GERD Surgery options for daughter who has Down Syndrome

Ashley'sMama

New Member

Joined : May 2013

Posts : 1

Posted 5/9/2013 1:53 PM (GMT 0)

My daughter who is 22 years old has had chronic GERD/ reflux since birth. She also has Down Syndrome. No longer responding to PPI's. Must have surgery. I have looked at Nissen fundo, LINX and EsophyX. Which would you recommend and why? Is anyone aware of complications specifically for an adult with Down Syndrome? Thanks in advance!

DOGGBONES

Veteran Member

Joined : Apr 2012

Posts : 707

Posted 5/9/2013 4:36 PM (GMT 0)

Have you tried diet changes? I'm not a fan of surgery, however if I had to have it, I think I would lean towards nissen. It is the "gold standard" for reflux and has the longest history and highest success rate. Which ever you go with, do your homework on the surgeon to make they have done hundreds of them successfully.

opnwhl4

Veteran Member

Joined : Dec 2008

Posts : 4961

Posted 5/9/2013 7:35 PM (GMT 0)

Ashley'sMama

Welcome to Healing Well.

Sorry I don't have any specific info about any differences for a person with Down syndrome, but I can comment on the nissen in general.
I no longer responded to meds and the nissen was the best thing I ever did for my GERD. Please don't think that because I have had 3 of them that it is flawed. My case is that 1 in a million. I would have it redone tomorrow if mine was to be damaged today as it has given me back a normal life as far as dealing with GERD goes. As DOGG said, the nissen is the gold standard surgery for this and though very promising the others are still relatively new compared to it. What this means is that there are less surgeons who have done 100s to 1000s of these surgeries. This is important as the more a surgeon does the better they are at it.
Please feel free to ask any questions you have we love to help. Also if you wish my email is on my profile and I am happy to respond to any emails.

Take care,
Bill

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