Just want to cry

shelleyd

New Member

Joined : Jan 2013

Posts : 6

Posted 2/7/2013 12:59 AM (GMT 0)

I feel like crying and just need to talk to someone.

I've been back to my GP. Now have a referral to a GI specialist, but can't see him till 25th Feb.

I was on 40mg losec for chemical gastritis - it certainly healed my throat. Tried to come off - got down to 20mg, rebound for about a week, but then just fine. Unfortunately I got an infection, and had to have antibiotics, so I got a second dose of chemical gastritis (which was my initial reason for starting Losec 6 months ago!).

Back up to 40mg. Healed my burnt throat again, but after a month my stomach was aching again. Figured time to cut down. Went down to 30mg. HORRID rebound for 10 days...nausea and very acidy. Supplemented with gaviscon, but then my throat issues returned. Took 10 days before I had any appetite back again.

Off to GP. He recommended back up to 40mg to try and heal my throat again. Tried it for 5 days...had the worst bloating and stomachaches. Felt much worse than on the 30mg. Throat still irritated. Couldn't sleep. Just awful.

Back to GP two days ago. He has got me back on 30mg, adding in domperidone before my main meal. Supplementing with antacids. Referred me to GI specialist - possibly for another endoscopy, but certainly further testing. It's like 40mg is too much for my stomach, but at 30mg better for the stomachache, but worse for the throat. But now I'm back in rebound land again. Burnt throat. Acidy stomach. Nausea. Can't sleep for more than an hour or so at a time. Don't want to eat...but making myself eat whatever I can. Have lost weight already.

To top it off I'm now hyperventilating - which I have done since a child when I get nauseous and stressed. I managed to get an appt with a breathing physio for tomorrow - she helped me once in the past - so hopefully she can help me get through to my appt with the GI.

I'm just over it. Trying to cope with this, and look after a 2 and 5 year old is just too much to cope with right now.

If anyone has any suggestions to help me get through this - I would really appreciate it!

dencha

Veteran Member

Joined : Feb 2009

Posts : 7263

Posted 2/7/2013 1:41 AM (GMT 0)

Hi Shelly,

Wow. You've been through a lot. I can identify with the gastritis and esophagus irritation with antibiotics. I can't tolerate them either, and have a very reactive stomach. It's frustrating, I know.

I'm glad to hear you're finally going to see a GI specialist. Hopefully your PCP selected one who will listen to you respectfully and speak to your concerns. If not, fire him and find another! You deserve respect and compassion.

I can't give you any information about your PPI problems. I can recommend one thing I find very helpful with my reactive stomach. I also used to get esophagitis whenever I got gastritis before I had my Nissen. I don't know if you're already using it, or have ever tried, but Carafate Suspension is wonderful for coating your stomach and esophagus. It was developed to help heal ulcers.

The beauty of it is that it coats and the coating lasts up to 6 hours (unlike Maalox, etc). It offers me great relief, and I always have it on hand. I guess some GI docs aren't sold on it, but it's safe and worth a try. You can say you know of someone who found it very helpful. My GI doc liked it and had no problem prescribing it. I've read many posts by others here who have found Carafate suspension very helpful.

I hope you get feeling better very soon! Good luck with your appointment.

Best wishes,

Denise

shrtcak81

Regular Member

Joined : Jan 2013

Posts : 165

Posted 2/7/2013 6:26 AM (GMT 0)

Hi Shelly,
I can relate! Have had a burning throat almost constantly for the past 5 years in addition to chronic gastritis that comes and goes, but it's gotten a lot worse, even on a PPI. I've taken them all and for 8 years, they worked great. Now it seems that I built up a tolerance to them. I'm going tomorrow to UCLA and get more testing done and hopefully be referred to surgery. I'm done feeling this way! The qualify of my life has suffered big time. I was losing weight too and have anxiety issues. I take an antidepressant and xanax as needed and that really helps. Now I eat a lot and paying the price, but if anything gives me acid reflux, then I don't care what I eat. Keep venting on here, that is what we are all here for, and to support one another. We just have to believe that things will get better! I hope you get relief soon:)

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