Hello everyone, I am new to these forum/blogging sites but feel I may get used to them very quickly! My dear adorable mother has just been diagnosed with systemic scleroderma,it is very rare and not even a category heading for it! It is a horrible disease and I would love as much information as possible for her. Mum is currently very ill,there is no cure but it can be suppressed, mum is on week 3 of methotrexate and boy is she poorly,it breaks my heart,I know it is trial and error and a long journey,especially for a 72 year old,there is no cure but I know with determination and positive thinking we can get a more manageable life for her. I am very curious about
this methotrexate as everyone seems to think it is the most evil of drugs and yet so many people are on it for different reasons. Mum is sick on the second day but not quite so sick towards the end of the week,she takes it on a Monday morning,I think I may advise her to take it in the evening,although she only sleeps 2 hours at a time with her pain,maybe it would keep her awake even more
any feedback from you wonderful members would be great. A rare disease but mums main point of contact is with a rheumatologist,he seems to be the one with the most training with scleroderma,her first follow up since leaving hospital 3 weeks ago is on the 13th of November,feels like a lifetime but I guess they need to see enough weeks with the medication in her system. Thanks everyone love Nikki.
Post Edited By Moderator (stkitt) : 10/27/2013 9:21:56 AM (GMT-6)