Posted 6/18/2019 2:28 PM (GMT 0)
I'm 3 days away from Linx surgery and I'm glad I found some of the threads on this site, particularly, this one:
https://www.healingwell.com/community/default.aspx?f=45&m=3807661
Lots of good information in there, especially what to expect during recovery.
I sought out surgery for GERD for 2 reasons. The first was more of a long term medical reason. Back in 2009, I was diagnosed with IgA Nephropathy (Berger's disease). Its a condition where your body dumps protein into your kidneys continuously and damages the tissue, ultimately leading to kidney failure long term. There is no cure. I have a very mild case thankfully, and a very light dose of lisinopril daily keeps it from progressing further. Aside from the medication and annual urine and blood tests, I don't know the condition exists, and I live my life. My nephrologist however, would like me to get off of the daily PPIs that I take for acid reflux, believing that they are not good for kidney function long term . I have tried all classes of the reflux drugs and only the PPIs work.
The second reason I am considering the surgery is the same for most people. The reflux started about 10 years ago, and has been getting progressively worse. I'm 45 now, and while a single 20mg omeperazole usually handles the reflux, I have been having more frequent bouts of night time reflux, including aspirating it in my sleep. Some of you know what that's like. Horrible experience.
I fought with the insurance company to get this approved, being denied 3x and having an independent review finally overturn the insurance, forcing them to pay. It was during that process that I saw the results of my Bravo study - 14 and under on the scale is considered normal, mine came back at 57. Being off the PPIs for that study was hell.
For those of you have had the Linx surgery, would you still recommend it? What have been some of the longest term issues you've had to deal with? After reading the above thread, I was seriously reconsidering this whole thing. The stories of disphagia, even after several months, not being able to eat "normally", etc. did not sound like a trip I was wanting to take.