Daily Support and the Saga of Acid rebounders or GERDers, part 2.

EJ,

I  started this post 3 times now

 and keep losing it, grrrrrrrrrrr

Thank you for thinking of me and all your suggestions.  I am supposed to see the doc again next week  and am dreading it because I know I weigh less, unless I can jam on 4-5 lbs before next Tuesday, ha ha.   I did get some cinnamon rolls  at the store that are delicious, so may have another one today???

The DGL seems to be helping so far so good.  I just had the lunchtime one, so we will see.  You know it is no wonder we all start to think we have some horrible disorder, considering how long this stuff goes on???........I try not to think about it.

Sometimes when I go to the doctor, I feel worse afterwards than before.

Like reassure me you idiot!!!!   lol.

Like I said to Pink, the anxiety with all of this just makes it all worse!  I am sure my old anxiety pills from 6 years ago are expired, or I would try one for a few days and see how I feel.   What is the old saying? "my stomach is in knots".......

I know about the daughter thing, I miss mine so much since I have moved.

I hardly ever see her and when I do, when she leaves, I have "withdrawal".

We are very close and I can really get down mentally not seeing her. I know we will see each for Mom's day and my BD next month, so I look forward to that.

 

ok, I see them now.......geez

Pink,

Ohhhhh, you are on the dark side.....come over to the light!

I wish I was there to give you a big hug and we could talk.  Pink, I had terrible anxiety/panic for  years.  It started I think during menopause?  I had a full plate, working full time, 2 teenagers, and a husband who was in the dog house a lot ;)

I didn't think I could survive without my little pills.  I worried about getting addicted to them and would cut them up in tiny pieces.  I never did get addicted, but my doctor used to laugh at me when he saw them .in my purse . 

They got me through several years, I lost my Mom in 2005 after a long illness, and my husband in 2007.  I worked the entire time and was exhausted mentally and physically for sure.  By the grace of God, by 2009 I didn't have to take the little pills anymore and felt normal for the first time in years.  I have been so lucky to have fairly good health for most of my life.  My point here is anxiety can do so many things to a person, physically also.  Please be sure to talk to your doctor about your anxiety.  I really feel if they addressed it, you would feel so much better.  In my case, I think a lot of my problem is being a little depressed nd anxious since we relocated over a year ago.  Not finding work hasen't helped either.  This is what I used to take:  .050 mg Xanax chopped into 4 pieces or more.  lol.  One little piece would do wonders

Hugs ;).

 

Pink,

YOU ARE NOT PSYCO!.......if you are close to one of your parents, could you talk

about this stress you feel?   I understand why would feel alone in this.

How about a friend that possibly lives on their own?  maybe you could share a place, that would remove a lot of stressors.

Now, don't let my suggestions stress you out more ok?

If you dont have a close friend to bounce things off of, take one of your friends into your confidence and have someone to share with.  Real friends don't judge.

I had one close friend when I was going through my crisis and after I talked to her for several hours, I would feel the weight of the world was gone.

And of course you have all of us here to support you! )  

EJ,

What a good and informative post.  ;)

I totally agree with you and am so grateful I never started the PPI the doctor prescribed for me.  Once I hit the internet and researched them, I was convinced I would not take them.

I have thought many times the past 3 months if I had taken them, would I be better by now, not losing weight, etc?   I doubt it. Maybe I would have gotten better, but then I could suffer the after effects for months.........I don't think so!

Bring on the DGL.....ha ha. 

You know even if I have a ulcer, they would still treat it with a PPI....dang!

I think you are right about the class action suit also, just like Lipotor, the doctors were handing out like candy (including my husband)......look at the side effects and the warnings on this stuff!......and the tv ads for all the drugs that can actually kill you!   ridiculous!

 

Hi Viv,

I agree about the tablets verses granules in a capsule.  I posted yesterday about where I get my vitamins , mag/calcium.  Even Dr Oz said today that 2/3 of all americans are magnesium deficient, wow!......just a perk up from Dr.Oz, he also said a cheap way to take 5 years off your face is to get Borage oil in capsules, and break 1 capsule per day and use as moisturizer on your face!.......believe me I am trying it!   5 years is a bunch! 

I hated menopause too.  The night sweats were horrible, anxiety, mood swings, I am glad it is over.

I am having a little indigestion right now, not time for DGL yet, can you take a Tum in between??

Chris,

It will  be interesting to see what she says.  You will have to fill us in afterwards.

As you can see by my earlier posts, I have been the anxiety route and it is devastating to say the least.  Vicious circle causing so many problems.

I hope that Roah's doctor will help her trough this tough time. 

I looked up DGL again and most said you can take 2 wafers before meals.

The bottle says 1 and not to take more than 3 during the day.  confusing.

anyway I am taking one  before dinner, then maybe additional one before bedtime.

The mg's on the articles I read, were the same as mine., so I guess it won't hurt?

I am still so happy that your scan came out good.  ;)

I had 2 of the special cookies this afternoon,they are so good  ;)

easy way to get in an additional 240 calories.

I have been craving Rice a Roni, the SF treat lately, think I will make some.

 

So glad I found this thread. I am trying to wean off the ppi's. It's nice to find others who have gone though or going through the same thing. I managed to get down to around 25 mg a day in 2 doses, but when I cut one of the doses out (evening) I started to have a lot more trouble. This morning I took a 300 mg zantac with my 10-12 mg ppi to see if that helps. I drink a lot of Body Rescue Tea which measure a 9 on my test strip, making it alkaline. I still usually need Tums to settle the HB when I get it though. Right now I know if I ate anything I would get HB.

I am beginning to wonder if I need to up my ppi dose again, but take it as a single dose and slowly taper off from there. Did I go too quickly? I was going pretty slowly until I cut out that evening dose. Is it possible to wean off so slowly there would be no ill effects?

I did find an unopened DGL bottle in my cabinet. I used to take them before I was diagnosed with gastroparesis. Now I take Domperidone. It seems like there should not be any interaction between the 2, but not sure.

Let me know what you think of my plan. Stay the course, make changes......? Thanks!

Hi everyone,

sorry I disappeared yesterday, I was kind of depressed and needed to be alone, I went out for walk with my mom which kinda helped, nervous about my appointment today but i know you guys are here for me and that means a lot and thank you for all the support.

I shall let you know how it goes,

seriously love you guys,

Roah

Hello Sewfun,
How long were you on the PPIs? How do you reduce the dosage? Do you cut the pills? I am new in to this as well but I am completely off PPIs. I only take Zantac 150mg at night. During the day I take DGL 20 minutes before each meal.

Roah: thinking of you. Please update us hope you feel better after the appointment.

Will: once we're done with menopause do you think our GERD will be gone?

Morning Tummy and Chris: hope your day is better today. We are soaking with rain here for two straight days and I am so sick of winter.

How do you do, sewfun

First, yes you may take both of them.
But no, not together.
They are both blocking acid and one thing will prevent the other work properly. So take eg. ppi in the morning and zantac in the evening.(two of my docs said so. It probably is true ;) )

Weaning off ppi is a great idea. Please do read the link i posted up there. The one right above and also the one way up there.
Today i am going to search for the data for the sudden increase of the gerd patients and ppi's invention(?) to see if these thing are related. ' cause i know what is gastritis and i know people who suffer gastritis but look around. There are suspiciously many people who are shffering gerd when it was just plain old gastritis before.

The paper i found(the up above link)clearly states that
PPI CAUSES THE DISEASE(gerd) IT IS GIVEN TO CURE.

I am going to start campaign on twitter, too. They respond to tweet faster than anything. We've got to stop this.

Take heart and wean it off. DO NOT UP THE DOSE. LONGER YOU TAKE IT HARDER AND LONGER IT BECOMES TO STOP THE BAD EFFECT.
You will suffer. Unfortunately there is no easy way once you have started. It might takes up to 8 weeks AFTER you completely wean it off that all the overactive acid spigots stop it's crazy thing.
In the mean time , you may take zantac up to 300mg at night.

Doubt everything. That's a start. Ask your doctor about zantac and ppi and believe my words only when you have a evidence to believe. What you suspect and guess won't cure you. You should know the fact.

Gail,
about dgl
On the same line, i have this distrustful feeling when something claims it's a panacea... I wish they say this is good for only this not that. That would be better. Anyway, it doesn't cause any extra discomofrt so i still take it only before lunch and dinner.

Viv,
Can i just go to sleep today and wake up 10 years later? ;)

Chris,
Now you are a cheerleader! How nice! Throw me in the air! Haha girls, let's make a pyramid!

I had no episode yesterday but i still don't feel i can stop zantac. I have this a sort of feelers always going on like 'may i stop? May i stop now?' You know. lol
Sadly answer today came back, still 'no' :(
Ok, one day at a time. It's been less than a week since i restarted my zantac regimen. Maybe next week. Take A Deep breath.

And at last but not the least.
Roah,
Good luck with you doctor visit today. I would hold your hands there. My hands are always warm :) do you feel it?
You will be back with good news. Just be patient with the doctor. They are often disappointing about really listening. You know that.

Brand new day! Hip hip hoorah!

Post Edited (Willovercome) : 4/12/2013 12:03:51 PM (GMT-6)

VivianL said...
Hello Sewfun,
How long were you on the PPIs? How do you reduce the dosage? Do you cut the pills? I am new in to this as well but I am completely off PPIs. I only take Zantac 150mg at night. During the day I take DGL 20 minutes before each meal.

I have been on ppi's almost 2 years. This past winter my EGD showed that my gastritis was completely healed so I decided to go ahead and start lowering the dose. I opened up a capsule and counted the little balls....just over 200. So at first I removed 20 balls lowering the dose 10%, then 40 balls, etc. I would stay on each lowered dose for a week or two. When I stopped my evening dose that was a more abrupt change. I am now in a constant state of some form of discomfort. Not debilitating, but it is making me cranky. I did try the zantac at night when I stopped that evening dose this past weekend, not sure it helped at all. I will give the DGL a try and see if it helps.

Willovercome said...
First, yes you may take both of them.
But no, not together.
They are both blocking acid and one thing will prevent the other work properly. So take eg. ppi in the morning and zantac in the evening.(two of my docs said so. It probably is true ;) )

I will try the Zantac at night again. My doc had prescribed it for me before, but I just made the switch from ppi to zantac and of course that didn't work.

Willovercome said...
Weaning off ppi is a great idea. Please do read the link i posted up there. The one right above and also the one way up there.
Today i am going to search for the data for the sudden increase of the gerd patients and ppi's invention(?) to see if these thing are related. ' cause i know what is gastritis and i know people who suffer gastritis but look around. There are suspiciously many people who are shffering gerd when it was just plain old gastritis before.

Thanks for the links. I had read those studies before, but it was a good reminder. I actually did have GERD brought on most likely from the gastroparesis. I also have the bile backwash at night sometimes. My esophagus no longer completely closes anymore.

Willovercome said...
Take heart and wean it off. DO NOT UP THE DOSE. LONGER YOU TAKE IT HARDER AND LONGER IT BECOMES TO STOP THE BAD EFFECT.
You will suffer. Unfortunately there is no easy way once you have started. It might takes up to 8 weeks

I had no idea it could take that long. I thought it would only take a week or two. I see my GI in two weeks; he may not be so thrilled about this. Fortunately I already have the Zantac prescription from before.

Thanks for listening and all your support. I just took some Tums, then had to take some Gaviscon. Right now I feel pretty good. I'm going to get some broth cooked up for when I don't feel like eating. The gastroparesis as you can imagine does not help at all.

ETA: FTR, I was put on Zantac at first, it was not effective. Maybe I need one of the others drugs from this category.

Post Edited (sewfun) : 4/12/2013 2:10:43 PM (GMT-6)