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Secondary Osteoporosis - Age 25 - T-Score -5.0 - NEW DXA Update

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Posted 4/14/2011 12:44 PM (GMT 0)
Hello there,
I'm Mohamed & I've 25 years old.
I've Ulcerative Colitis and I took for it Prednison for over two years with dosage between 15mg and 60mg without Bones Supplements like calcium or Bone Bone Builders which caused me Osteoporosis....

First DXA on 25Dec, 2010:
Osteoporosis overall %44 in the spine with T-score between (-4.3 and -5.0) and %41 in the hip between (-3.4 and -4.1).

Second DXA on 11Jul, 2011
Osteoporosis overall %34 in the spine with T-score between (-3.6 and -4.4) and %39 in the hip between (-3.2 and -4.1).
BMD increased by %13 in the spine and decreased by %0.9 in the hip....

I'm taking now these medicines and supplements:
- Cal-Mag Supplement((Calcium 665 + Magnesium 540)) Twice daily....
- Ostoval Supplement((Calcium Phosphate 1700mg equivalent to Calcium elemental 500mg + Vitamin D3 Cholecalciferol 400UI + Vitamin C 60mg + Vitamin B6 Pyridoxine Hcl 2mg + Vitamin K1 100mcg + Boron 1.5mg)) Twice Daily....
- One Alfa 0.5 microgram Supplement((Vitamin D3 Hydroxyvitamin )) Twice Daily....
- Protelos daily....

I'm taking for Ulcerative Colitis:
Pentasa 500mg 4Tablets twice daily.
Pentasa Suppository 1g twice daily.
Vitamin K1 10mg three times daily.
Folic Acid.

Calcium and Vitamin D tests are normal....

I'm wearing a brice for lumbar spine for 6months, three months with prednison and the last three months without it....
My first question is How.... long does it take to don't wear it any more? Answered some how
My second question is.... How long does it take to recover my bones BMD? Answered
My third question is.... Why there's a major increase in the spine while it's not good for the hip and worse for the wrest? Not Answered


You may download my last X-rays from here http://www.megaupload.com/?d=ZBWFET6A

Thanks
Mohamed

Post Edited (elbarck) : 7/17/2011 7:16:09 PM (GMT-6)

Posted 4/14/2011 5:09 PM (GMT 0)
Your spine may or may not recalcify, so your primary goal now has to be to prevent further decalcification. The best way to do that is to avoid steroids, although I definitely know that may not be possible. If you have to be on steroids again, be sure to take large doses of calcium with vitamin D, and consider a bone-building drug such as Fosamax.

I'm sorry that I have no thoughts about the back brace; you should discuss that with your doctor. Remember that we are not doctors or health care professionals here, merely people living with these diseases.
Posted 4/14/2011 6:11 PM (GMT 0)
What ever happens I'll not take that poison called prednison again.... Now I'm taking Protelos for almost three months ((28+28+26 Days)) without Setroid.

What do you mean of my spine may or not recalcify, I don't understand it, is it bad or good thing :).

The main problem is the doctors don't talk and when it comes to Ulcerative Colitis Side Effects they stop thinking.... That why I asked my two questions....
Posted 4/14/2011 9:47 PM (GMT 0)
What is meant by "recalcify"? That is when the calcium goes back into bones that have lost calcium. You have been given calcium supplements hoping that the extra calcium will go back into the spine and hips.

Have your doctors suggested medicines like Actonel, Fosomax, Boniva or Reclast? These are medicines classified as Bisphosphonates and are prescribed for osteoporosis. My mother has osteoporosis and ilcerative colitis. She takes Actonel and it does not have any negative effect on her ulcerative colitis.

Also, if you begin experiencing more diarrhea than normal, you might want to check the amount of magnesium you are taking. Too much magnesium can produce diarrhea.

I hope this has helped you with your questions.
Posted 4/15/2011 2:16 AM (GMT 0)
Sometimes even with medications to help put calcium back into bones, the osteoporosis doesn't go away. I know Protelos is intended to help your bones harden up by replacing the calcium in them, but don't know much about that drug because it is not used in the US.

Recalcification is the process of new bone being formed and calcium being returned to the bones where the osteoporosis is. Osteoporosis is caused by decalcification, or loss of calcium from the bone. Recalcification is when the body returns calcium to the bones.
Posted 4/15/2011 6:04 AM (GMT 0)
@ides.... Thanks for your reply, I'm taking Protelos instead of Bisphosphonates because of its side effects that I can't manage if it's happened. Protelos is a strontium ranelate, and it builds not less than %4 Yearly. I've no diarrhea yet :D, but I'm bleeding even though it's one time daily & I'm taking about 40mg of Vitamin K1.

@Judy2.... I appreciate your help and concerns, But how I know if calcium going back into the bones or not.

Thank you all for your caring....

Yours,
Mohamed
Posted 4/15/2011 9:41 PM (GMT 0)
You will know if the calcium is being absorbed into the bones by having a repeat scan for osteoporosis. Here in the US they are called DEXA scans. I would guess that they will repeat yours from 6 months to one year after you began treatment.
Posted 4/16/2011 8:24 AM (GMT 0)
@Ides, So I need to do the DEXA scan again after six months of treatment, this means after another three months.

Post Edited (elbarck) : 4/16/2011 2:55:12 AM (GMT-6)

Posted 4/17/2011 5:33 PM (GMT 0)
elbarck

Welcome to HealingWell.  Long use of prednisone could result in steroid dependency and bone denisity loss. I understand your frustration with the use of this medication.  However there are some people that need to use this medicaiton long term.

I think you have received some great info from Judy and Ides. A bone density test uses X-rays to measure how many grams of calcium and other bone minerals are packed into a segment of bone. A bone density test is a fairly accurate predictor of your risk of fracture.

  • Doctors use bone dencity testing to monitor osteoporosis treatment.

    • I wish you luck and keep on talking with us.

    Kindly,

    Kitt

    Posted 4/18/2011 6:34 PM (GMT 0)
    @stkitt yes they did, Thanks for them.
    about Prednison, when you take it for long-term, you should at least use Bone Builder to less the bone loss which wasn't happened with me :)....

    Thank you all....
    Mohamed
    Posted 7/15/2011 2:50 AM (GMT 0)
    Hi,
    I just wanted to say I did another DXA.... It showed an increase in spine by %10 in six months with T-Score between -3.6 & -4.4 ((it could be between -3.7 & -4.5 because of the Protelos affect on the scan by %50 over three years, so it's by 0.05 on that scan)) .... There was no major increase on the hip and even it was worse for the wrest any ideas why is that?....
    Posted 7/17/2011 3:09 PM (GMT 0)
    elbarck

    Hello, it is good to hear from you. I believe your last scan report = Prednison caused me Osteoporosis with %44 in the spine with T-score between -4.3 and -5.0 and %41 in the hip between -3.4 and -4.1.

    I am going to post a link that may help explain your readings as I am not familiar with how the scores work from any personal knowledge :

    http://www.osteopenia3.com/dexascan.html
    Posted 7/18/2011 12:36 AM (GMT 0)
    Hey stkitt, Thanks for your reply :)....

    I did a search and I found this link
    http://www.bonehealthforlife.org.au/health-professionals/investigations/dxa
    Posted 9/26/2011 7:22 PM (GMT 0)
    Elbarck, I am exactly in your situation. I have been on and off prednisone for over 5 years now for CD/Colitis. I was on Fosamax, but I was missing doses, so now after some back and forth with doctor, I have decided to go on Actonel, I took the first dose yesterday.

    I may have to go FORTEO eventually, but I am putting that decision off for sometime now. Also, I am pred dependent even though I am on biologics (enberel, remicade, etc) . So this is going to be tough one, I am also young, but not 25. My doc told me "I have the bones of an eighty year old lady." So there you have it.

    So as others have suggested you might want to look into bisphosphonates (Actonel, Fosamax, Boniva, etc).

    Good luck and keep us posted. Let me know if I can provide more information
    Posted 9/26/2011 7:41 PM (GMT 0)

    Iram said...
    So this is going to be tough one, I am also young, but not 25. My doc told me "I have the bones of an eighty year old lady." So there you have it.

    Oh, I'm so sorry for you.... You'll be better soon :)....

    I'm taking Strontium Ranelate (Protelos), it's better than Bisphosphonates especially for us who have IBD problems in addition to it encourages building new fresh bones....

    I'm going to do another DXA on next December, I hope my T-Score becomes more better then....

    Keep me posted about your situation....

    Yours,
    Mohamed
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