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Stopping PPI's cold turkey???

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Posted 8/20/2015 1:33 PM (GMT 0)
Hey everyone!

Thanks for all of your help and suggestions in my last posting. I am thinking of stopping my Dexilant and wondering if anybody has done this and what I can expect if I do this. I have been on Nexium, then Dexilant for the past 20+ years and am getting worried about their long term effects.

Any help/suggestions/experience would be much appreciated. Thanks!
Posted 8/20/2015 3:54 PM (GMT 0)
I was on Dexilant for over three months. While it showed abit of helping me at first that last month I was on it I have went downhill so to say. Anyways I decided to stop taking it as I wasn't going to pay another 250 dollar copay for a med that doesn't help. I stopped taking it as of this past weekend. I will say I substituted for another PPI but it has been rough going. I don't know if its because I was so use to the dexilant that stopping it and switching my body needs to get use to this new PPI or what. I am doing this on my own as my gastro Dr(should say former) has been ignoring my calls. Anyways I have heard and have suffered from acid rebound. My one doc put me on omperzole back in winter of last year and I stopped it once script ran up and I had no idea about acid rebound no one explained it to me so the reflux came back with vengeance which I think lead to my throat becoming severely damaged. Basically I am trying to say be careful because you could end up messed up.
Posted 8/20/2015 3:55 PM (GMT 0)
Please call your doctor for advice regarding your discontinuing of Dexilant. It may not be a good idea to quit cold turkey, but rather wean yourself from the medication over a period of time.

Sharon
Posted 8/21/2015 7:49 AM (GMT 0)
Don't do it, ull be in a world of hurt. If you want to get off it then do it gradually and perhaps substitute with Zantac for a while too to get past the acid rebound.
Posted 8/23/2015 3:15 AM (GMT 0)
Hi Kimmysnores,

I did mine last July 24. This was after taking it for 6 weeks. The PPI made me weak and dizzy. Andy1986 is right substitute it with Zantac or H2 blocker. My 2 doctors told me to continue on the PPI even if I told them it made me sick. So I did it on my own, with God's grace. I did a lot of prayers and meditation. All my test and CT scan were all normal, I give glory to God. I wean myself from Zantac for few days now. I eat small portion and have a journal on what I ate. I'm still on a strict diet. ( white rice, fish, organic eggs, selected veggies and Boost drink). I'm taking probiotics and Yakult drink helps me after meal. please read the site of CAGU below, you might find it a help for you too.

God bless and be strong.

https://www.inspire.com/CAGU/journal/ppi-warning-gastroparesis-delayed-gastric-emptying-proton-pump-inhibitor/
Posted 8/23/2015 1:57 PM (GMT 0)
I stopped Nexium 40 cold turkey after being on it for over a year. It was rough going. Milk, licorice, lots of aloe juice, diet change, tums all helped but not entirely. A reduced dose of Nexium 20 for a month or more then zantacs (2x / day) did help and now I'm down to 1 or 0 zantacs a day depending on symptoms. I still have a hiatal hernia so I have to be careful and eat right, eat the right portions and keep my stress low.
Posted 8/24/2015 8:33 PM (GMT 0)
Dose down is the best way to do it. I also am stuck on PPIs. I tried to wean off and got as far as 20 mg of Nexium once a day, but tried to switch to Zantac and got the worst rebound acid hypersecretion - I was sick for days with fever and pain and had to go back onto Nexium 40 mg twice daily. I am NOW on Aciphex 20 mg twice daily plus taking Gaviscon.
I have stomach polyps as a result of taking them and am not sure if I will ever get off of them.

If you are able to dose down, then definitely do so... SLOWLY and supplement with Gaviscon (or Pepcid) if you feel the burning coming back.
Posted 8/24/2015 9:32 PM (GMT 0)
Hi Buster1, good to know you tried weaning yourself from PPI then now Zantac. I have the same ordeal, stopped PPi July 24, and now is my 6th day Zantac Free. Keep in touch for updates. It will be tough but you can do it. I took some TUMS and Rolaids (2X) because of eating restaurant food. (steamed fish could be mixed with MSG). But if I was strict on my diet I might not need it. There are days that you might be weak, but just divert yourself on something happy/stress free possible. (for me I spend time on my garden and prayers). I have some discomfort after eating but I eat little portions. I am taking probiotics and 1/2 bottle of Yakult each meal. This helped my food digestion. We are different but this is what made be feel better. I'm also taking Vit D. Magnesium helps (still experimenting). I wake up at night hungry so I have Boost drink, mix with warm water. I'm praying to sleep more than 4 hrs. That's why probably I'm feeling weak due to lack of sleep? I have a reclining bed and recliner chair so it's just me waking up hungry.

God bless.

Post Edited (Tu Wang) : 8/24/2015 3:37:13 PM (GMT-6)

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