Hi,
I've always taken my mom off of medications if I felt she was not getting better from it. I don't think her doctor or any doctor could force someone to stay on a drug if it isn't working out. I've taken my mom off of Namenda many times in the past 2 years but each time I do it she does something that makes me think that she may need it after all. This time she was off of it for 2 days and then one morning after she did #2 in the bathroom I gave her a moist wipe and told her to wipe herself. She kept saying ok ok but got up from the toilet and wiped the walls with it instead. I got scared and put her back on her 10mg dose.
But get this... her mind is getting worse still. Yesterday when I dropped her off at the senior daycare center, a man about her age who works there assisted her inside. The moment my mom saw him she laughed and asked him "where you were last night? You got home late" She has zero comprehension of anything I say to her. Today when I told her I was going to pick up some takeout for lunch she got up from her chair and took down the clock. I asked her what she was doing and she said she was getting the menu for me.
I used to make her recite the alphabet to me daily and now she does it less and less. I also make her write her name and names of our family members. She no longer knows how. She just doodles on the paper and then look around the room. She's hallunciating so bad that I'm embarssed to take her anywhere. Last week she waved at perfect strangers as if they were long lost friends. Whenever she sees babies on TV she waves at them and gets really excited.
I don't know if it's Namenda doing this to her or what? I don't know how long it stays in the system so when she was off of it for 2 days maybe she still had some in her or the withdrawal from it made her worse. I dunno I dunno.
The only good thing that's happened is that she's doing very well physically from the adjustment I made on her Parkinsons's medication. She can get up and sit down without assistance from the car, toilet seat, sofa, etc.
Honestly, if I can choose I would prefer that she was an invalid but mentally alert. At least that way she can follow directions and answer the phone when it rings and talk to people. Am I a terrible daughter?