LPR.. DYING please help

so for the past 3 months ive been experiencing the worst throat clearing, and when i clear it i can hear mucus wet and present in my throat. i clear my throat all day, every minute. i went to my university clinic, they could not find out what was wrong with me. i signed up for these boards, and found i must have LPR, my symptoms are so similar to what LPR consists of. my doctor and i tried nasal sprays, allergy meds and prilosec at one point, although he only told me to take one a day, which did nothing. i just started taking 2 zegerid a day in the mornings as insisted in these forums, my main question is how long must i wait till i feel these effects? and should i take 2 in the morning and 1 in the evening or is 60mg of omniprozole too much? i just cant stand this anymore.. i think about it all the time, unless im entirely focused on something else. thank you all

Chrislee, you could also try the Koufman diet, which was developed for LPR. There is a two-week induction phase during which you will see a little improvement if the diet is going to help you. Over a couple of months, my LPR symptoms nearly disappeared. I've got a thread going here, so it would be best to post any questions you have about the diet on that thread. The diet is free (ya gotta eat!) but there is also a book you can buy. All the details are on the thread.  Here's the link:  https://www.healingwell.com/community/default.aspx?f=45&m=2210975

 

Post Edited (sunbeam48) : 1/19/2012 4:54:12 AM (GMT-7)

Funny you mentioned LPR. I had it for 3 years and the pain/mucus/smallowing made me crazy. I kept telling the dr.s my symptoms and they had no clue what was wrong with me. Finally my husband went online and found out my problem. My husband went to the Dr. with me and mentioned LPRand the Doctor scratched their head and said yes that could be a possibility. At one time this same doctor gave me a referral for a psychiatrist when I told them I could no longer work with all my pain and symptoms. LOL. I kept looking for a Doctor who could help me and 3 more years went buy. I found an ENT that wrote journals about LPR on the internet and I drove 10 hours to see him. He immediately repeated all my test including the 24hour PH test and compared the results with previous ones. He then told me my reflux was so much worse and he referred me to the surgeon that created the PH test. He was fantastic (Dr. Jeff Gillian, Lorton Virgina) He talked to me like my friend and sympathized with my problems and lack of Doctors who did not understand LPR. I was scheduled for TIF 3 weeks later. I am 4 days post TIF and feel pretty good. I will let you know how everything goes but good luck.

Hi

just wanted to mention you should consider changing omperazole if 40mg after 7-14 days is not helping. You could try nexium or other -zole ppi family members. But if you symptoms are from LRP then ppi should make some kind of difference. I would not keep upping you dose of ppi, its not healthy specially when you need to come off them the rebound acid can be quite hellish. I understand you are serious discomfort but stressing will just make your symptoms worse by producing more stomach acid. You need to change your diet and try different ppi or H2 blockers.

good luck and hope you get better soon.

T

Mikro - this thread is really old. You'll get lots more attention if you start your own. Hit the "post new topic" button at the top and bottom left on the page.

Really, there are loads of successes. My surgeons have a very high 90s% satisfaction rate. I had the Toupet and am very pleased.

Let the doctors figure out what you get based on what you NEED, not a passing fad or what seems easy. I had a really awful LES and a huge paraesophageal hiatal hernia.

Welcome to the forum mb0916. Please start your own thread (post new topic). This one you tagged onto is very old.

We'd love to hear your story!

I have been following these forums searching for an answer for over a year now, but until now have had nothing to add. Now I DO, and I am hoping that my journey will help others. YES, i have recovered from this!

I started having all of these symptoms about 15 months ago. Out of the blue. Started out very mild, then worsened and intensified. Clearing throat, sore throat, HUGE lump in throat (felt like a golf ball), feeling like I was being strangled, short of breath occasionally, like I couldn't get air, scratchy throat, dry tongue and throat like I was gagging, feeling weird sensations on my tongue and in my throat. Never any heartburn, but would regurgitate food into my throat at night. I had a neck ultrasound, neck CT, and throat scope. I was even in the ER with feeling like my airway was cut off. I tried EVERYTHING - Cut out dairy, researched food allergies, slept almost sitting up, not eating past 6 p.m., no alcohol, no chocolate, no onions, tried alkaline water and baking soda water, all the normal stuff. It was so out of the blue because I never had heartburn or reflux in my life. I did NOT take PPI's because they destroyed my body years ago when my doctor mistakenly thought I had an ulcer. I tried the Fast Tract diet and got maybe 50% better but I had to eat less than 5 FP per day, or the symptoms would come raging back. I went to my doctor and was diagnosed with SIBO and took 2 months of herbal antibiotics for that, along with the Fast Tract diet, which again helped some, but the symptoms were still there. Went to ENT and got a laryngoscopy and he said it looked like my throat was lit up with a torch, obviously LPR, most likely my sphincters were not working, but no one knew why. Was scheduled for an endoscopy.

Finally, I read an article, don't know where I found it, but I think on one of these forums, about a woman who increased her iodine and her LPR went away. I thought I have tried everything else, this is a long shot, but I knew my iodine was very low (32, normal is about 50-110 or in that range), and it had affected my thyroid, caused fibrocystic breasts, and was causing endometriosis. Since iodine is what keeps all the muscular functions running as well, I theorized that if it was low, possibly it was making my LES or UES not work as well, and since my LPR symptoms started around the same time as all my other symptoms, I thought it would make sense to try it. I started taking about 600 mcg with each meal, since I didn't want to overload or shock my system. I also added in selenium, which helps your body absorb and utilize the iodine.

My symptoms started to improve on the first day, and they have steadily improved ever since. I went from agony 2 weeks ago, to almost zero symptoms today. PLEASE, if you are suffering, get your iodine checked. I cannot believe the difference this has made for me.

Some other things I have done, which I believe have contributed to helping as well, were:
1. Identifying and treating SIBO (small intestinal bacterial overgrowth)
2. Taking digestive enzymes - good ones with each meal.
3. Taking hydrochloric acid with pepsin (yes sounds counterproductive but I wasn't digesting my food correctly and needed it, if your thyroid or iodine is low you aren't making enough acid to digest your food)
4. Taking spray magnesium - I spray it on my abdomen every morning
5. Optimizing vitamin D levels
6. Taking Atrantil for constipation (being constipated slows everything down)

I hope this helps someone! I am going to post this on every forum I can find.