I am an Alpha-Gal, well I have been diagnosed with Alpha-Gal. It all started when I woke at 4 am with hives all over my body and ended up in the ER with Anniphylaxis. My primary care physician tested me for every allergy she could think of...all negative. After several episodes I had a blood test called IgG which showed that I was allergic to Beef. A week later after avoiding beef, I had another reaction again in the middle of the night just as bad but instead used an epi-pen which had been perscribed by an allergist and the symptoms subsided, I had eaten Pork sausage the evening before.
While reasearching the beef allergy I had stumbed upon a Website that indicated that beef allergies had been connected to tick bites and that the symptoms had been delayed by as many as 4 to 8 hours after consuming the meat. The fit was nearly perfect...I had been bitten by nearly 30 ticks and seed ticks about 3 weeks prior to my first reaction. I printed my findings and went to my Primary care physician and asked to be sent to an allergist who was a specialist. The specialist had heard of this allergy and had 2 other patients with the allergy. He did skin pricks for Beef, Pork and Lamb and the reactions while not extremely significant (less than a quarter of an inch)were positive (this is common with Alpha-
gal. The Allergist then sent me for an IgE blood test. It was positive confirming Alpha-Gal. It is my understanding now that I am to be an Involuntary Vegetarian of sorts as I can have Fish and Fowl to eat but it is recommended that I do not have Mammal meat, this includes wild as well as domesticated mammals. (ie. Beef, Pork, Lamb, Deer, Bear, Dog, Cat, Rabbit, Squirrel,even Kangaroo...anything with four legs and fur)
This may not help everyone who has posted here but if you are an outdoors person and if you have been bitten by ticks, seed tick or chiggers(which are esentially nymph ticks)...you could also be an Alpha-Gal Girl or Guy. Very few are aware of this disorder because meat allergies have always been so rare. I have started a website to try and inform those affected by this Allergy and those looking for answers as well I intend to try and get this info out to Family Physicians and Allergists, EMT's and First responders. If you would like to entertain this idea I welcome you to visit and check out the links on the link page to research and other information regarding these findings. or Google "Tick Bite Meat Allergy". You will find several news reports videos and articles. The University of Virginia is credited with much research on Alpha Gal be sure to Google them as well, they acually have a blog dedicated to folks with meat allergies.
My site is TickTalkAllergy.com, it is still under construction but you can access it and comment on the blog there. If this helps one person discover the reason behind their night time nightmares of uticaria, angioedema, and aniphylaxis and ER visits.
You can also feel free to email me at this site -- info@ TickTalkAllergy.com