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Posted 9/30/2015 6:26 PM (GMT 0)
I'm so upset right now as I couldn't do my test(esophagus mamatory) To start the dr wasn't the most comforting she was actually condescending to me through out. There was no anesthetic offered not even in the nose which I thought from what I've read you atleast got that. Anyways in went the tube and when it got down to the epiglottis I started gagging bad like the tube wasn't right or something and I said take it out and she wouldn't so I said it again and she still wouldn't and then while gagging bad I yelled the best I could " take the ****ing tube out now and I went to pull it out. That was my first time doing this and she said I do these all the time and I said well I don't. Anyways my fiancé got angry and that didn't help my nerves and she tried again and I think I was so nerved up I just couldn't. my throat hurts so bad right now, I wish she didn't keep shoving that tube down when I asked her to stop.

I'm really at the end of my rope.

Also I do t want to worry anyone who hasn't had the test, plenty people have this done. I just think in my case I was nervous and the dr nor my fiancé helped me relax which I think is key for this test.

Post Edited (LAWCHICK) : 9/30/2015 12:43:00 PM (GMT-6)

Posted 9/30/2015 7:12 PM (GMT 0)
yes, a caring practitioner is a must. I panicked , started to try to pull it out too, but she talked me thru it and coached me thru-out the test in a calm, non-judgemental manner. I even left a card for her the next day, I couldn't have done it without her.

Not sure if this is true, but she told me that sometimes women have more trouble with it because the tubing is just one length and on average men are taller. so the ribbed part may stay where it's harder to tolerate whereas in men it would go farther down and bypass the sensitive area.

I'm sorry you had a bad experience. I wanted to take a valium for my test, but that is a no-no because it's also a muscle relaxer which would give inaccurate swallowing muscle test results.

Just wanted to let you know you're not alone, definitely don't go back to that person, I hope your next person is kinder.
Posted 9/30/2015 7:33 PM (GMT 0)
Yes, I agree. Find someone else. Maybe you can find people in your area with recommendations. The lady that did mine was awesome. She kept me calm the entire time. And yes, she gave me a nose anesthetic.
Posted 9/30/2015 8:43 PM (GMT 0)
I don't think I'm going to give this another go. I immediately felt uncomfortable with her when she came in. I was obviously nervous and she says "do you not want to do this I'm getting the feeling you don't want to do this" I was like no of course not but I need to. Then she gave me a bucket and said here in case you throw up and I said "I'm going to throw up?" I was like I don't want to throw up is that really common, I know dumb questions but she was like some people do and take the bucket because I don't want you throwing up on me. I was thinking to myself great this is who will be shoving a tube down my throat any second.

Anyways I hate when I tell any Dr I have lupus because they all get this questioning non believing look on their face and then quiz me about how I was diagnosed. I told her I had a rash, positive Ana and low c4 and c/3 she says well what's lower the c/4 or c/3 I said I don't remember then she says you know strep throat can cause those test to come back positive and I said it's been coming back positive for 10 years! Now I'm getting even more uneasy. Then she starts talking about my cats and how I may be alergic to them upsetting me even more. I'm not there to be re diagnosed I'm there for a test.

Then when she brought up my last gastro I said I had to get new one because he never returned my calls and she was like "well that's not the dr's fault that's the staffs fault I read his credentials he seems like a good dr. "This by the way is my gastro who didn't write any of my diagnoses on my endoscope report therefore leading to confusion and he also told me to eat acidic foods anyways even though they aggervate my reflux. He also didn't return my call when i was having issues with a medication and I rarely called that office so after two weeks of no response I fired him. Then she said I don't think you need this test and she did only try the tube twice. At this point I was relieved and didn't push it because I was too worked up. Plus at this point my fiancé stormed out because of her attitude.

People really treat me like crap and I don't know why, it's like I have a big sign on me that says "its ok to treat this person like crap no one will mind"

Post Edited (LAWCHICK) : 9/30/2015 2:56:41 PM (GMT-6)

Posted 9/30/2015 10:31 PM (GMT 0)
Really sorry to hear you have had such an unsympathetic person doing your test. Her attitude stinks.
Reassurance, patience and kindness are all qualities needed for such a delicate test.
It is common to vomit as I did but she should have been a little bit more diplomatic in her approach. Shane because although I don't think anyone can ever say the test is pleasant, with the right person performing it can make it bearable.
I think if you were to find another decent physiologist to perform, you're experience would be nowhere near as bad. Lots and lots of luck.
Posted 9/30/2015 11:51 PM (GMT 0)
Thanks everyone for the replies I appreciate it. I hope my post doesn't make anyone who needs this test done not have it. I think this was just an out of the ordinary expierence. I mean I didn't expect to be totally babied but no comfort or techniques to help me relax was extended at all.

To top it off I got in an argument with my fiancé in the middle of time square because he was being less than supportive and a creepy cookie Monster tried to come up and hug me. (People dress in character costumes around time square) ok done complaining thank you for everyone who took time to read all this.

Post Edited (LAWCHICK) : 9/30/2015 5:57:08 PM (GMT-6)

Posted 10/1/2015 1:07 PM (GMT 0)
LAWCHICK,
I'm so sorry to hear of your negative experience. The expertise & first impression of the technician doing this procedure is critical. I was lucky as are most I've read about. It also might have been better if you had gone alone, without your fiance. I know you felt you needed his support, but you might have been a little more relaxed without any distractions.

This is an important test that will tell your doctor a lot. I hope you will give it another try with a different hospital. I wish you the best as I know how it feels to be at the 'end of your rope'.
Posted 10/1/2015 1:59 PM (GMT 0)
Sorry to hear it went badly, I had a similar impatient technician who was annoyed when I told him I felt the tube curling and pulled it out. He even told me before the test that the last two people he'd tried it on couldn't finish it because they were so uncomfortable. I thought 'have you ever thought YOU might be the problem!'

I managed to get through it ok but it takes a lot of patience and relaxation techniques on my part, which I've had to master to combat my anxiety anyway so they really helped me
Posted 10/1/2015 11:13 PM (GMT 0)
The tube used for this test is awfully thin and tends to curl and get into the trachea, which really is irritating. It needs to be bent a little and then turned just right as it goes part way down.

After you've had tubes a few times you get lots more able to tolerate them. I used to be a horrible gagger too.

And yes, they should use a little Lidocaine!
Posted 10/1/2015 11:49 PM (GMT 0)
Thanks for the replies. My throat is in lots of pain and my chest has been bothering me. I hope she didn't cause any damage when she kept forcing the tube after I asked her to remove it then I had to pull it out myself. It feels like someone shoved a knife down my throat.

Andy inpatient techs are the worse. She was so rushy about it like she wanted to go shop at SAKs or go for lunch and I was stopping her.
Posted 10/3/2015 1:35 AM (GMT 0)
LAWCHICK, absolutely she should have offered some nasal anesthetic (tastes horrible though :S), getting the tube in for me was the worse bit because I have small nostrils and the opening to my sinuses on the side they tried first was too small for the tube to fit through so it did a bit of damage while he was trying to force it through. What I'm saying is that there is def a chance it did some damage but it wont be permanent, I had a ph test done as well and the continuous tugging from that exacerbated things but my nose was all better again after about a week.

The problem with tests being performed by technicians is unlike having it done by your specialist like I did, you are having it done by someone who does this same test all day every day, and in the case of this, dealing with a lot of people who are freaking out and making things difficult. Yes they should be more compassionate about it, its not a nice test and a lot of the problem with it, for me at least, was not knowing exactly what to expect and getting freaked out that I might vomit. Keep in mind though it gets old really fast for them, and sometimes they will get impatient, in fact as terrible as it sounds I have had nurse friends of mine say that its quite common for patients to get treated worse the worse you act, if you are freaking out and being irrational you're not going to get the response you need from the technician. If they see you are at least making an effort to try and relax yourself they will in general be a lot more forgiving and gentle. Don't forget these are humans too, its not nice for them having to deal with hysterical patients especially in cases like these where they can't offer anything to help them to relax and the patients aren't trying to keep themselves calm.

I cannot stress enough how important diaphragmatic breathing is during this test especially during the insertion because it affects your sympathetic nervous system and helps you to relax, your heart might still be racing a mile an hour, and you might still feel terrified but it will physically relax your muscles which will make it easier to pass the tube through.

I hate to be the bad guy here, and I certainly don't want to make you feel worse than you already do, I've been following your story on these forums its obvious you've been turfed around a lot and you're not getting any progress. Do you think that your attitude or state of mind at appointments might be clouding what is going on? What I mean is are you going into these things expecting the worse i.e. expecting that a new specialist is going to be mean or try to tell you something that you know its not? Because people are going to naturally be defensive if they feel you've come in with a chip on your shoulder.

Its also really important to keep in mind that even doctors who work at the same practice will not have the exact same knowledge about you and they will probably all initially come to different conclusions about your diagnosis until they have more information, so while something might seem totally obvious to you, there could be some symptom or something which happens so often you just don't even think to mention it now that could be what the new dr is missing to make a better diagnosis.

Sorry to sound so negative, I really do feel for you because I'm going through this sort of thing too and in the past have done everything I've just said, and it really does have a huge impact on how people will respond to you. Its not that you or I or any of us are bad people when we get upset or frustrated because I think with what we are all having to deal with its totally understandable, its that the medical staff we have to deal with are there to do a specific job and it all comes down to each individual persons nature as to how they will react to you.

At the end of the day you're the patient, you're suffering and they know that, but you don't know what their story is or whats going on with them and a bit of compassion from you might garner a bit of compassion from them too. Or they might just be jerks in which case you should just let that gag reflex do what it does best and leave them to clean up the mess.
Posted 10/3/2015 3:16 PM (GMT 0)

jenagade said...
LAWCHICK, absolutely she should have offered some nasal anesthetic (tastes horrible though :S), getting the tube in for me was the worse bit because I have small nostrils and the opening to my sinuses on the side they tried first was too small for the tube to fit through so it did a bit of damage while he was trying to force it through. What I'm saying is that there is def a chance it did some damage but it wont be permanent, I had a ph test done as well and the continuous tugging from that exacerbated things but my nose was all better again after about a week.

The problem with tests being performed by technicians is unlike having it done by your specialist like I did, you are having it done by someone who does this same test all day every day, and in the case of this, dealing with a lot of people who are freaking out and making things difficult. Yes they should be more compassionate about it, its not a nice test and a lot of the problem with it, for me at least, was not knowing exactly what to expect and getting freaked out that I might vomit. Keep in mind though it gets old really fast for them, and sometimes they will get impatient, in fact as terrible as it sounds I have had nurse friends of mine say that its quite common for patients to get treated worse the worse you act, if you are freaking out and being irrational you're not going to get the response you need from the technician. If they see you are at least making an effort to try and relax yourself they will in general be a lot more forgiving and gentle. Don't forget these are humans too, its not nice for them having to deal with hysterical patients especially in cases like these where they can't offer anything to help them to relax and the patients aren't trying to keep themselves calm.

I cannot stress enough how important diaphragmatic breathing is during this test especially during the insertion because it affects your sympathetic nervous system and helps you to relax, your heart might still be racing a mile an hour, and you might still feel terrified but it will physically relax your muscles which will make it easier to pass the tube through.

I hate to be the bad guy here, and I certainly don't want to make you feel worse than you already do, I've been following your story on these forums its obvious you've been turfed around a lot and you're not getting any progress. Do you think that your attitude or state of mind at appointments might be clouding what is going on? What I mean is are you going into these things expecting the worse i.e. expecting that a new specialist is going to be mean or try to tell you something that you know its not? Because people are going to naturally be defensive if they feel you've come in with a chip on your shoulder.

Its also really important to keep in mind that even doctors who work at the same practice will not have the exact same knowledge about you and they will probably all initially come to different conclusions about your diagnosis until they have more information, so while something might seem totally obvious to you, there could be some symptom or something which happens so often you just don't even think to mention it now that could be what the new dr is missing to make a better diagnosis.

Sorry to sound so negative, I really do feel for you because I'm going through this sort of thing too and in the past have done everything I've just said, and it really does have a huge impact on how people will respond to you. Its not that you or I or any of us are bad people when we get upset or frustrated because I think with what we are all having to deal with its totally understandable, its that the medical staff we have to deal with are there to do a specific job and it all comes down to each individual persons nature as to how they will react to you.

At the end of the day you're the patient, you're suffering and they know that, but you don't know what their story is or whats going on with them and a bit of compassion from you might garner a bit of compassion from them too. Or they might just be jerks in which case you should just let that gag reflex do what it does best and leave them to clean up the mess.

Well first off I wasn't in hysterics I was basically in the mood anyone would be in when they are about to have a tube shoved up their nose and down their throat. When I asked simple questions like about the nasal anesthetic or about the vomiting she was dismissive and cold. I'm all for compassion for others but quit frankly I don't care what she had going on that day I was about to have a terrifying test done to me anyways and there is no excuse to be rude to a patient. I work in personal injury law I have to hear people complain about some of the most tiny injuries even telling me I don't know what it's like to be in pain and I still listen to them and am kind even though I feel like saying I'm in worse shape then you are at times.

I don't have a chip on my shoulder I unfourtantly have an autoimmune disease that many Drs dont take seriously because the lab results are not always 100 percent concrete. Many Drs are intimidated by what they don't understand which leads them to be dismissive towards the patient.

Fact is there are a lot of crappy Drs out there just like there are a lot of crappy lawyers or waitresses or whatever the profession. I have met some amazing docs though so don't get me wrong I do not dislike them but this lady took the cake. This wasn't my new gastro either I really like my new gastro she is a sweet heart this was another doc who performed the test at the office.

My throat has been in pain since the procedure and I've been short of breathe I may have to get checked out because she was so rough with that tube I wouldn't be surprised if she damaged something.
Posted 10/7/2015 12:19 AM (GMT 0)
Hey LAWCHICK,
I am so sorry that happened to you. My son had a similar experience with the ph test. He is scheduled to do his manometry next week at Lennox Hill Hospital. I say this because I believe you are in NY as well. The doctor scheduled to do the test answered his own phone when I called to make the appointment. He was an absolute sweetheart..I just hope he is good at manometry as well. He assured me he would use an anesthetic spray in my son's nose before he started ( they didn't for the ph and it was an issue). My son's gastro also recommended using afrin spray right before as well, as this enlarges the nasal passages.I will post after Tuesday 10/13 to let you know if my son is able to do it.He has very bad anxiety to start with, so if it can be done then you may want this Doctor's name.
Posted 10/7/2015 12:30 AM (GMT 0)

LAWCHICK said...

jenagade said...
LAWCHICK, absolutely she should have offered some nasal anesthetic (tastes horrible though :S), getting the tube in for me was the worse bit because I have small nostrils and the opening to my sinuses on the side they tried first was too small for the tube to fit through so it did a bit of damage while he was trying to force it through. What I'm saying is that there is def a chance it did some damage but it wont be permanent, I had a ph test done as well and the continuous tugging from that exacerbated things but my nose was all better again after about a week.

The problem with tests being performed by technicians is unlike having it done by your specialist like I did, you are having it done by someone who does this same test all day every day, and in the case of this, dealing with a lot of people who are freaking out and making things difficult. Yes they should be more compassionate about it, its not a nice test and a lot of the problem with it, for me at least, was not knowing exactly what to expect and getting freaked out that I might vomit. Keep in mind though it gets old really fast for them, and sometimes they will get impatient, in fact as terrible as it sounds I have had nurse friends of mine say that its quite common for patients to get treated worse the worse you act, if you are freaking out and being irrational you're not going to get the response you need from the technician. If they see you are at least making an effort to try and relax yourself they will in general be a lot more forgiving and gentle. Don't forget these are humans too, its not nice for them having to deal with hysterical patients especially in cases like these where they can't offer anything to help them to relax and the patients aren't trying to keep themselves calm.

I cannot stress enough how important diaphragmatic breathing is during this test especially during the insertion because it affects your sympathetic nervous system and helps you to relax, your heart might still be racing a mile an hour, and you might still feel terrified but it will physically relax your muscles which will make it easier to pass the tube through.

I hate to be the bad guy here, and I certainly don't want to make you feel worse than you already do, I've been following your story on these forums its obvious you've been turfed around a lot and you're not getting any progress. Do you think that your attitude or state of mind at appointments might be clouding what is going on? What I mean is are you going into these things expecting the worse i.e. expecting that a new specialist is going to be mean or try to tell you something that you know its not? Because people are going to naturally be defensive if they feel you've come in with a chip on your shoulder.

Its also really important to keep in mind that even doctors who work at the same practice will not have the exact same knowledge about you and they will probably all initially come to different conclusions about your diagnosis until they have more information, so while something might seem totally obvious to you, there could be some symptom or something which happens so often you just don't even think to mention it now that could be what the new dr is missing to make a better diagnosis.

Sorry to sound so negative, I really do feel for you because I'm going through this sort of thing too and in the past have done everything I've just said, and it really does have a huge impact on how people will respond to you. Its not that you or I or any of us are bad people when we get upset or frustrated because I think with what we are all having to deal with its totally understandable, its that the medical staff we have to deal with are there to do a specific job and it all comes down to each individual persons nature as to how they will react to you.

At the end of the day you're the patient, you're suffering and they know that, but you don't know what their story is or whats going on with them and a bit of compassion from you might garner a bit of compassion from them too. Or they might just be jerks in which case you should just let that gag reflex do what it does best and leave them to clean up the mess.

Well first off I wasn't in hysterics I was basically in the mood anyone would be in when they are about to have a tube shoved up their nose and down their throat. When I asked simple questions like about the nasal anesthetic or about the vomiting she was dismissive and cold. I'm all for compassion for others but quit frankly I don't care what she had going on that day I was about to have a terrifying test done to me anyways and there is no excuse to be rude to a patient. I work in personal injury law I have to hear people complain about some of the most tiny injuries even telling me I don't know what it's like to be in pain and I still listen to them and am kind even though I feel like saying I'm in worse shape then you are at times.

I don't have a chip on my shoulder I unfourtantly have an autoimmune disease that many Drs dont take seriously because the lab results are not always 100 percent concrete. Many Drs are intimidated by what they don't understand which leads them to be dismissive towards the patient.

Fact is there are a lot of crappy Drs out there just like there are a lot of crappy lawyers or waitresses or whatever the profession. I have met some amazing docs though so don't get me wrong I do not dislike them but this lady took the cake. This wasn't my new gastro either I really like my new gastro she is a sweet heart this was another doc who performed the test at the office.

My throat has been in pain since the procedure and I've been short of breathe I may have to get checked out because she was so rough with that tube I wouldn't be surprised if she damaged something.

There was no need to get defensive, I wasn't accusing you of being hysterical at all I was merely asking questions. If you note most of what I said was in support.

Hopefully you can find someone who can get this test done for you.
Posted 10/7/2015 6:50 AM (GMT 0)

jenagade said...

LAWCHICK said...

jenagade said...
LAWCHICK, absolutely she should have offered some nasal anesthetic (tastes horrible though :S), getting the tube in for me was the worse bit because I have small nostrils and the opening to my sinuses on the side they tried first was too small for the tube to fit through so it did a bit of damage while he was trying to force it through. What I'm saying is that there is def a chance it did some damage but it wont be permanent, I had a ph test done as well and the continuous tugging from that exacerbated things but my nose was all better again after about a week.

The problem with tests being performed by technicians is unlike having it done by your specialist like I did, you are having it done by someone who does this same test all day every day, and in the case of this, dealing with a lot of people who are freaking out and making things difficult. Yes they should be more compassionate about it, its not a nice test and a lot of the problem with it, for me at least, was not knowing exactly what to expect and getting freaked out that I might vomit. Keep in mind though it gets old really fast for them, and sometimes they will get impatient, in fact as terrible as it sounds I have had nurse friends of mine say that its quite common for patients to get treated worse the worse you act, if you are freaking out and being irrational you're not going to get the response you need from the technician. If they see you are at least making an effort to try and relax yourself they will in general be a lot more forgiving and gentle. Don't forget these are humans too, its not nice for them having to deal with hysterical patients especially in cases like these where they can't offer anything to help them to relax and the patients aren't trying to keep themselves calm.

I cannot stress enough how important diaphragmatic breathing is during this test especially during the insertion because it affects your sympathetic nervous system and helps you to relax, your heart might still be racing a mile an hour, and you might still feel terrified but it will physically relax your muscles which will make it easier to pass the tube through.

I hate to be the bad guy here, and I certainly don't want to make you feel worse than you already do, I've been following your story on these forums its obvious you've been turfed around a lot and you're not getting any progress. Do you think that your attitude or state of mind at appointments might be clouding what is going on? What I mean is are you going into these things expecting the worse i.e. expecting that a new specialist is going to be mean or try to tell you something that you know its not? Because people are going to naturally be defensive if they feel you've come in with a chip on your shoulder.

Its also really important to keep in mind that even doctors who work at the same practice will not have the exact same knowledge about you and they will probably all initially come to different conclusions about your diagnosis until they have more information, so while something might seem totally obvious to you, there could be some symptom or something which happens so often you just don't even think to mention it now that could be what the new dr is missing to make a better diagnosis.

Sorry to sound so negative, I really do feel for you because I'm going through this sort of thing too and in the past have done everything I've just said, and it really does have a huge impact on how people will respond to you. Its not that you or I or any of us are bad people when we get upset or frustrated because I think with what we are all having to deal with its totally understandable, its that the medical staff we have to deal with are there to do a specific job and it all comes down to each individual persons nature as to how they will react to you.

At the end of the day you're the patient, you're suffering and they know that, but you don't know what their story is or whats going on with them and a bit of compassion from you might garner a bit of compassion from them too. Or they might just be jerks in which case you should just let that gag reflex do what it does best and leave them to clean up the mess.

Well first off I wasn't in hysterics I was basically in the mood anyone would be in when they are about to have a tube shoved up their nose and down their throat. When I asked simple questions like about the nasal anesthetic or about the vomiting she was dismissive and cold. I'm all for compassion for others but quit frankly I don't care what she had going on that day I was about to have a terrifying test done to me anyways and there is no excuse to be rude to a patient. I work in personal injury law I have to hear people complain about some of the most tiny injuries even telling me I don't know what it's like to be in pain and I still listen to them and am kind even though I feel like saying I'm in worse shape then you are at times.

I don't have a chip on my shoulder I unfourtantly have an autoimmune disease that many Drs dont take seriously because the lab results are not always 100 percent concrete. Many Drs are intimidated by what they don't understand which leads them to be dismissive towards the patient.

Fact is there are a lot of crappy Drs out there just like there are a lot of crappy lawyers or waitresses or whatever the profession. I have met some amazing docs though so don't get me wrong I do not dislike them but this lady took the cake. This wasn't my new gastro either I really like my new gastro she is a sweet heart this was another doc who performed the test at the office.

My throat has been in pain since the procedure and I've been short of breathe I may have to get checked out because she was so rough with that tube I wouldn't be surprised if she damaged something.

There was no need to get defensive, I wasn't accusing you of being hysterical at all I was merely asking questions. If you note most of what I said was in support.

Hopefully you can find someone who can get this test done for you.

Wasn't really defensive just wanted to point out I wasn't freaking out, you did mention about how dealing with patients who are freaking out gets old for them quick. Also it's not really my additude I just have a lot of autoimmune stuff going on that many dr's do not understand making it very difficult and frustrating for me. Sorry but you kind of did sound negative like you said although I'm sure that wasn't your intention so really I'm not offended at all so please don't think that. This has just been a very difficult time for me, so maybe I am alittle more sensitive I don't know. Anyways I just found out through labs my immune system is attacking my thyroid. I am wondering if this is causing my throat issues. This was after being told two weeks ago that my blood work was fine. Thankfully my dr went back and reviewed it again.

Post Edited (LAWCHICK) : 10/7/2015 12:57:00 AM (GMT-6)

Posted 10/7/2015 4:00 PM (GMT 0)
Hi Guys, our focus is to help each other feel better. You all become my friends thru this forum. Thank you for your ideas and insight.

I hope all will be will wih you LAWCHICK. I had my scope/camera from nose to throat the other day. My ENT doctor does that every year as my routine check but this time was looking in deeper down to the throat due to my GERD episode. It was not an easy situation. He did use anesthetic spray on my nose and my throat. One of the pleasant doctor left so far. The rest were just doing it for the moolah. The test results were all great. My throat was healing well. Lawhick I have thyroid surgery years back and taking thyroid meds/levothroxine. Your throat probably is a combination of the irritant tube put in and your reflux. Please try to get the Aloe Juice (Lily of the desert) inner filet /organic. I'm in Southern California and getting that from Sprouts farmers market. Also for some reasons, manuka honey helped heal my throat too.
Nellie5, keep us posted with son's check up.
My prayers for quick recovery to all of you my friends.
God bless.
Posted 10/7/2015 5:32 PM (GMT 0)

Nellie5 said...
Hey LAWCHICK,
I am so sorry that happened to you. My son had a similar experience with the ph test. He is scheduled to do his manometry next week at Lennox Hill Hospital. I say this because I believe you are in NY as well. The doctor scheduled to do the test answered his own phone when I called to make the appointment. He was an absolute sweetheart..I just hope he is good at manometry as well. He assured me he would use an anesthetic spray in my son's nose before he started ( they didn't for the ph and it was an issue). My son's gastro also recommended using afrin spray right before as well, as this enlarges the nasal passages.I will post after Tuesday 10/13 to let you know if my son is able to do it.He has very bad anxiety to start with, so if it can be done then you may want this Doctor's name.

Good luck with your sons test. Yes I could definitely go to Lenox Hill Hospital. I think I could do the test, ive had lots of test done through my life but the person performing the test i think was the main issue. I still don't understand what her big deal was about using a nasal anesthetic but that does go along with her absolute lack of compassion that I could immediately tell she had. Keep us posted on how your son is doing.
Posted 10/7/2015 5:38 PM (GMT 0)

Tu Wang said...
Hi Guys, our focus is to help each other feel better. You all become my friends thru this forum. Thank you for your ideas and insight.

I hope all will be will wih you LAWCHICK. I had my scope/camera from nose to throat the other day. My ENT doctor does that every year as my routine check but this time was looking in deeper down to the throat due to my GERD episode. It was not an easy situation. He did use anesthetic spray on my nose and my throat. One of the pleasant doctor left so far. The rest were just doing it for the moolah. The test results were all great. My throat was healing well. Lawhick I have thyroid surgery years back and taking thyroid meds/levothroxine. Your throat probably is a combination of the irritant tube put in and your reflux. Please try to get the Aloe Juice (Lily of the desert) inner filet /organic. I'm in Southern California and getting that from Sprouts farmers market. Also for some reasons, manuka honey helped heal my throat too.
Nellie5, keep us posted with son's check up.
My prayers for quick recovery to all of you my friends.
God bless.

Yes I agree I have gotten wonderful support and advice from many members of this forum. I have had that test done at the ENT with the scope it was actually not bad at all for me. Good to hear your throat is healing up. I am getting an ultrasound done to make sure there arnt an growths on my thyroid I just didn't expect this at all because im only 29 but I guess thyroid can get wacky at a young age. I wish I was in southern California now that we are quickly heading into winter in New York.
Posted 10/7/2015 9:26 PM (GMT 0)
My family has a history of Graves disease and Hashimotos, and my cousins who are the latest to have been diagnosed are both in their early 30's, and I believe other family members were around the same age when they started having thyroid issues too. Sometimes the dx is missed because many doctors only order a TSH count, but it's possible to have a normal TSH count with abnormal T3 and/or T4 count so it's important to insist they test all three. I really don't understand why its not the standard practice to do the full panel in the first place.

So great to hear you were able to get the test done, I hope you get some good answers from it.
Posted 10/14/2015 1:03 AM (GMT 0)
LAWCHICK...My son's manometry was a success!He did the test like a Rockstar! The doctor was phenomenal, and the nurse who assisted was great. If you are interested,the doctor is Nicholas Gaultieri and we had the test done at Lennox Hill Hospital. I believe he is also on staff at Mt. Sinai-Beth Israel hospital as well.He is an older gentleman, with a very calm demeanor, also very competent.646-638-1528..FYI ..he answers his own phone, and schedules his own appointments. He is the only one our surgeon refers people to for manometry.I was on the phone with him for 10 minutes, asking about whether or not they use anesthetic/lidocaine for the test, and explaining how my son was not able to do the ph because the nurse was incompetent and they didn't numb his nose/throat first.When he said, "Oh no, I always use lidocaine", I realized he was actually the doctor.I hope he can help you like he did my son.Good luck and I hope you can get some help.
*I just added my email to my profile if you want to contact me about doctors( or anything I can help with) in the future. I have spent the last year researching the hell out of specialists/procedures in NY!

Post Edited (Nellie5) : 10/13/2015 7:22:52 PM (GMT-6)

Posted 10/15/2015 10:51 PM (GMT 0)

Nellie5 said...
LAWCHICK...My son's manometry was a success!He did the test like a Rockstar! The doctor was phenomenal, and the nurse who assisted was great. If you are interested,the doctor is Nicholas Gaultieri and we had the test done at Lennox Hill Hospital. I believe he is also on staff at Mt. Sinai-Beth Israel hospital as well.He is an older gentleman, with a very calm demeanor, also very competent.646-638-1528..FYI ..he answers his own phone, and schedules his own appointments. He is the only one our surgeon refers people to for manometry.I was on the phone with him for 10 minutes, asking about whether or not they use anesthetic/lidocaine for the test, and explaining how my son was not able to do the ph because the nurse was incompetent and they didn't numb his nose/throat first.When he said, "Oh no, I always use lidocaine", I realized he was actually the doctor.I hope he can help you like he did my son.Good luck and I hope you can get some help.
*I just added my email to my profile if you want to contact me about doctors( or anything I can help with) in the future. I have spent the last year researching the hell out of specialists/procedures in NY!

Thank you so much for that information. My medical status has taken another turn I found out that my thyroid is swollen and I have something called thyroiditis. Apparently this condition can cause swallowing problems. Right now that test is off and I need treatment to try to get my thyroid uninflammed. I will defiantly keep this info about this dr though in case I do need to have this test done.

I'm happy to hear your sons test went well, this must be so hard on him. Good to hear about the lidocaine being used, I haven't really heard of it not being used from what I read the dr I had was rather barbaric.
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