Open main menu
☰
Health Conditions
Allergies
Alzheimer's Disease
Anxiety & Panic Disorders
Arthritis
Breast Cancer
Chronic Illness
Crohn's Disease
Depression
Diabetes
Fibromyalgia
GERD & Acid Reflux
Irritable Bowel Syndrome
Lupus
Lyme Disease
Migraine Headache
Multiple Sclerosis
Prostate Cancer
Ulcerative Colitis
View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders
Bipolar Disorder
Breast Cancer
Chronic Pain
Crohn's Disease
Depression
Diabetes
Fibromyalgia
GERD & Acid Reflux
Hepatitis
Irritable Bowel Syndrome
Lupus
Lyme Disease
Multiple Sclerosis
Ostomies
Prostate Cancer
Rheumatoid Arthritis
Ulcerative Colitis
View Forums A to Z »
Log In
Join Us
Close main menu
×
Home
Health Conditions
All Conditions
Allergies
Alzheimer's Disease
Anxiety & Panic Disorders
Arthritis
Breast Cancer
Chronic Illness
Crohn's Disease
Depression
Diabetes
Fibromyalgia
GERD & Acid Reflux
Irritable Bowel Syndrome
Lupus
Lyme Disease
Migraine Headache
Multiple Sclerosis
Prostate Cancer
Ulcerative Colitis
Support Forums
All Forums
Anxiety & Panic Disorders
Bipolar Disorder
Breast Cancer
Chronic Pain
Crohn's Disease
Depression
Diabetes
Fibromyalgia
GERD & Acid Reflux
Hepatitis
Irritable Bowel Syndrome
Lupus
Lyme Disease
Multiple Sclerosis
Ostomies
Prostate Cancer
Rheumatoid Arthritis
Ulcerative Colitis
Log In
Join Us
Join Us
☰
Forum Home
|
Forum Rules
|
Moderators
|
Active Topics
|
Help
|
Log In
I feel like running away!
Support Forums
>
Anxiety & Panic Disorders
✚ New Topic
✚ Reply
❬ ❬ Previous Thread
|
Next Thread ❭ ❭
deborahscinder
Veteran Member
Joined : Jun 2014
Posts : 1535
Posted 10/10/2014 11:39 AM (GMT 0)
My handicapped son is totally dependant on my husband and myself, lately my husband has been very busy with harvest season and not home much. My son has been getting very nasty with me, hitting and cussing at me all day long cause his dad isnt home. I cannot get him to understand that this kind of behavior is unacceptable. Im so stressed out I can hardly function.
2frogs
Regular Member
Joined : Sep 2014
Posts : 62
Posted 10/10/2014 11:57 AM (GMT 0)
Deborah...I'm so sorry you are having a bad time...I wonder if you are getting any breaks? respite? I don't know the situation you are in but being a carer is really stressful at the best of times and you are only one person and you need down time for your own health as well. I don't know what to tell you but we are here so come here and let it all pour out and it may help some....remember deep breathing exercises as well....hugs to you.
Momtogigiandquinn
Veteran Member
Joined : Aug 2014
Posts : 1148
Posted 10/10/2014 12:05 PM (GMT 0)
Deb,
I can only imagine how difficult it is to take care of a handicapped family member. My great grandmother took care of my severely handicapped uncle until the day she died at the age of 93. But I saw the way that their lives melded together. She really didn't have a life of her own anymore. She had very little time for herself. That has to be a tough way to live sometimes.
I think you are strong and brave in what you do and I wish you the best.
deborahscinder
Veteran Member
Joined : Jun 2014
Posts : 1535
Posted 10/10/2014 12:15 PM (GMT 0)
Thanks friends I really appreciate your kind words. I lean on God for my strenght, I just get so depressed sometimes, and need to vent. I have no one else besides my husband to rant to
Park12
Veteran Member
Joined : Aug 2009
Posts : 2827
Posted 10/10/2014 12:23 PM (GMT 0)
I'm so sorry you're going through this right now Deb. I can even imagine how difficult your situation is. I hope you can get a little time in for yourself to rest up and come back to this situation feeling stronger. Thinking of you.
Rrakkma
Veteran Member
Joined : Aug 2011
Posts : 1319
Posted 10/10/2014 12:25 PM (GMT 0)
Deborah I can understand how hard it is for you and I feel for you really.
Is there any news in finding a person who would love to help you?
I remember you said you asked a couple people around, including your sis, but turned down.
I really hope you manage to get some help so that you can have it a bit easy.
It's really tough, I hope you receive support from family members and/or friends soon <3
You are very strong, I've always believed that.
deborahscinder
Veteran Member
Joined : Jun 2014
Posts : 1535
Posted 10/10/2014 12:31 PM (GMT 0)
My mom and sister never come to my home nor invite us to theirs, it hurts but I have to let it go. The only time they want to come to my house is if I host Thanksgiving or Christmas, otherwise they are MIA ( missing in action). This year I will not be hosting any holidays at my house because I figure if you can't come see me during the whole year and only on holidays because my house is big and I do all the work than forget it.
MeMandy
Regular Member
Joined : Sep 2014
Posts : 69
Posted 10/10/2014 12:39 PM (GMT 0)
Hey Deb, I know exactly how you feel.. I took care of my cousin who is wheelchair bound off and on for 7 years. At times.....well most of the time he was very difficult to handle. Its a mentally stressful job to care for someone especially a loved one under these type of circumstances. Its very important not to wear yourself out. Ask for help.. If there is know one to help at this moment then put in prayer. I hope this situation gets better for you in more ways then one. Stay strong and try to stay positive.
lesweet1971
Veteran Member
Joined : Feb 2014
Posts : 1647
Posted 10/10/2014 12:58 PM (GMT 0)
Deborah-
I remember asking this before but I can't remember- are there any respite programs in your area? When I lived in my small hometown they even had respite care through Easter Seal/Arc & it didn't cost the family. Is your son on disability? Does he have a caseworker or affiliated with any groups around your town? I just can't imagine there isn't some sort of respite care available for you. I know some of the providers traveled 40 minutes to the family. Gave them 4+ hrs/day as needed, for the caregivers respite.
If you want to email me your town/city, I'd be happy to research possibilities and get you numbers. Let me know.
Hugs!!
Lisa
deborahscinder
Veteran Member
Joined : Jun 2014
Posts : 1535
Posted 10/10/2014 1:10 PM (GMT 0)
I had a choice once, I was told I could have someone come into my home and care for him or I could place him in a group home, or I could be his full time care giver and he could stay at home and I would be paid instead of someone else. I never wanted to place my son or have some stranger in my home all the time so I became his full time care giver and because of that Im not able to get respite. I do have a 4 hour break in the mornings because he goes to a local adult program 4 days a week. Believe me I cherish those 4 hrs but usually sleep them away. One week a year he goes to a camp for disabled adults and that give me and my husband a break.
teedaalee
New Member
Joined : Sep 2014
Posts : 13
Posted 10/10/2014 3:25 PM (GMT 0)
Hey Deb,
From the way it sounds you're in a difficult situation. I'm sorry you’re going through all that :(. Have you considered a getaway with your husband? Or if he is busy a getaway for you? It might do you some good to recharge and fill up. Are there things your son likes to do with you? Maybe a change of scenery or mixing up his schedule might help? Hang in there! From the way it sounds you’re a great mom! Wish you well.
teedaalee
Scaredy Cat
Elite Member
Joined : Sep 2006
Posts : 28868
Posted 10/10/2014 4:09 PM (GMT 0)
D.S.
I am sending my support. You are amazing. I can only imagine how exhausted you must feel at times. You work selfLESSly!
Although he may not be able to express it...I know that your son loves and appreciates being at home with you to care for him. He is blessed to have you as his mom.
I think you have made a wise decision regarding the holidays!! Good on you! Take care of yourself, and guard your energy and mental well being.:)
I applaud you in all that you do!
S.C.
Cornell
Veteran Member
Joined : Sep 2014
Posts : 740
Posted 10/10/2014 7:11 PM (GMT 0)
Deb
I want to echo what SC said. It takes a special woman to do what you do!
I hate it that you are not getting treated very good by your son. How's does he behave at his daily adult program? Can your husband talk to him about
this? Unfortunately, I don't know much about
this particular circumstance but there's got be something you can do. You definitely don't deserve that treatment.
Hoping it gets better for you! As always, you are in my prayers!
God bless
Cornell
wearyRAsufferer
Veteran Member
Joined : Mar 2010
Posts : 2955
Posted 10/10/2014 11:11 PM (GMT 0)
Hang in there. It must be very frustrating and hurtful to be treated by your son like that. I'm sure you know deep down he can't help himself and it isn't to be taken personally and then feel guilty for feeling a normal reaction of wanting to just run away. I hope you get some respite. I wish you all the best.
janetlee
Veteran Member
Joined : Mar 2006
Posts : 1986
Posted 10/11/2014 12:11 AM (GMT 0)
Deb,
I wish I could add some more encouraging thoughts besdies what has already been said so well by others here....you are amazing and loving to do what you do. Is your son only physically handicapped or is he mentally handicapped as well?
HUGS,
janet
deborahscinder
Veteran Member
Joined : Jun 2014
Posts : 1535
Posted 10/11/2014 2:28 PM (GMT 0)
Janet, he has cerebal palsy and cannot walk, his mentality is that of a 10 yr old and he is 29. He cannot read nor write, but he can talk just like you and me. He has somesight problems. In his adult day care program he is sweet as can be to everyone, in act I mentioned his attitude at home to the lady who runs the program and she was shocked that he acts like that at home. For some reason he is just plain nasty and demanding towards me and his dad. We have tryed talking to him and he says he is sorry yet it continues. I know that if anything ever happened to my husband I would have to place my son in a group home because there would be no way I could handle him totally alone.
wearyRAsufferer
Veteran Member
Joined : Mar 2010
Posts : 2955
Posted 10/11/2014 2:38 PM (GMT 0)
Deb this thought comes to my mind. He feels comfortable enough to express his anger and frustrations about
himself to you & your husband. I remember a saying- you always hurt-the ones you love.
Still doesn't make you feel better about
things though I'm sure.
deborahscinder
Veteran Member
Joined : Jun 2014
Posts : 1535
Posted 10/11/2014 2:41 PM (GMT 0)
So true weary. I just want to thank all of you for all the support here, it means so much. Hugs to all of you
janetlee
Veteran Member
Joined : Mar 2006
Posts : 1986
Posted 10/11/2014 5:27 PM (GMT 0)
It probably won't make you feel any better, but perhaps he is lashing out at you and his Dad b/c you are the ones always there 99% of the time. He is probably frustrated himself at his limitations and takes it out on y'all. It's not fair, but definitely not surprising.
What has he got to do to keep him occupied? He may need more distractions than you can provide.
My sister is a LPN at a school for the mentally/physically handicapped and for many of them, school is the highlight of their days!
If there was some sort of day program he could go to, it might be good for him. As long as he's able to communicate to you anything not "kosher".
I wish I knew more to say....
HUGS!
janet
✚ New Topic
✚ Reply