Eosinophilic esophagitis

I have been having troubles for year now with vomiting and weight loss. Finally, MD did endoscopy. I saw her today and she said I had the above.

I am to go on drug, Prednisone. Anyone hear of this disease?

Hi Lilacs --

EoE, by itself, does not cause vomiting and weight loss.  Its most obvious signs are remarkably similar to heartburn, although if you have both, the symptoms are different.

I encourage you to take some steps on your own, and there are some things you can do while you're waiting for your next appointment.  Don't be afraid to see another doctor if you don't feel your current one is helping you.  Your current state of health is not something to be allowed to continue without further intervention...beyond Prednisone.

You may get something from the two threads linked below.

-Bruce

https://www.healingwell.com/community/default.aspx?f=45&m=2665624

https://www.healingwell.com/community/default.aspx?f=45&m=2622786

I was going to link the post I created on EE a while ago, but it looks like Bruce already did.

I have not heard of Prednisone, but every single specialist has a very different treatment method for EE. I was put on Flovent and was put on a heavily modified diet, as you can see on my extended post.

You can read the full post, but to put it in a short statement, after a couple years of taking Flovent, restricting my diet, and repeating endoscopies, my EE is under control and basically cured, as long as I continue to avoid all of my allergies, which is a lot of foods. My EE is under control, but I still feel a lot of pain from GERD and LPR, which all the doctors I have seen have been unable to treat. I asked my EE specialist if all patients with EE feel no difference when they get their EE under control, and she told me that each patient is different and that there basically is not enough information known about it yet.

Thats fine, questions are great.

When it comes to allergies, I've been avoiding dairy products for years because I cannot digest it and it makes me nauseous. Other than that, I ultimately do not have real allergies that people refer to. Before my allergy test, I basically had all the foods that came up positive on a daily basis, including nuts, with no visible reactions of any sort. Evidently the cells in my throat have allergic reactions to all of the foods that came up on the allergy test, but only those cells in my throat. I can digest all those other foods normally, and I have none of those 'reactions' that people normally talk about.

I haven't ultimately noticed an instantaneous relationship between stress and symptoms, but I'm basically stressed all the time. So no, I haven't noticed a relationship, but I'm always stressed and my symptoms are always bad. :/

Do I get pain from physical exercise? Let me answer that question with an entire post. I literally wrote up an entire post because I get an extraordinary amount of pain and other symptoms from exercise, to the point that I am completely inactive in my daily life. Heres the post. For some reason, I got zero replies, but thats probably just because not many patients or doctors have or acknowledge it.
https://www.healingwell.com/community/default.aspx?f=45&m=2622440

Technically, my EE is cured and my last two endoscopies both showed that I have no eosinophils in my esophagus. Unfortunately, from the minute I was told that my EE was cured, I still had all of the pains and symptoms that I had been trying to fix. So for the past two years since that last endoscopy, I have had no EE, but still a giant problem with GERD. I haven't ever thought about it being stress related, but I have concluded that restricting my diet to avoid creating/provoking eosinophils gets rid of my EE but does not help the rest of my GERD symptoms, which continue to be a major problem for me. So I still get constant pain from reflux and just about always have acid in my mouth, melting my teeth, causing me to choke while I exercise/climb stairs, etc. People tend to not comment on my long posts because they cant relate to me or they simply have no suggestions for me. Thats probably a lot more text than you wanted, but there ya go.

Andy, I feel much the same as you. At this point I don't want to go on diet for allergies. My problem is intermittent. I go for weeks without vomiting and then I will vomit in morning 5 days a week. How would I tell is a diet is helping me and not just a coincidence. i imagine the same is true with drugs. How can I tell if a drug is helping. I figure I would have to go six months before I could tell.

I do feel some tightness in throat.

BobRippey:

Welcome to the Healing Well Forums! You are responding to a thread that is almost 6 years old, and most of the posters haven't been active in a while. Please start your own thread, and hopefully you will get some responses.

Sharon