Hello all! I feel like I finally found a spot where I will be understood! Most people don't understand how serious hives can get and think I'm just a nerve case when I tell them about it.
I have had hives for almost 3 years. They started when I was 33 and after I had been in private practice for 2 years. I am a criminal defense attorney and it was an extremely stressful time for me. I am now convinced that the stress somehow messed me up - brought out something I was predisposed to develop.
My hives started with itchy palms then spread up the arms to the whole body. The hives are triggered by: nothing, heat, sunlight, stress, exercise, alcohol, ibuprofen, friction and sleep (increased body temperature?) I have been to several regular doctors, two dermatologists, an autoimmune guy and a thyroid doctor. I have had a thyroid test and the test where they take your blood, make a serum of it and inject it back into you to see if you are allergic to yourself (autologous serum skin test). They say do not have the autoimmune version or the thyroid version.
I will say that my cousin has suffered from this too. But hers has come and gone. I believe there has to be some sort of hereditary effect. Our grandmother had rheumatoid arthritis that confined her to a wheelchair.
Here is what I know:
Prednisone did not work.
Doxepin helped but depressed me and contribued to a 25lb weight gain. (it is hard to not be stressed out when your meds make you drowsy, cause you to crave sweets and you are getting more and more overweight!) After a year on Doxepin, I was almost 200lbs, sobbing at my desk at work (I am so not a crier) and was ready to walk out on my career. My doctor at the time told me I just needed to exercise portion control. I got a new doctor.
The new doctor put me on Zyrtec. It helps to the extent that the hives are still there on a daily basis but not readily noticible to others to the extent that I hardly get them on my face now unless I work out. There has also been no weight gain/ depression side effects. I have been able to lose 15lbs and am currently working on the remaining weight with Nutrisystem and at-home workouts (going to the gym is embarrasing since exercise gives me a hivey face). The depression is gone but a took a few months of 'forgiving' myself (not working too hard, going to bed when I was tired no matter what time it was) to get balanced back out.
Doctors don't know jack.
I have been surfing several websites and the themes I've seen are:
A. stress = hives (it messes up your immune system, causes allergies, thyroid, etc.) (I have seen several different stories - hives break out as a doctor does his residency, as someone is buying a house, after a promotion, etc) ,
B. most people with chronic hives have not found a cure (Lord, that is hard for me to type).
Is there a lesson in all this? Take care of yourself. I know it is impossible to avoid stress - I've stood in front of numerous jurys and had to explain why I was covered in hives - but do what you can. Adopt a pet. Don't feel guilty about holing up with the t.v. if you need to escape. Always push your doctors - though stress is a huge contributor it is not necessarily the cause - only an aggravator.
So I am going to a new doctor tomorrow. A 'natural medical' or homeopathic doctor. I decided to do this after reading on another cite about another sufferer getting relief from acupuncture. I never thought I would be into acupuncture but if he recommends it, I'll tell him to bring on the needles - anything to get over this. I will let you know how it goes.
Pray for me - I have a two week long jury trial in May.
Super Hive Girl