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The Spiritual Journey of Family Caregiving

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Alzheimer's Disease
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Posted 1/23/2008 6:33 AM (GMT 0)
Hello Everybody!

For five years I was a professional Family Caregiving Consultant, first with the Alzheimer's Association and then with a state-sponsored caregiver resource center in Santa Cruz, CA (Del Mar Caregiver Resource Center). During that time I worked with family caregivers at every stage of their caregiving experience and wrote a monthly email newsletter sharing advice, resources and insights about the path. Most people came to me seeking practical assistance but -- almost without exception -- eventually the conversation would turn to emotional and spiritual issues coming up along the way.

Hi and Welcome

Please do send an email to the [email protected] and ask for permission to post the links to your resources.......

Thanks for your co operation

..any questions plz email me at addy under my name at side

LYN

Post Edited By Moderator (Howlyncat) : 1/23/2008 3:09:07 PM (GMT-7)

Posted 4/13/2008 8:11 PM (GMT 0)
Mom has had AD since 2000.  In a nursing home since August 2006.  Just told a few weeks ago that they wanted to move her to palliative care; she is losing weight and her appetite.  I am one of 3 siblings.  One lives out of town and visits once or twice a year.  My brother in town, can't deal with this.  So I am the one that does the majority of her care-giving.  I work full time plus, so since August I have tried to see Mom every other weekend.  Late January of 2008 I got the bad respitory flu so I didn't get to see her until March.  Now I am having a hard time to go and see her.  I don't believe she has known me for over a year and in the past 6 months she no longer "lights up" when I come to visit.  Is it wrong for me to not visit so much?  Will I feel guilty later?  Of all her children, for many years and I mean over 20 years, I have given her the most, loved her the most and I don't think I will have any regrets.  Any advise?

Posted 4/14/2008 1:33 PM (GMT 0)
IF you feel in yor heart of hearts you WONT have any regrets then follow your instincts
I personally believe they know the ones that love and care for them or have cared for them
That is my opinion though so like I said you have to follow your instincts on this
You do not want to have to live with the guilt....it never subsides IMHO
Welcome to HW
Let us know how you make out
God bless
LYN
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