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Serious thoat pain... PPIs not working!!!!

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Posted 8/8/2015 2:08 PM (GMT 0)
I was on tecta, stopped for side effects, Nexium, stopped because really bad heartburn still, and then Dexilant now... no heartburn, no pain, but still occsional refluxes! Doctor said its only been a few days, give it more of a try so I am. No refluxes lately but my sore throat is still here! And its painful! Doctor said my throat seems a bit red but thats all. I know its fom the acid.

What do I do?? MY doctor said its still not bad enough for me to have to see a gastro, but because I had a tender stomach said it could be gastritis.

What do i do about the sore throat? And why is it there if I seem to be not getting refluxes/heartburn the past few days?

Help
Posted 8/8/2015 9:02 PM (GMT 0)
Curioser, I was on PPI for 6 weeks and it made me worst. My doctor kept telling me to continue on taking it even if I went to the Urgent care twice. I lost 14 lbs for 6 weeks and so helpless. That horrible feeling is so tough and did not go away. So, just did my own research, figured out what had really caused my GERD. I decided to replace it with regular acid blocker Zantac/150mg for a week (3X ad ay) and I felt better. Now I'm down to one acid blocker. Also, I took some probiotic. Try drinking one Yakult each meal. Also just gargle with salt, warm water and baking soda for your soar throat. So, if your new medication makes you feel better just wait for a week or so. It will take sometime to heal the soar inside.
Hope you feel better. smilewinkgrin
Posted 8/9/2015 9:58 AM (GMT 0)
Hi Curiouser

PPIs do not fix what is causing reflux. The doctors are only attempting to treat symptoms with this medication. This is why many people still have problems on PPIs and even after surgery for GERD.

Unfortunately, PPIs can cause delayed gastric emptying in some people. If you develop delayed gastric emptying from taking this medication, the LPR will never go away. This is because there is no longer the correct amount of acid in the stomach to break down the food. The remaining acid in the stomach along with the food will come back up the esophagus over & over again until the stomach completely empties out.

I developed delayed gastric emptying from taking a PPI (omeprazole 20mg). I was taking this medication because I was having trouble eating spicy foods and things with caffeine and citric acid. The PPI was the only medication I was taking.

With delayed gastric emptying you are either dealing with either serious GERD/LPR issues or in worse cases vomiting. I was dealing with the serious GERD/LPR issues. There are many other symptoms that can go along with delayed gastric emptying like bloating and burping.

I went through three months of acid rebound to wean off this medication. Acid rebound is a withdrawal symptoms from this medication. Once off all PPIs, H2-blockers, and antacids, My delayed gastric emptying slowly reversed. This is without taking any supplements. My LPR is now almost completely gone.

Post Edited (CAGU) : 8/9/2015 4:08:08 AM (GMT-6)

Posted 8/10/2015 4:28 PM (GMT 0)
Hi CAGU, Can you please give details on how you wean off medicatons. Its good to know that your GERd/LPR is almost gone. Mine was with PPI wean off after 6 weeks. Acid Blocker 3 x day for a week. Then now down to one Zantac and probiotic. I'm on a strict diet for a month now but at least not losing weight anymore. I still get weak sometimes and have burping issues which is not bad anymore. Thank you for your post/advice. This helps me not being scared dealing with weaning off meds.
Posted 8/10/2015 7:56 PM (GMT 0)

curiouser said...
I was on tecta, stopped for side effects, Nexium, stopped because really bad heartburn still, and then Dexilant now... no heartburn, no pain, but still occsional refluxes! Doctor said its only been a few days, give it more of a try so I am. No refluxes lately but my sore throat is still here! And its painful! Doctor said my throat seems a bit red but thats all. I know its fom the acid.

What do I do?? MY doctor said its still not bad enough for me to have to see a gastro, but because I had a tender stomach said it could be gastritis.

What do i do about the sore throat? And why is it there if I seem to be not getting refluxes/heartburn the past few days?

Help

Please demand a referral to a gastro or an ENT but gastro would be better. It sounds like you really need a endoscope to find out what is going on. If your doctor refuses for some ridiculous reason call your insurance company and ask if them if you need a referral if not then refer yourself. I am not trying to worry you but if you are getting a sore throat that can be from acid seeping up into your esophagus and that means the more it happens the more your esophagus will become damaged, I know it happened to me so its really best to see a Its good that atleast you are on a PPI so you arnt going without any treatment but still I think the best route to go is a gastro.
Posted 8/11/2015 3:47 AM (GMT 0)
Hi TuWang

It was not easy for me to get off PPIs or the H2-blocker. But all I knew was I was a perfectly healthy 46 year old before I started this medication and now I was not. Since I could barely eat after I developed delayed gastric emptying from the PPI, I was determined to get off this medication. Even if I had to go through the pain. I was loosing too much weight since I could not eat.

I wish I could tell you it was easy going through acid rebound, but it was not. The only advice I have is to wean off the medication slowly. My diet during acid rebound was mostly plain food. My diet consisted of plain baked chicken, grilled fish, grilled shrimp, plain baked potato, bread, etc... Every thing was plain (no seasonings, no condiments on food, no citric acid, no caffeine, no dairy). I only drank water during this time.

If you would like to follow my recovery from delayed gastric emptying, you can find me at the link below. I've also posted information there on acid rebound.

https://www.inspire.com/CAGU/journal/ppi-warning-gastroparesis-delayed-gastric-emptying-proton-pump-inhibitor/

Post Edited (CAGU) : 8/16/2015 8:45:01 PM (GMT-6)

Posted 8/11/2015 5:21 PM (GMT 0)
Hi CAGU, thank you. The link was very helpful. I got off PPI after 6 weeks and took Zantac. Same thing with me, I kept taking PPI for 6 weeks because my doctor said so. Diagnosed with GERD after taking Advil and Antibiotic. Horrible feeling, being weak, dizzy and anxious. I can't eat anything and feeling weak. Went to Urgent care and my regular doctor. They kept saying I'm losing it and need to take anxiety pills. I was thinking, why is this medication made me worst and now being told I'm losing it. Until that day that I stopped taking PPI (July 24). Praise God for His wisdom. I told my doctor after a week that I stopped the PPI meds and that instead I'm taking Zantac (H2 receptor/blocker) and that was the time she okayed me taking Zantac 2 x a day. Now I'm taking 1 Zantac 150mg. Thank you for your post on this site, I learned a lot from each other's experience. I wish I read your site sooner, but God is good all the time, He helped me go thru all these. My CT scan is normal so as the rest of the blood test. Then I start taking Yakult and Probiotics capsules. (When taking PPI none of this remedies worked). I'm eating every 3 hours small portion at a time. Inspired from your post to do the strict diet. Thank you for sharing your journey to recovery.
Posted 8/13/2015 2:21 PM (GMT 0)
Hi Tu Wang

Glad to hear things are turning around for you! Doctors do not know everything about these medications and the studies on these medications were not done long enough.
If you have any other questions, you can find me at the link I previously posted. I can receive emails there also. Yes,God is good!
Take care & God bless!
Posted 8/14/2015 4:38 PM (GMT 0)

curiouser said...
I was on tecta, stopped for side effects, Nexium, stopped because really bad heartburn still, and then Dexilant now... no heartburn, no pain, but still occsional refluxes! Doctor said its only been a few days, give it more of a try so I am. No refluxes lately but my sore throat is still here! And its painful! Doctor said my throat seems a bit red but thats all. I know its fom the acid.

What do I do?? MY doctor said its still not bad enough for me to have to see a gastro, but because I had a tender stomach said it could be gastritis.

What do i do about the sore throat? And why is it there if I seem to be not getting refluxes/heartburn the past few days?

Help

The first thing that comes to mind is are you sleeping with the head of your bed elevated?   If not I would do that as soon as possible. 

Sometimes doctors will prescribe PPIs or H2 blockers when someone also has bile reflux, which can carry very similar symptoms as GERD.  I once had a coworker who had bile reflux so bad at night that she would wake up in the middle of the night with a very sore throat.

I have bile reflux sometimes and the only reason why I know this is because my GI doctor saw the bile in my biopsies taken of the holes caused by gastritis.  It is not entirely understood by doctors yet why some people have bile reflux.  I tend to get it when I eat fatty foods, so I stay away from that now.

I'm not saying this is the case with you, but it may be something to think about.

Some people have a tendency to secrete more acid or bile during their sleep, so you want to make sure you're not eating 3 to 4 hours before you go bed and preferable it should be a light meal.  Secondly, having the head of your bed elevated is really important, I have mine now at about 9 inches, but some people have better results at higher / lower heights; it's something you'll need to test out.

Posted 8/16/2015 9:41 PM (GMT 0)
Hi everyone! I am brand new to the forum, and this post caught my eye because I am going through something similar. I am 38 and was in pretty good health (I thought) until I began having GERD/heartburn at the beginning of June. I went from not knowing what heartburn felt like to waking up with difficulty swallowing and the lump in my throat. Difficulty swallowing and the dreaded lump lasted for about 3 to 4 weeks before the omeprazole I was taking (first once a day, then twice) started kicking in. At the beginning of July, I had an endoscopy showing mild esophagitis (Grade A) and mild chronic gastritis. I tested negative for H pylori.

Since then, I've continued on the omeprazole twice a day. Some days I feel like I am healing. I no longer have a chronic cough and my voice sounds back to normal. But other nights, despite using a wedge pillow, I still wake up with a dry/scratchy throat.

And last night, I experienced the feeling of food getting stuck in my throat again. I had taken my second omeprazole 30 minutes before eating. But I am concerned now, even though it FELT fine when it went down, that the pill got stuck in my throat and dissolved -- or simply wasn't working -- when I had dinner last night. But my throat may have been too dry, and perhaps I didn't drink enough water with it as I should have. I ws distracted by having dinner company, and was worried about having a bloated stomach.

Today I am able to eat, but it feels uncomfortable (like something is stuck) and my throat is sore. I also have the acid taste in my mouth. Does it sound like the pill got stuck on the way down? Will this feeling go away soon if I just drink more water? I am scared that I have made a crucial mistake and made a bad situation worse and delayed healing.

One other thing to note is that I've come across other health related issues this summer -- traces of blood in urine, UTIs, constipation. And that, in talking to these doctors repeatedly over the past two months, I have also gotten a little obsessed over my bowel movements. GERD has made me excessively anxious, to the point that I am seeing a therapist to deal with it. I feel miserable. I have gone from taking my health for granted to worrying that the omeprazole is damaging my system, or that GERD is a symptom of larger issues -- and that I am slowly dying.

Could anyone please shed some light on this issue and offer some encouragement? Thank you!
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