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TheSixness Nissen

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GERD & Acid Reflux
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Posted 10/29/2013 6:43 PM (GMT 0)
Flacracker,

I don't know how large my HH was, but my Dr did say it was the largest he has ever seen... Coughing really isn't one of my issues. Some days I'll cough but for the most part I do not.

Lajenner,

I'm going to go see my regular Doc here soon. I think there maybe something else going onto, whether it's nerve damage or possibly bile reflux... May look into getting my gallbladder looked at or start up at the chiropractor. I have pains in the back of my neck that radiate to the front. |

Right after I had the TIF done, I could not breathe from my diaphragm. This continued...until I had my nissen. For some reason I can breathe with my diaphragm now. As of right now I'm taking 400-600 mg of gabapentin, 2 40mg of protonix, zantacs at bedtime, steroid nasal sprays and qvar for asthma.
Posted 10/29/2013 7:15 PM (GMT 0)
Six,

You will feel better. It is only 3 weeks. I had the same symptoms. Head, ears, neck, even jaw. Pain between shoulder blades. Chest pain, belly pain. I still have residual gas between my shoulder blades.

I just had a company luncheon and ate normally. Hang in there!

FC
Posted 10/29/2013 8:22 PM (GMT 0)
Interesting, my jaw does hurt. I probably have TMJ, I tighten my lips to breathe. This makes my jaw hurt. Thank you! Recovery would be so much easier with a little beer lol
Posted 10/31/2013 2:18 PM (GMT 0)
Im starting to do worse.... the one improvement i seen after surgery is totally gone. I no longer sleep well.... my breathing is so shallow i wake up like 20 times a night and i awake with really bad headaces... than my breathing continues to be horrible throughout the day.... guess i cant sleep anymore. Cant sleep laying down. On my side or on a wedge. Sitting up my breathing is bad too.... just takes to much effort to breathe in.
Posted 10/31/2013 6:18 PM (GMT 0)
Six,

Are you regular? This will cause pain and pressure and breathing issues. Call your doctor's office and let them know. Could be the swelling too? It does come in waves. Good days and bad days.

FC
Posted 10/31/2013 8:34 PM (GMT 0)
I have notice I can get stuff down a little bit...wrap is loosening finally! I'm every 5-7 days lol. I'm stuffed up. I'll see how I'll sleep after tonight cause I just went today,.
Posted 11/1/2013 8:15 AM (GMT 0)
Ok...that's your pain. Every 5-7 days. There are products on the market that will help that problem. It is also offered in liquid form. Walking helps a lot too. Hope you had a good night's sleep.

FC
Posted 11/1/2013 8:19 PM (GMT 0)
I've been using triphala. Works sometimes. It seems when I eat dairy... I get quick results.
Posted 11/2/2013 5:29 PM (GMT 0)
It's about 3 and a half weeks out. Everything is back to the way it was before the nissen...

My night time breathing and throat pain can change within seconds... If I sleep on my back or right side I instantly get throat closure and pain in my throat. If I flip to my left side, my throat feels better and my breathing is better... However I have to be on an incline... not sleeping flat. This is pretty much how my day is... If I'm to straight up my breathing is bad and my throat hurts. I'm literally breathing and my throat, nose, ears, lungs all hurt. I'm aspirating something and it's irritating everything. PPI's kinda help, but not really. The only reason I'm on them is because it's so hard to get off. Thanks doctors. It's believed that I have neuropathic pain. Alright, why do my lungs, ears and nose hurt than?

When I take my zantacs or nortriptyline, I feel reflux after 10 mins. On my ph exams that I've done it shows that I reflux once or twice... sometimes none at night... Even on the dual probes done by Dr Koufman it showed no reflux... but somehow I still had throat ph of 4.6 at times. With no reflux... I've done the restech Ph exam and this showed that I had a ph of 4.6 at time also, but it said that I refluxed 126 times and had a ryan score of like 36. I don't get it. The restech probe does have a lot of false positives associated with it but why do I still have such a low ph at night with no relfux? Why does my breathing hurt me! Why does it seem like my PPI's hurt me!

These are all questions doctors don't know. Ever since I had my TIF/Hernia repair in 2012, I've been horrible. It was like a flip of the switch after the surgery... PPi's didn't work and actually made my throat sting more, taking tums would take my breath away... Couldn't sleep laying flat, loads of breathing issues and NO improvements what so ever... it has been a steady decline in health ever since than. Doing everything right, eating healthy, head elevated, left side, taking my meds, exercising. This is frustrating...

Wish I had some answers as to why I'm miserable.
Posted 11/2/2013 7:55 PM (GMT 0)
I am almost 12 weeks out and still experiencing some residual pain. I did not have the probe as I could not tolerate being off PPIs so I am not familiar with the data you are giving. You are having swelling. It will come and go. As for sleeping, I am able to sleep most times very good. One night this week I could not and tossed and turned.

I did notice before I had this surgery, my HH would act up in cold weather. I thought I had seasonal reflux and the GI doctor thought I was joking. I do notice that the stitches are aggravating me since it has gotten cold. Not sure if it is the muscles tensing up because of the weather.

Just some ideas. You will feel better.

FC
Posted 11/2/2013 8:11 PM (GMT 0)
I haven't noticed my stitches too much. I have gotten really cold before and start to shake... this caused everything to hurt. I wouldn't be surprised if seasonal reflux was real. I usually have so many little things happen to me when the seasons change. I'll get headaches and pressure throughout the body until I adjust to the changes.

Thank you. I'm doing my best to recover! Watching football
Posted 11/2/2013 8:55 PM (GMT 0)

My only concern is the continual hiccups that I have had since around week 4. Every day it is increasing. Today 10 times. I am guessing it is from the diaphragm and I am eating too quickly and too much. Are you having the hiccups? 

Enjoy the football games.

FC  

Posted 11/2/2013 9:00 PM (GMT 0)
Oh guys, fyi, my surgeon gave me Chlorpromazine for hiccups, works great. Also useful for schizophrenia!
Posted 11/3/2013 7:55 PM (GMT 0)
StephanieJean,

Thanks for the interesting information. One pill for hiccups and schizophrenia, who knew!

FC
Posted 11/11/2013 4:30 AM (GMT 0)
Still having a rough time at about 5 weeks out. My symptoms are worse than before surgery so far. This leads me to believe something else is going on. Like if stuff is getting stuck at my wrap site. I started up on probiotics a couple days ago. I can smell them when I breathe out.

Also, dairy ruins my insides and I believe grains give me headaches. Been eating total and after about an hour I get a headache.

Post Edited (TheSiXness) : 11/10/2013 9:54:11 PM (GMT-7)

Posted 11/11/2013 3:29 PM (GMT 0)
Hey - Have you ever tried a complete elimination diet? It sounds like this would really be beneficial for you. A Registered Dietician/Nutritionist could work with you on it.

Dairy and Gluten are some of the biggest triggers for people. Following the NF, dairy is the easiest liquid type diet to turn to. I can see why it would get worse.

I wish you were feeling better.
Posted 11/15/2013 8:02 PM (GMT 0)
I have tried elimination diets in that past that included dairy, wheat, gluten. Didn't really feel much change.

I've been getting worse at night. I'm not sleeping well at all... I actually dredd going to sleep because I know It will be hard. My breathing gets really tight, than it will loosen up and I can breathe. This goes in cycles all night.

This is making me really depressed not knowing what is going on. My surgery hasn't improved my condition any at this point.

I've been thinking of my TIF. I wish I could go back in time and not have it done. The feeling of making such a poor decision and having to live with the new symptoms. aka the breathing problems... Still think the the TIF device worsened my nerve damage in my throat.

Post Edited (TheSiXness) : 11/15/2013 1:07:10 PM (GMT-7)

Posted 11/15/2013 9:25 PM (GMT 0)
I don't understand how breathing irritates me... Going in the hot tub irritates me. Seems like everything irritates me. When I unplug my nose my maxillary sinuses hurt. It seems like this is in my airway, literally.
Posted 11/15/2013 11:07 PM (GMT 0)
I had problems breathing when it got cold. Could it be the cold weather? A technician with my pulmonologist showed me correct breathing techniques after the surgery.

FC
Posted 11/16/2013 2:54 AM (GMT 0)
No actually, this cold weather feels great! I get bad breathing during the warmth actually.
Posted 11/16/2013 10:53 PM (GMT 0)
I'm from Florida so I can't take the cold. I'm the opposite. I couldn't breathe today. Pain in shoulders and back.

FC
Posted 11/28/2013 4:48 AM (GMT 0)
Not doing so great still... Went back to work. 70 + hr work week. Fun... Was completely weak. I felt like an overworked horse that was about to collapse from exhaustion! This week I'm guessing I will be forced to work 80 hours... My job is quite frustrating at the moment.

My reflux symptoms I had are still there. Zantac, Pepcid seem to give me more heartburn/reflux 5 minutes after taking them than before. My neurontin seems to give me really back burns now too! Strange... So do poptarts. Can't eat anything still without it getting stuck. Anything thats larger than a pea will get stuck... I feel it in my sternum and also in my back. I don't know how much of this getting stuck/ intra oesophageal reflux is contributing to my overall reflux, but it seems like it's rather significant still at 7 weeks.

My throat still hurts quite a bit, somedays are a little better than others... Can't sleep laying down what so ever now. Been sleep hunched over in a ball in my chair. I can't sleep on my back... So I have to lean side ways on the chair. It's very uncomfortable. When I relax my tongue I doo gag like crazy in a matter of seconds when I'm on my back, but I've had a sleep study done. It came back saying I had 33 arousals... I slept on my left side during it though. I'm sure I would have complete blockage and 50 + arousals.

Thinking of having that redone, but it takes so long just to get one scheduled. It's annoying. I just want to buy a machine and not pay my insurance company. In the past when my reflux was controlled I would wake up quite a bit less during sleep, but I still think that sleep apnea could be an issue. Just because I can have complete gagging blockage in a matter of seconds when I recline.

Another thing... I can't seem to gain weight. I weigh 131 pounds... Haven't been this small since 10th grade. Can't see how this is possible... At work I eat like every 2 hours.

Post Edited (TheSiXness) : 11/27/2013 9:55:30 PM (GMT-7)

Posted 1/5/2021 4:30 AM (GMT 0)
I'm onto my Nissen number 2 in 2021 and I'm about a week out... Similar ear pain and sinus issues lol. I don't think I'll go down this route again. Maybe linx next time haha. Thinking of maybe just getting my wrap taken down for good.
Posted 1/5/2021 11:56 AM (GMT 0)
SiXness:

Did you get a 2nd opinion from another surgeon? I would make sure that a 2nd Nissen is your best option.

Sharon
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