat pain?

do throats ever heal?
Posted 10/10/2011 1:58 AM (GMT 0)
MT- I read a post you had recently about the side effects you had. I believe they might have been side effects. Not everyone has then exact side effects the same as they post on the bottles or pamphlet. Might try something like Zantac otc and see if you still have the same issues. It has both a basic ant acid and PPI in it. It is supposed to give you fast relief and the long lasting with PPI too.
I not sure it will heal without doing something to stop what is causing the LPR though.

Take care,
Bill devil
Posted 10/10/2011 8:50 PM (GMT 0)
Bill

thanks for the insight...yeah ive been struggling on and off for some time....i get better and then i get worse and sometimes without rhyme nor reason i can see

and like many here i have other medical issues that kind complicate things...oh well.

so im ready to try something new and will give your suggestions a try.

thanks

best wishes to you in your journey..you are one tough hombre! i admire your fortitude

mock turtle

ps

i hope xubi, the new member who prompted my question, is still visiting healingWell so we can provide support!
Posted 10/10/2011 9:50 PM (GMT 0)
MT-
It has been brought up a few times here about Gallbladder issues and GERD. Have you had any gallbladder issues or had it removed? I had mine removed the fall of '05, but I have been suffering with reflux since about '89 or'90. I also was exposed to some very bad things during the first Gulf war. I am not sure if that made my symptoms worse because I always thought my bad habit of chewing tobacco was what was causing my heartburn until it got so bad in '97 I finally went to a GI doc.
I am sure the exposure I got in the war didn't help my problem at all, can't prove it made things worse. I have heard people say that bile reflux can be worse than acid. something about it taking longer to feel the damage it has caused or something like that. Have you heard anything about that?

Thank you very much for your kind words too. I believe we ALL are some tough hombres just by dealing with this horrible disease. there are times I wonder if I was contagious because my 20yo son, my 16yo daughter and my wife all are having issues with reflux now too. My son started when he was 17 and my daughter was just about 16 when hers started. Not long after my daughter started having issues so did my wife. Guess it's a good thing I have had it so long I know what to do for them. Like not wasting time before the get into a GI doctor. So far my wife is the only one who has to take prescription meds, my kids get by with just Zantac and use the store brand since it's cheaper.

Take care,
Bill
Posted 10/11/2011 3:17 AM (GMT 0)
Bill

Two of my three children experience reflux, and like you ive gotten ahead of the curve with them, making sure they respond at a level equal to the degree of dysfunction. Its difficult for my wife and the youngest to understand what we are going thru as they are reflux free, but they try as best they can to be empathetic.

I have not been diagnosed with gall bladder problems and still have that critter attached to where its been for nearly 60 years.

I agree that there is good evidence that bile is a major bad actor for many like me who are dealing with LPR.

Id have it checked but honestly i need a break from medical procedures for a littler while..its been a tough year. Two false alarms for cancer with attendant invasive exploratory procedures...and then a hormone problem, traced to a minor brain adenoma at the back of the pituitary after an mri...lots of fear and lots of prayer.

im trying to get my mental health back

thank you for sharing your personal experience...i appreciate the moral support

best wishes
mike (aka, mock turtle)
Posted 10/12/2011 12:48 AM (GMT 0)
Hi guys,

yeah i think throats can heal... I got scoped my my ENT said my throat looked pretty good (not perfect yet though)


In my opinion/experience the primary cause of LPR throat damage is PEPSIN not acid.

it explains why some people just don't seem to get better on hi dose PPI.

the road to healing LPR is difficult though... basically the following factors below have to be perfectly executed daily for months:

low acid diet
low fat diet
hi dose PPI
life-style changes.
mental aspects.

diet being the hardest part...Its just tough too be on such a restrictive diet for a long period of time. Burning my throat for 2-3 months helped me stay a diet.




Haven't found a cure yet, but at least day to day life is almost normal.

-Jesse
Posted 10/12/2011 2:33 AM (GMT 0)
Jesse-
Thanks for the info. I cab see why the diet would be difficult to follow very long without motivation.

Mike-
Wow, I thought I was having a bad year. the physical issues I had don't hold a candle to the mental anguish of waiting for results that could be cancer. I agree with not wanting anymore tests. I am done for the year for sure. I am supposed to do a SCS trial for nerve pain, but I am done with surgery for this year at least. Hope things improve for you very soon.

Take care,
Bill
Posted 10/12/2011 2:44 AM (GMT 0)
guess i "drew some bad cards" as willie nelson, or bob dylan might say

at some point my lucks gotta change...

with hope
mock turtle
Posted 11/7/2011 10:12 PM (GMT 0)

I have suffered from Gerd/acid reflux for more than ten years.  about 2 years ago I finally gave up coffee, iced cappuccinos, chocolate and acid based foods and I really felt like my throat had healed and was just about back to normal.  This summer, I went CRAZY and had several Tim Horton's Iced Capps and voila, I am back to square one with the coughing all the time, choking on food not going down, difficulty lying down and acid taste in my mouth all the time.  It is worse than it has ever been.  I had an endoscopy done in July just prior to my summer relapse and my doctor did not find anything out of order.  The medications I take for this are Motilium 10mg 5X/day  and Losec 40mg 2X/day. 

I really regret not having had the willpower to resist those delicious iced coffees on the hot days this summer, but I am now seeing the result of not adhering to my caffeine-free regime and am I ever regretting it.  I once again cut out the coffee starting about two months ago (September 2011) and unfortunately am still suffering - I do not remember how long it took to get better the last time, but it is still very severe today, November 7, 2011. 

Post Edited (Ninja Niki) : 11/7/2011 3:16:34 PM (GMT-7)

Posted 11/8/2011 3:38 AM (GMT 0)
niki

welcome to healingwell

sorry you are struggling...me too and we are not alone

if your throat is involved it may be lpr (laryngo pharyngeal reflux)

there is research to suggest that when the top of the throat gets involved things get very sensitive and taike a long time to heal

i have lpr and things havent been back to normal in a long long time

and get this, sometimes whats messing up the throat isnt even stomach acid...it could be what ever else is in the reflux when it gets up high where there is not as much mucous protection

and even more

some studies indicate that once the esophagus gets sensitized then maybe even when nothing is getting up high a person can still have problems

how?

for reasons not completely understood, the body response to hurt and irritation moves cytokines up thru the tissue of the upper esophagus even when acid has not caused damage !!! (cytokines are the bodies damage response system but sometimes it is too much)

i know it sounds unbelievable but some researchers theorize that the bodies response to acid events, do as much or more damage than the acid exposure itself or even exposure to reflux that is acid reduced due to medications

this is some wild and crazy stuff

http://www.news-medical.net/news/20091120/GERD-is-an-immune-mediated-injury-and-not-the-result-of-acid-burn-says-new-study.aspx
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