So tired of this

Hi Searching1,

Nice to meet you. Have you considered going back to your primary doctor and asking is they can start all over with different specialists? If you're still reacting then something isn't right. Just because they haven't seen something before doesn't mean it doesn't exist. Look at how HIV/AIDS began many years ago. At first no doctors had seen it and had no idea what to do.

I hope you can find someone who will find out what's going wrong and will listen to you. If any of these doctors are associated with hospitals there will always be a patient advocate who can help you find a solution.

Good luck,
Chutz

I'm still taking the PPI. ENT #1 seems to think it is the right answer, but that it needs more time to work. He said to give it until November. ENT #2 said that the endoscopy showed nothing major or concerning, only some slight inflammation of my lingual tonsils and suggested I may be having a hard time completely knocking out an infection. So he ordered the antibiotics for that.

I saw a new neuro in July and September and he felt that I was fine on the neurological side. He also felt that my previous neurologist had put me through unnecessary testing and should have explained things to me better. It seems what was found in 2014 (and has been checked annually at a high out of pocket cost) is an unchanged benign condition.

So, now I guess I go through this round of medicine and see where I'm at.
I'm also supposed to see an endocrinologist but the one I was referred to is booked. I'll find another one, but figured I might as well wait until the sonogram results are in.

Meanwhile, I am going broke seeing specialists, paying for tests, and buying meds. I'm also not the only person in my home racking up medical bills - my husband tore some ligaments in his ankle and may need surgery for his shoulder.

Post Edited (searching1) : 10/7/2018 7:50:53 AM (GMT-6)

That's the current plan, S.C. - I am trying.

I do get some good days every now and then. Days where I don't smell smoke and my throat is fine, no trace of pain. And a few days, I have been physically fine AND not had and derealization or anxiety or panic!! Those are few and far between, but they happen

It's just so hard to remember that it happens when I'm "in it", you know?

Today was a bit hectic for me, but physically, I was OK; no sore throat and no smell. I did have some anxiety and overwhelm while running errands and preparing for the week, but at least I didn't feel that way on top of feeling ill and physically uncomfortable.

As always, thank you for listening and thank you for the encouragement.