Posted 5/14/2017 12:52 PM (GMT 0)
Hello,
My daughter is 9 years old. When she was born she experienced "respiratory distress" and stayed in the NICU for three days until her breathing normalized. She had a very healthy toddlerhood through age 7...when she started having terrible year round allergies (not food).
She has been on every allergy medication and every type of nasal spray. Nothing has worked for her. Allergist referred us to an ENT who examined her and was VERY surprised to see nasal polyps which were moderate to severe in size.
He recommended we get a sweat test for CF b/c polyps are extremely rare in children under the age of 10 (unless you are a child with CF). We have appointment for May 23 at John Hopkins.
She snores, is constantly dizzy, complains of headaches everyday, she can't breathe, breathes out of her mouth, etc. Her stools are very dense and look like a bunch of small balls clumped together. She mentions that her arms feel week.
She was especially sick last so I took her to her general doctor who heard wheezing in her right lung and gave her an inhaler.
I was very skeptical about a possible CF diagnosis but then I read about "atypical CF".
Any thoughts are appreciated!
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