Freke80
Welcome to HealingWell and I am glad you found our forum. I am sorry to read of your problems and I do understand your concerns.
I am wondering if you have thought of seeing a different physician for a second opinion. When it comes to our health we want the best, but often don’t know where to turn for that advice or are fearful that we’ll rock the boat or feel like we’re cheating on our doctor by getting another opinion.
If you feel you might have an illness, but tests from one doctor don’t reveal anything out of the ordinary, you may want to consult another physician just to put your mind at ease.
“Worry is like a rocking chair: it gives you something to do, but doesn’t get you anywhere.” 
Consider that second opinion.
Kindly,
Kitt