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Stuck between a rock and a hard place

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Anxiety & Panic Disorders
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Posted 8/20/2018 2:47 PM (GMT 0)
Well, I'm stuck. Quick reminder. I was at my PCP (who knows me pretty well) who DX'd me with schizo-affective disorder. He wanted to put me on Abilify. I have a cousin who has schizophrenia who went through hell so just hearing the name starting with schizo put me in a anxiety attack. I got a 2nd opinion who said not, it was Anxiety. She then put me on Tentrellix (which I loved) but my stomach wouldn't have anything to do with it. Sick to the point of ulcers.

Well, the Dr. (nurse?) at the therapists tried her very best, several time, to get me to take it anyway. My PCP said I had another 2 weeks an if I was still having problems I had to go off of it. So, fast forward I went back on lexapro, which I had taken without a problem before. It too sent me on a spin.

Now, my Dr. just wants me to stick with the wellbutrin and trazadone that I was taking before all of this happened. But, I'm getting that "duh" brain feel again, I'm tired and in pain. This is an especially bad time of year for me as well.

I know you know what I'm feeling. I know there isn't really anything I can do to make a difference. I've tried all the techniques that I can find. I also have several diseases that cause the same issues but with the trentellix I had some good days mixed in with the days I'm having all the time again. So, I think I mourning the life I had for a few months as it was so much closer to who I was before all these diseases kicked in.

Thank you for "listening." It just kind of feels better being able to "say" these words to someone who understands.
Posted 8/20/2018 6:34 PM (GMT 0)
Lendi,

I am sorry to hear this. Differing dx's and opinions on which Rx to take must be so hard to navigate...and this on top of what you are already dealing with in terms of symptoms...I feel for what you are going through!

Sorry if I have asked before...but can you get into see a psychiatrist? I think that you could use the expertise of a specialist, so that you can get a definitive diagnoses and the best managment plan possible!

See if this is a possibility. Your PCP should understand and give you a referral.

Keep us updated, so we can keep you in support!

S.C.
Posted 8/20/2018 7:15 PM (GMT 0)
Hang in there my friend and hopefully they will get

your meds under control so that you can begin

being your best self moving forward
Posted 8/20/2018 9:38 PM (GMT 0)
I think whenever we see progress, and then relapse it hits hard because you taste what it is like to be better, and we so want that to be normal. Be careful not to think that there is nothing you can do about it though. I agree, get a referral to a psychiatrist soon. I know I have to be careful not to let a relapse send me into a tailspin. It is just that, a relapse. I learn more coping skills each time one happens to me.
Posted 8/20/2018 11:14 PM (GMT 0)
Hi Lendi~

I think the first thing you need is a big, gentle huh. (((HUG))) Close your eyes and try to feel that HUG. Then if you trust your doctors try what they are suggesting and see what happens. There have been times when I've doubted a medication prescribed for me, tried it anyway and it really did help.

We're all here to hold you up when you begin to fall. Rely on us, we totally 'get it'. Keep posting and keep us up to date on how you are doing, OK?

Warmly,
Chutz
Posted 8/21/2018 1:18 PM (GMT 0)
A big thanks to you all. A special thanks for the hug. Just knowing you're here helps more than you know.

I was getting treatment at a local mental health facility. Although I didn't see the psychiatrist I did see the person who has been trained in the medicine and refers to him if there is a problem. She chose a great drug for me but then the stomach rebellion. I think my PCP is just trying to get me leveled out before trying something. I'm on SS disability so thankfully I can go to another Dr. if I want without a referral. I am seeing a new sleep dr (who also specialized in Family Medicine) in Oct.

You are so right Minnesota, about having difficulties going backwards. Some of the problems are that I have several different health issue but sleep/fatigue it the one that I think causes so much trouble.

I also get brain fog. Like putting the coffee pot caraffe on top of the coffee pot when I poured my coffee rather than where it belongs to stay hot. Looking for something in the fridge, it being right at eye level and in the front but not seeing it. Just last year I could can a batch of something in one day.
Now, I can only do some of it then have to finish the next day.

These are just examples, it happens all the time. I know my hubby is concerned. But, when I was on trintellix a lot of that went away. I didn't feel as droopy nor was my brain as foggy. It seems to be worse than ever at the moment.

Ok, pity party over but not saying it won't resume. Thank you for listening.
Posted 8/21/2018 5:30 PM (GMT 0)
L.,

Come vent anytime...that's why we are here...to listen, understand and encourage you to keep going. You will find the right regimen that performs for you without the unwanted s/e's.

Keep working your coping skills and talking with us...you are on the right track!

S.C.
Posted 8/21/2018 9:00 PM (GMT 0)
Lendi, have you ever considered Adderall or Vyvanse for your fatigue/brain fog? I ask because this really helped me when I was going through my episode of chronic fatigue a few years back. I have also had 3 concussions in my life playing many sports which can make me more prone to brain fog when inflammation hits. Adderall literally allowed me to keep my job as it allowed me to focus and gave me energy. It also allowed me to have some social life which of course is great for your mood. Feeling dog tired all the time is so tough to deal with. Anyway, just my experience.
Posted 8/24/2018 3:03 PM (GMT 0)
Thank you!

Minnesota, I've haven't tried wake up drugs much. I took provigil for about 6 months which did help but then the sleep Dr. said he didn't want to be responsible for meds and my PCP said that's why he sent me to the sleep Dr. in the first place. He is sending me to yet another sleep Dr. but I can't get in until mid Oct. So here I am.

I've been seeing sleep Dr. for years. One said to take off work and sleep whenever I can as I was totally bankrupt. One put me on a ton of different drugs, mostly trying to get me into a deep sleep. I'm on a c-pap and it's working well according to the data but it hasn't helped me in the daytime.

Only Trintellix has helped me stay awake but my stupid stomach.... I'm not quite sure why they haven't let me try adderall or something. Maybe this time as this sleep Dr. also has also specialized and has practiced Family Medicine, too. He is older than just getting out of school but young enough to have been taught new techniques so maybe.....
Posted 8/21/2022 5:00 PM (GMT 0)
Lendi, I'll be following this post as I'm in a similar situation, having many of the same symptoms. I'm using Bupropion 150mg (Welbutrin) and psychiatrist wants me to start Trintelix because Lexapro wasn't working. The possible interaction between Welbutrin and Trintelix is a concern to me as many of the drugs like these I've tried have had terrible side effect. And cost is way to high.

I've had to lighten up on the brain fog to maintain my sanity. The other day I'm running all over the house looking for my keys and discovered I had them in my hand when my wife saw them.

Wish you well and I'll help if I can.
Rebos
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