Spouses of those with early onset

chilkootpass

Regular Member

Joined : May 2006

Posts : 65

Posted 6/29/2007 9:51 AM (GMT 0)

I was hoping to connect with some spouses dealing with all that comes with early onset. Hope to hear from some that have the feeling they are mourning a loss of things. Things you once did, things that you wont ever do, things that you regrect. Thanks Renee

Howlyncat

Elite Member

Joined : Jan 2005

Posts : 24909

Posted 6/29/2007 11:10 AM (GMT 0)

Hi hun I am sure that there will be some input
Mary is dealing with many issues right now as is Padraig

Luvs ya n been missing you
God Bless
Sis

minmark

Regular Member

Joined : Mar 2007

Posts : 182

Posted 6/29/2007 2:23 PM (GMT 0)

What is important is the family support especially the emotional and spiritual support. Make an activity together. You can play the music and dance, walk together in the park. dinner with candlelight, play cards, you can do gardening and from time to time give him memory test and avaluation. You can ask him...What is the date today or say three words and let him repeat it by himself...and many more. You can do a lot of things that you can enjoy together and he'll gonna like it.

chilkootpass

Regular Member

Joined : May 2006

Posts : 65

Posted 6/29/2007 6:11 PM (GMT 0)

thanks for the imput really appreciated. We have been dealing with this for a long time dx 3 years ago. We do allot of what you have suggested. I have I learned to hold onto the simple things in life. But I must admit friends there are days that I jus tsit at the computer and let the tears run... Our families are either dead or very far away, so today I am heading out to the beach to a senior center to talk with a lady there. I will report back thanks for all you support. YOU Are the ones who care..Renee

Howlyncat

Elite Member

Joined : Jan 2005

Posts : 24909

Posted 7/1/2007 11:09 AM (GMT 0)

Renee
I hope you had a great day at the beach and were able to talk with this person

Please do let us know how it goes

I hear ya sis
I sit here and cry over MOm and now Dad with same DD
It hurts so much to see them go this way

He justs constantly says he wants to "die and be with Mom"

Love ya sis
Here for you always you know that

LYN /sis

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