NISSEN FUNDOPLICATION NIGHTMARE

Having a meltdown the new doctor said today esophagitis is back
Not sure how much damage last doctor has done.
Going to see surgeon number 2 for advise, no dilation this time.
I go back in 10 days he may recommend take down. I knew this day
Would come I will let u know as this progress. I'm trying to find humor
But it's really hard.
Thank you all for your love and support
Humility dumpty

IF THERE IS A WILL THERE IS A WAY SURGEON NUMBER 2 HAS THE BALL
ROLLING FOR EGG TEST TO SEE IF MY STOMACH IS PARALYZED IF SO THEY WILL TREAT IT. IF NOT MY ONLY OPTION WILL BE GASTRIC BYPASS.
FINALLY I MIGHT GET MY CHEESEBURGER SOMEONE WHO ALWAYS LISTEN
HE AND THE OFFICE STAFF ARE SUPURB!!!!!!!!!!!!!!!!!!!!!!
I always new the light at the end of tunnel of my terrible nightmare will now
Call it as the nissan turns, a book how to conquer and then finally live happily
Ever after my nightmare in its final chapter.
Whatever you do never give up keep looking for your happiness you will find!
It's ok if you have 7 or ? Gi doctors remember you have to be able to eat!!!!!!!!
And quality of life. I've been at this for a very long time your dreams will come
True. Love yahoo all I will let you know!

Thank you so very much for the suggestion I'm running out of
OPTION with the nissen the surgeon I just saw said I am one of a very view
Where this procedure just will never work. My guardian angels have kept me safe
After my last procedure I've pressed this to the end. I've been so miserable for
Such a very long time I'm ready to move toward this new procedure. I thank you so very much I know I'm going in the right direction. We will see if my stomach is paralyzed I will keep you posted, I had a ruff night and saw your post. Stay strong family we will figure this out somehow keep smiling I'm going to try and go back to bed. Humpity dumpty (PARTLY CLOUDY)

Linda sue,
I had a huge chewing out from the surgeon today, gi doctor passed off because
I went some where else.
He is so tired of fixing other surgeons problems. I made a huge
Mistake awaiting another manometry study to see if the nissan is working.
They want to see how much acid I have I have esophagus stage 2 gastritis,
I have appointment with internal doctor asking for pain management.
I hit massive roadblock and I'm stuck with what I get.
I'm going away for awhile to regroup and try to make the best of my bull suit
That I created and try to figure out how to live
Thank you I hope you are doing ok I've enjoyed meeting everyone. I'm going to
Have my melt down wait to see my internal doctor.
Humpty dumpty

I have had GERD since 2003 and was diagnosed with a hiatal hernia in 2011. I as told by my doc to elevate the head of my bed by 6 inches. I found a bedframe that fits inside your bedframe and it works great! It is a Beds Up frame: Beds Up, Bed Elevating Inclined Frame Insert, Queen.

Hi Sunshine,
I can't believe all that you have been through! I'm sending my prayers that the future will be brighter and more comfortable for you; you certainly deserve that.

I am doing good as I FINALLY got a firm diagnosis of the awful chest pain I had after my surgery. It's called 'Jackhammer' esophagus. I have a wonderful gastro doctor who has put me on meds to control the chest pain, and another to help heal the nerve pathways of my esophagus. I can function almost normally as long as I take my meds 4x daily. It looks like I will be on medication for the forseeable future. Fortunately, they are NOT expensive.

I have my phone set with 'alerts' when I need to take pills. This condition is rare and doctors can only treat it with medications currently (calcium channel blocker and tricyclic anti-depressants). Primary causes include 'stress' and 'acid reflux'. Both of which I've had for many years. It's possible that my condition will improve, over time, now that I no longer have acid reflux.

The pain became worse when my LES was fixed during the surgery, so now it is normal, but the nerve pathways were disrupted with surgery, hence magnified PAIN. My surgeon did it right and told me that any kind of additional surgical repair to the LES would cause me to have uncontrolled acid reflux! I don't EVER want THAT again!

I wish you well, SUNSHINE, and thanks for thinking of me!

SUNSHINE, best of luck to you! Keeping you in my prayers!

Guardian angel (Linda Sue)

I finally made it home one week in the hospital. I will blog exactly what he did
He won't be happy til I'm ten days out, but what he found you all need to know
And not once did he ever say this was my fault. I'm now the Jr bionic woman.

I'm very pleased again with all my prayers and they were finally answered..
My quality of life will change dramatic. Love to all my family and friends.

Hello Sunshine-I hope that you get the relief you need soon. You say that you are happy with all of the doctors that are involved-having to wait to April or May for appts seems horrible. When I contemplated having my surgery, I didn't find a surgeon in my specific area that I trusted........I was able to find a team of surgeons who specialize in this type of surgery and actually collect data to publish results of their work. Luckily, they were about two hours away, so the whole process meant 5 roundtrips and we stayed at a hotel near the hospital for three days after surgery. Insurance, which I paid premiums of almost $1000 a month, paid only about half of my $20,000 bill. Nothing good about this whole insurance thing but I'm on the road to recovery and not looking back! Wishing the best for you.

Linda sue
He?? Know am I waiting I had the bmiut surgeon do what he could, the
Surgeon #5 has done amazing job all he could say this was over complicated.

Surgeon #2 and nurse I'm so very grateful that I went to the bmiut I honestly
Don't know where I would be today. I had so much scare tissue after he put
Me back together call me the bionic woman

The surgeon had this thing fixed once and for all. No more nissen! They are waiting ten days to see if I heal well. On full liquids. I will post what he did but if you need surgeons find a bariatric surgeon .

I will be canceling all future test in March and April. I wasted to much time with
No resolutions from surgeon #3 I suffered way to long and got now where.

Thank you. Again surgeon #2 his nurse internal doctor all of you love for now,

Hello! I've just read this entire thread and I can sympathize with each of you. I had my first Nissen and hiatal hernia repair in 2010. It lasted for only 8 months. I had revision of that Nissen hh repair in 2011 and suffered major complications spending almost three months in the hospital. I had revision # 2 in 2012 by a different surgeon. No complications but never any real relief either. I also suffer from asthma, COPD and several other issues but those two are always affected by that stupid hiatal hernia! I found out the end of last year that the hiatal hernia had increased to the size of a grapefruit and that it was obvious that the Nissen and previous repairs of the hiatal hernia were ineffective. I saw three surgeons before finding one that I trusted and on January 20 I had a subtotal gastrectomy with a roux en y reconstruction. What that means is that they completely removed 90% of my stomach. My last egd showed severe erosive gastritis as well as precancerous polyps. On January 22 I was still in the hospital and taken back for emergency surgery due to bowels migrating into chest. The surgeon was unable to repair my hiatal hernia. The hope was that this was just a "fluke" due to my bowels being dilated from surgery. They inserted NG tube and pushed everything down and that stayed in for 3 days. During that time NOTHING by mouth, not even an ice chip. I came home and have done fairly well. I have lost 45 pounds. The end of March I was admitted to local hospital with pneumonia. While there I developed chest pain and began vomiting. A cat scan was done, my surgeon was called and I was ambulanced to KC where my surgeon is located. This was on 04/01. I was taken immediately into surgery as I had a bowel obstruction from scar tissue as well as my 10% stomach that I have left back up in my chest cavity. Thankfully no NG tube this time. Home now....pneumonia is clear but asthma and COPD are still flaring. Saw dr again today and all as well as I are of the belief that until they can find a way to repair the hiatal hernia I won't be able to breathe and am just waiting for the next emergency. So I'm being referred to Mayo Clinic. This is such a difficult journey. I'm 43 years old, married and have 3 kids, ages 15, 17 and 19. Mostly I just hate how unfair this is to them. I have only worked three weeks since January. Luckily I have a great employer and will be starting short term disability for the time being. I have been through a lot as I see most of you have. If my experience can help any of you I'd be happy to answer any questions. For now I'm here again.....waiting.

Linda sue

I'm just checking on you haven't heard from you. I hope your recovery
Is moving in the right direction and you are able to go back to work.

I'm awaiting my first denial from ssi disability my working days are over
Have attorney to help me thorough the process. I having better days
Still working out the complications. So very blessed to still be alive. I thank
My surgeons #2 ,4 ,5 my nurse Wendy. All my angels who look after myself.
Even a bad day I keep fighting for better quality of life.

Hope to hear from you soon SUNSHINE