Anyone else with a sulfite intolerance? I would love to hear from you!

alcie conventional foods farmed with toxic chemicals just kills me, i cant process all the chemicals like miracle grows and nitrates that the food sucks up from the toxic soil,. so my processing problem wont allow for toxic chemicals which is in all conventional foods,.all conventional foods make me sick, i did the journal for 20 years ,didnt matter what i ate, if it was conventional toxic grown it made me sick. all organicf foods i can tolerate nicely with no issues at all,. also gluten is a bad bacteria. gluten is the same in all the wheat barely s and rye,. its complete cross contamination,these crops are just feet from eachother,so i dont believe there are different gluten bateria,its all the same and they share the croos contamination,lie the oats they farm along side the wheat barely and rye. its worth looking into organic foods,why ingect toxic chemicals, thats your choice. or you may want to read into chemical toxic free organic foods.. was the best tratment for people who have processing isuues,it put the least amount of tax on the body and i need all the help i can get. organics is the future ,over the next 10 years i belive everybody whos educated on it will switch over,. also the food manufacturers were already warned that if they continue to farm with the toxic chemicals that they now know can give you cancers and other severe illnesses that its no far off from what happened to the tobacco company years ago with the big lawsuit they had for poisioning people. yep these are facts im sharing not opinion. conventional means toxic,. organic means not toxic . i dont any gas with organic foods,zero . acid reflux that i had was my body secreting acids to help process the toxins,once i removed the toxins fro my diet acid reflux is completely gone. sulfite oxidase deficiency is not an allergy at all, thats laymans terms . there is an allergic reaction that secrets histamine,but not an allergy at all. the proper dr who knows about this could explain more properly,but if the drs says its an allergy i would run to a new dr because hes very wrong to say that. allergys dont kill you ,and give you great deficiencies in the body. complecated yes. let me try to say like this,. sulfite sensitivity is an accumaltive problem,you can process properly so these toxins accumalate in the organs and tissues of the body, in time the reason why sensitivty can go from problems to life threatning is becasue of the accumalation problem . as these toxic accumalte in time,there comes a point at which the body cant store any more toxins and the next toxic sulfite otr sulfur that you ingest the body cant store,it becomes saturated and as a self defense mechanism it shuts down,ex going into shock. so best not to eat conventioan toxins and accumalte these sulfites as the wreck havoc on your body and mind,. so its an accumaltive problem from the lack of processing,. no allergy out there has an accumaltive problem,that what sets my condition from a common allergy, where you were exposed to something they gave you a reaction but nothing to do with your past, sufite problems has everything to do with the past because you accumalte and the body in time gets saturated and shuts down ..

not to mention all the labratory test that i run on myself to foloow my process,most drs are not even aware of the tests that i run, and they will all tell you there is no treatment,wrong again,there is not cure at the time,but treatment is balancing out the imbalances causes my the dulfite oxidase deficiency,and it works amazingly,its night and day compared if i stop the balancing the imbalnces. but insurances wont cover for this, and if they cant charge your insurence they will say theres no treatment when im living proof of that. .my dr would confirm my amazing results. i will live much better and longer with the treatments...

alcie ,40 years of misdiagnoses by top drs who never made any sense had forced me to become my own dr. i found the problem myself few years ago, its took time for me the find the usa leading specialsit on the subject, dr rusel cancelari of southampton new york to confirm me finding with my overwhelming evident of my sulfite oxidae deficiency,. weve even gone down the roa of gene testing,which gets bit more complicated,.but it is an inherited condition, and again dr russel cancelari believes my condition is not rare at all just rare to diagnos because the dr are clueless and not taught what signs to look for, never mind what tests that should be done to piece the puzzle together..if they new what to look for they would see its not rare at all. so i am a rare lucky one to find my problem myself,thats very rae,and actually im the only one i know who identified the sulfite oxidase deficiency,.and i can surely help others which ive had, buttheres always the same problem, they run back tothere drs to discuss what theyve found and its the same drs who misdiagnosed them to begin with becasue they are clueless on the subject, not to knock the drs, but they dont teach onj the subject in medcial school in the usa,. if you want to help you will have to help yourself as i have. any drs out there who like to go head to head with me im ready for someone teach me new on the subject, but i been through this already,they learn much more from me then i can from them. ive read it all and live with it everyday..

I know that the yolk and whites contain sulfur. Do boiled egg whites contain natural sulfites? I know that the yolk contains them in addition to sulfur, and I am pretty sure that the white does not. Undercooked egg white make me sick (histamine intolerance issue). However overcooked whites make me sick also. hydrogen sulfide maybe? I think that hydrogen sulfide increases when an egg is overcooked.

thanks. My main protein source right now is boiled egg whites. The amines in meat I am so sensitive to. I can't eat yolks (sulfites). I am currently seeing doctors about this. I have pseudo-allergies and such. I hard boil my eggs and throw away the yolk, and probably over cooked them being paranoid of undercooked eggs (histamine intolerance). I never hear anyone complain about sulfites in egg whites. I was just checkin. thank you. I have never heard of anyone having sulfite reactions to boiled egg whites.

Post Edited (marry the night) : 2/18/2012 6:41:33 PM (GMT-7)

Hi marry.

I think egg whites may have a very small amount of sulfite.  Cooking is part of the problem.  It allows sulfur in the egg to be oxygenated into sulfite.  Rick's free online book is lots more informative. http://www.learningtarget.com/nosulfites/index.htm  There's a discussion of eggs in the book.

Oils don't seem to have sulfite, according to the tables in Rick's printed book.

Hi Janey, so glad you found the forum. It's too bad you can't get the specialist you need. I can't imagine the doctor not at least sending you to a hematologist (oncologist here). Were not doctors, only patients, so don't take anything here for medical advice. We only know what's worked for us.

Look again at Rick's book. On the links page you can find House Mouse's link. She had a nearly lethal problem with detergents, shampoos and skin products. I have to double rinse all my laundry and only use "free and clear" detergents. I avoid fabric softeners, use only the "free and clear" ones. I use hypo-allergenic shampoo and facial soaps, usually Neutrogena brand.

Run away from apple cider vinegar! It's loaded with sulfite. Rice vinegar is OK. If you don't have a gastric reflux problem, why are you using this?

You may find your specific triggers if you keep a really good food journal. Write in it the time, everything you eat or drink, your medicines, what detergents, soaps and shampoos you use and your reactions. With hives, your reaction could be something you ate or used the day before. Migraine sufferers can have a reaction 2 days later.

You may find your problem is not sulfite at all, or you may find you have more than one trigger.

Was the "alcohol" wine or beer or in a citrus mixer? That could point to sulfite.

Just wanted to send this link - Margaret Moss Uk dietician and some of her theories about sulphite sensitivity

http://www.foodsmatter.com/allergy_intolerance/sulphites/articles/sulphates_sulphites.html

Thanks for the tips alcie - really appreciate your lead on these things - im very new to forums - so any help is appreciated!

Yes - I also thought some of what Margaret said conflicted with other things I had read.  I have just actually spoken to her on the phone - and im only halved convinced I should make an appt withher -I dont want to make anything worse or pay for advice that I could basically find out for myself.  Because im not getting anywhere with my doctor im just so desperate for help or advice.  My experience with alcohol - Wine - always have a reaction 24 hours after consumption - eyes swell/neck/face hives, the same with beer.  I dont tend to drink vodka/gin etc - but if i do have a night out and just drink fruit juice on its own - an orange j20 - next day ihave the same reaction.  When  I completely cut out alcohol my symptoms got so much better - but this is the strange thing - my skin is worst now than it has ever been. And last year I did have wine/beer on a few occasions and didnt react.  In my mind I thought because id detoxed from alcohol this is why i wasnt reacting.  I had 2 glasses of beer on New Years Eve - and 24 hours later had a reaction - but the reaction hasn't disappeard since then - only gotten worse.  Maybe my connection with alcohol  has been a red herring.  It was only through this connection that led me to believe the only thing i could be sensitive to in alcohol is sulphite.  In the UK nearly all wine carries a sulphite warning.  My diet at the moment is very very limited - have cut out sugar, cut down on wheat & dairy but havent completely eliminated.  I've been eating crackers/celery/apples/chicken/banann's/few eggs/some bread/decaffinated coffee and when im really strugglign with my sugar i do have some chocolate - i know this a no go for sulphite sensitive people.   Do you think its possible that people with a very mild sensitivity can consume some sulphite foods regularly but eventually levels build in their system and then they have a reaction? Do you know of anything else in alcohol that can cause a reaction other than sulphites?  Do you buy into the Epsom salt theory or have you heard about this before?  apologies for rambling on and asking so many questions, and thanks again for your responses

Janey, if you make your bread yourself it should be safe, but I react to all store bread unless it's labeled "preservative free." Plain crackers - look at the labels and avoid those with lots of additives. Cutting out bread works well for losing weight, if you happen to need that. Cane sugar is fairly safe, but beet sugar, which is cheaper, has sulfite from bleaching the sugar beets. I don't know what's in an orange j20. Lemon and lime juices are highly sulfited, over 100 ppm. Eggs have natural sulfur. Eat them in moderation, and note reactions!

I've read that lamb and rice are the least likely to be allergenic, and an elimination diet starting with only these was recommended to me by my allergist. (Start with these for 2 weeks, then add one food every few days, depending on how long it takes to start the reaction. My reaction is usually within minutes to a couple hours.)

Since you seem to have a "true allergy" which is severe, be careful if you get to challenge testing. I wish you had a doctor, preferably an allergist, to help you.

It's possible, even likely to have an allergy or sensitivity to wheat. New allergies can start at any time. Celiac disease, where the patient doesn't tolerate any gluten can crop up any time too. I don't have a true allergy to wheat but I've gotten somewhat sensitive to it. Getting the preservative-free bread and repackaging it into 4-slice packets and freezing it helps me not eat so much, but it's available for my husband to make toast or a sandwich for himself.

Thanks for the link. It's interesting, but I wouldn't spend money with any of these people until you've read a lot more and done a lot of journaling to make sure of your sensitivities. I'm leery of "leaky gut." I have only heard of it from alternative medical providers. I worry it may be just the fad du jour, until I see an actual study done by qualified researchers. The same goes for yeast/candida. While you could have a problem with yeast if you take a lot of antibiotics, I don't see any reproducible research confirming it has such widespread pathogenesis as some claim. But then I don't follow much in the way of herbal medicine either.

Eweieie, welcome to the forum.

I feel sorry for you having such an extreme reaction. I can't imagine what that feels like. I am lucky to only have the sensitivity, although I get tachycardia and have had to have chemical cardioversion for it. (stops the heart for a few seconds, hopefully heart resets itself)

Thanks for the note on thyroid meds. I was put on a couple of different types in the past and didn't tolerate them, thought it was the thyroid med. That was before I found out my sulfite intolerance. Since I don't need it now, I haven't thought back to that intolerance.

Some other people who get the "true allergic reaction cet relief with antihistamine tablets, not liquids or liquigels. At least these don't have an apprecible amount of sulfite. I use tablet Benadryl and Alavert with no problems.

I hope you have found Ricks No Sulfites website (link is a few posts up) with the book explaining how these chemicals got into our foods, what names they hide under.

Janey,
Diazepam is a tranquilizer only in higher doses. At 1 or 2 mg it is a terrific muscle relaxant. So sorry your primary? doc doesn't know about food sensitivities. You are right; they can cause late reactions. Skin reactions take a while to pop out. Rick points out that migraines can occur 2 days later. I had a serious reaction to albuterol 6-8 hours after inhaler use.

I think you are right in trying to solve the problem yourself. I had to. My allergist helped me with the idea of the food journal and directions for doing a food challenge, but I went in with a suspicion of sulfite. I had made wine in the past, had drunk it with no reaction, then sulfited a batch and reacted strongly. That was a pretty big clue, and my allergist agreed.

Safe vegetables, hmmm. It's going to be pretty boring eating, but it's worth it to get rid of the rashes. Rice is supposed to be safe unless you are asian and have eaten it a lot. Allergy to rice is known in Asia. Pears are supposed to be safe. I think you might be OK with a week on those three, then add one vegetable every 3 days or more. Longer time is better for you with the delayed reaction. You might try potato, but fresh baked only. Then maybe green beans or peas, sweet potato - choose all foods that are listed as low in sulfite to start - avoid onion family. No seasonings except salt. Pepper is sulfited in the roasting of the peppercorns.

I did a brief internet search for allergy-free foods, but mostly came up with ads for selling you foods - all of which would have sulfites. Maybe you can search for some good sites and post ones that aren't selling stuff.

Also try to find some safe skin products, avoiding as much as you can and rinse, rinse, rinse your skin, hair and laundry. You don't have well water with iron, do you? There is often sulfur in coal beds. This is going to be important since you have a skin reaction.

I worked as an ICU technician, but that was way back before kids - 40 years ago. I worked as a pharmacutical company technician before that. At least I have a science education so I can read the easy stuff.

I have no experience with actually doing an elimination diet, just making guesses. I had a clue because of my immediate reaction, so I just kept a journal and avoided high sulfite foods.

My allergist has me trying tobuild up tolerance to cashews and sunflower seeds. I eat 1/2 cashew and a nibble of a sunflower seed daily. In a couple of weeks I will start raising the dose until I get to a tolerance (hopefully) for a moderate serving.

Definitely keep us informed as to your progress! Your results will help others.