Dysautonomia, POTS or EDS and Nissen?

Welcome to the forum, Brianela.

Your surgeon does indeed need to know about your complicated comorbidities. The EDS might be the big one, although dysautonomia is an umbrella term that covers a lot of problems.

I have some autonomic dysfunctions that cause me to get suddenly overheated and seriously high blood pressure. Mine was caused by a bunch of crushed vertebrae, 2 in my neck. What sort you have will determine if they will have to give you special treatment.

Ehlers-Danlos is important if you have periodontitis or mitral valve prolapse because they will have to give you antibiotics. They will also want some heart tests. I'd had a heart attack, so had to have a stress test even though I had had no heart problems for years.

Take with you as much information, test results, imaging disks, any reports, list of allergies, medications you take.

It's possible, if your conditions are bad, they could refuse you as a patient. No use worrying about it though. You wouldn't have been recommended for this surgery if you didn't need it and obviously couldn't tolerate it.

Best wishes. Keep in touch. We aren't doctors, just patients, but we can sympathize and hopefully reduce your anxiety by caring.

Ah! So you don't have a medical diagnosis for some of your conditions. I'm pretty sure your surgeon will require you to get signed off by a cardiologist and maybe by some other specialists.

As for medications, a lot of them can be chewed, crushed, capsules opened and sprinkled on applesauce. there are liquid vitamins, but you may be able to do without them for the short time it's hard to swallow pills.

Do you have a list of your allergies? If there are any medicines or chemicals like the stuff I can't take, you will need to have that with you when you see the surgeon. I have two typed pages of my sensitivities in my purse at all times. Your cardiologist can tell you what to do about the BP meds.

There are many sorts of dysautonomia. You need to tell the surgeon what you have to do, if anything about it. When I get a blood pressure spike at home I have to get up and move. If it stays high for a couple of hours I need medication. If I were in the hospital I would have to be monitored often and have medication prescribed on hand because my problem can become life-threatening very rapidly. Have you been diagnosed with any particular problems?