LPR Survivors - What worked?

Hi,

I'm going nuts here - symptoms are controlling my life.

Thought I would start a thread for people to describe their symptoms and what worked in treating those symptoms. There seem to be a lot of threads which start off as very interesting but end with no real conclusion and don't give the reader / sufferer any more information than they perhaps started with. IE there seems to be a lot of chat about what MIGHT work, and what treatment plans we are going to follow in the future..

So can those who have beaten LPR already, please tell your story?

(A) Symptoms
(B) How you were diagnosed
(C) What treatment worked for you
(D) Are you still on any meds..

I fear those that are 'cured' are no longer on this forumn though! Please post if you can help.

Thanks,
Steve.

hi i am about 90% cured... i will tell you what helped me.

first about 90% of the post on the forum are useless in curing LPR (good for support though)
the trick is to find the actual 10% post that help.
you need to try different things for a month or so and see what helps...
Diet is the most important.

(A) Symptoms
globus, back pain, clearing throat, chest pains... all the usual LPR symptops stabbing pain in the neck

(B) How you were diagnosed

ENT Scope but for a for a real diagnoses u need a dual probe PH study.. and endoscopy.
(C) What treatment worked for you

this question is really WRONG.... NO DOCTOR WILL FIX THIS FOR YOU... THEY WILL GUIDE YOU... BUT in the end 90% of the work is you diet, how you eat, how much you eat?

protonix 20mg 1 day and 1 at night. 2 zantac at night.. i think it was 20mg.
Read the dropping acid book,
then try SCD DIET or Paleo but remember not to eat or drink something acidic like cola.
Eat SLowly chew well.
Eat 50% full.
small meals...

i had neurogenic pain so i took lyrica, and cymbalta (go to neuroglist for that) any med that tread diebetic neurthopy will help neuro pain caused by LPR)

(D) Are you still on any meds..

dropped all the PPI.... just neuro meds lyrica and cybalta.... i also know of other people cured who just take xanax...(helps with non acidic reflux)

I also used sleep apnep machine CPAP machine set around 6-7 really helped with my LPR at night... slept like a baby...

i feel pretty good like most the day, throat really doesn't bother me that much...

i ride my bike 10-20 miles a day when i can, and hit the gym lift weights... i can lye down without a wedge pillow...



it may take years but LPR can be cured!... i know 2 people who have done it..

Diet got u into this mess... and DIET will get you out...

i hope this helps others...

I was cured from LPR and It was extremely bad for me when I had it.

I was taking omeprazole 20mg for acid reflux due to eating spicy foods, and drinking things w/ caffeine & citric acid. After I was only on the medication for eleven days when my symptoms became completely worse, The medication caused delayed gastric emptying. I no longer had enough acid in my stomach to break down my food, so what food and acid remained in my stomach was being pushed back up my esophagus.

My symptoms were: excessive burping, bloating, abdominal distention, GERD, abdomiinal fullness. It eventually lead to globus sensation, raw throat & upper esophagus, after many months. I also had occasional chest pains from the reflux.

At first, I thought it might be the medication, so I refused to take the medication. The doctors not knowing what to do, decided to put me on a different PPI at a larger dosage, and my symptoms became much worse.

I had to go thru three months of "acid rebound" to get off this medication. Acid rebound is your worse nightmare. After I made it through acid rebound, my delayed gastric emptying symptoms slowly started reversing.

It has been almost 9 months since I have been off all medication (PPIs, H2-blockers, and antacids). I am 99.9% better.. I truly believe in a couple more months I will be back to where I was before the medication.

I learned an extremely difficult lesson about medications. Doctors are not aware of all medications that can cause delayed gastric emptying and everyone responds differently to medications.

If you will have LPR, you need to be tested for delayed gastric emptying, food sensitivities, and H. Pylori. A barium swallow test (upper GI series) is NOT a good test for delayed gastric emptying since it can only can see what happens when you drink fluids and does not test for solids.

Posting this here incase it helps anyone:
-Assumptions: You already know about pepsin, what it is, and how it becomes activated with acid etc..
- Symptoms: Male, healthy, not overweight, no obvious stomach/bacterial issues, have had LPR for many years on/off, which usually is at night, a mild to severe (if untreated) sore throat, and when untreated can lead to dysphagia, and discomfort in throat, clickyness in the throat, and chalky feeling on teeth (enamel interacting with acid). Have been to ear-nose-throat and does not appear to be too much damage or obvious damage to voice box.
-Cause: Mostly likely due to pepsin enzymes that get activated with acid at night as my upper esophegeal sphincter relaxes. Likely a more relaxed upper esophogeal sphincter than most people, probably caused by eating ghost peppers or something at some point just being stupid.
- What did not help: PPI's and Diet did not help, even fasting (not eating) did not help, antacids did not help. Although I do NOT drink Coffee, sugar/sweets, or any sort of chewing gump with mint or peppermint (if so you're screwed) and do not eat chocolate. Basically this assumes you already don't eat peppermint/chocolate/coffee, especially after like 10am.
- Fix #1: Two things helped (1) What helped stop the damage was filling up a spray bottle with about 30/70 Baking soda/clean water (basically as much baking soda as you can without clogging the bottle) and spraying it into my mouth before bed and inhaling at the same time. Nose spray bottles also helped but I like the regular spray bottles as they clog less easily and really blast a mist. This helps to neutralize the pepsin. If you can get enough baking soda it will destroy the pepsin which is better....
- Fix# 2: Brushing teeth with baking soda before bed (NOT regular toothpaste with MINT). I don't swallow toothpaste, but the mint and mint fumes will get in your voice box and upper-esophogeal-sphinkter and relax it, which is not good right before bed. I still brush teeth with regular toothpaste in the morning, but it has been a game changer not using mint toothpaste before bed.
- Fix #1b: If you wake up at night, like 3am or 4am, keep the spray bottle next to your bed stand, and spray it into your mouth and inhale at the same time, to give you a second dose of pepsin neutralizing spray.

Keep doing #1 and #2 until you heal your esophagus. Hope this helps someone. Good luck.