Little depressed about my LPR and lack of support.

Hi,

I woke up a little depressed. I never tell my gf about my condition anymore because she gets mad/upset. We went through a really bad patch last year when I went all out and overloaded her with my condition.
Things have not been the same :(

My family does not understand too.

I feel alone, I can't tell anyone about my condition. Just here.

My morning symptoms are bitter taste in the mornings.
Burping constantly the whole day, mostly dry. I recently started getting heartburn though. I also get throat clearing, and bloating. I think I still have h pylori. I woke up with nausea.

I cant and won't go on ppis I tred all doses and drugs. I can only rely on natural things and I don't have insurance.

I am taking oregano oil encapsulated maybe this made my symptoms worst?

I also take DGL and probiotics.

I am underweight an eat really light.

I just need some support and advice. I hate it, I feel I been cursed. I almost feel I will never get better. And I can't count on anyone.

Post Edited (Nickles) : 3/12/2012 1:21:42 AM (GMT-6)

Nickles,

Sounds like you and I share some common symptoms (bad taste in morning, throat clearing, and non-stop belching). I understand what you're saying because I feel as though no non lpr-sufferer could possibly understand how this condition makes us feel. This used to make me really angry but then I realized that I can't expect anyone to understand, but also feel as I have been cursed with this condition. A lot of people truly don't understand reflux, and when someone hears about it they think "oh big deal, it's not that serious." However, what these people don't understand are all the symptoms that come with reflux (i.e. globus, cough, etc.) and how uncomfortable and hopeless this makes us feel. I'm lucky to have caring and supportive friends and family, however, no matter how hard they try, they will never know what it feels like to be me living with this illness.

Jesse is right, LPR is a tough condition. One thing that helps me when I start to get really down about my LPR is that although LPR is pretty rough, there are many worse conditions out there and realize everyone has something to deal with that feels awful to them.

May I ask why you won't take a ppi? Even though these aren't a miracle, they have definitely helped me manage my recent flare-up.

Hi faith,


Thank you, for your words.
Te mornings are often the worst for me and it seems like going to be is bad these last 2 wks.

I want to try the koufman diet, but I am thin. I will probably lose more weight.

PPi's never had an effect on any of my symptoms at all. And I feel I tried all of them. I have all my medical records and reviewed all the meds they gave me.


The morning feeling is the one I wish I could get rid of and burping.

My diet is good.

Nickels,

I am very thin too and was also worried about the weight loss that accompanies the diet. I admit that I did lose five pounds during induction, but this was quickly gained back during maintanence.

How long did you use the PPI's for?

Hey Nickles,

I'm in school too and when my flare-up started over the summer, I was miserable and had a difficult time concentrating on my work but somehow made it through. I understand why you wouldn't want to take PPI's, just wanted to ask because they have been somewhat helpful to me.

Good luck at your Dr.'s appointment, please let us know what he/she says.

Sunbeam,
Lol, thanks for your sense of humor. I admit, I do have to do things a certain way to make sure they work. (somewhat of a perfectionists).

I bought the book, but I have not read it. Well I skimmed through it, but since I am on a allergy free diet, I need to rethink my eating process again.

I was eating everything before my LPR turned worse. I went on a allergy free diet after per my Naturopath I saw 2 times. But I have not seen her since she is expensive.

My allergy free diet consisted of taking out gluten, dairy and soy. (I also did corn too for a while). The purpose was to get my body ready for h pylori eradication. I have been reading many journals and research on h pylori and this was the way to prep. So far it has yet to help completely.

I stopped taking my herbal supplement oregano oil in capsule, so I am going to jot down and see if I feel better or worse in the mornings.

Anyways, I think I will start on the Koufman in 1 week. I get a spring break. I have finals coming up, so looking and buying food for me is a hassle. I want to do it right.


Thanks once again, I am sure I will feel bad in the morning again but you guys and ladies made my mood better. It makes me happy to get so many responses and concerns. Thanks everyone.

I have GERD not LPR but I can sympathize with how you feel. A lot of my friends really do not get it. You should look into some natural remedies such as aloe vera juice, manuka honey, chamamille tea (de caff), slippery elm, and digestive enzymes. I am still doing some research on some others I have heard good reviews for. Consider the Alkaline Diet as well. It is hard to stick to but it works (alkaline foods are veggies minus tomatoes, fruits that are not acidic, poultry, lean meat, lots of water, oats, whole grains etc. You can look it uip on the internet) . I only eat organic food with no preservatives if I can help it (preservitives contain acid) Do not combine meats and startches, only eat starches with veggies and lean meats with veggfies. Eat fruit before the meal. And drink a ton of water. I have been doing this for a month and it has helped.