Anxiety, hypothyroidism and periods

S.,

I understand your frustration. If you don't search for answers...that's of course not productive and keeping you from finding relief for something that could be managed well.

However, when you do the testing, often we end up with more questions or worse, told there is no definitive reason for our symptoms.

I admire your perseverance and do believe that you will find what you need as far as a dx...and be able to start working towards your healing/management goals given time.

Keep as positive as you can while you go through the process...and know we are cheering you on!

S.C.

Absolutely! We get through this together!

S.C.

Good advice to ALWAYS check what's in the pill box/container and make sure it agrees with the paper work and your case.

Hey there searching, thought I’d let you know how my endo visit went.
It was today. I am so lucky, he was really great. Intellect, sense of humour AND ears!
I worried he would judge me for the mix up, but he just looked over his glasses at me and jested,
“So you did an experiment, and it didn’t work out....but you lived through it anyway.”
You know I am so frustrated that I saw a rheumatologist once, a GI specialist twice and my nurse practioner five times in the four months I was sick and not one of them with all my symptoms thought to check my thyroid. It took a very, very ill patient to think of it all by myself.
It is so frustrating isn’t it.
The only thing I forgot to discuss with him today was the anxiety, panicky feeling I get sometimes, mostly at night. It feels awful. I read thought that it is classic with hypothyroid. Especially since mine was so severe. It says it can take up to 8 weeks or more to level out. I know it has only been about two-three weeks and I am already much better.
Have you had your TSH, T3 and T4 checked? Mood symptoms are often diagnosed inappropriately as depression or anxiety when it is a thyroid issue.
I do know the feeling of feeling unwell and getting no answers too. It can really break you down mentally.
I had my best luck through all this with the ER physician. Maybe you could try that?
Trust in yourself, and keep fighting for answers.
Take good care tuffymason

So sorry o hear it searching.
Plus when you are feeling so bad it makes a dismissal even worse.
For me now I know at least for the most part why I am feeling so bad, but still I was told my thyroid was near coma levels so it will be 8 weeks before I am feeling more normal.
Today I just felt achey and such exhaustion and mentally like a zombie. All I want to do is sleep,
but then I try not too because of insomnia. Every night fall asleep like a ton of brick but then I am awake by 3 am and can’t do back to sleep.
So have you seen a rheumatologist searching? That is were my tangled ball of yarn began to unwind. Way back in 2006. I had already been dx’ed with hypothyroidism and addison’s disease early on and told ‘if you take your medication you should feel normal”.....ahhh, no. Not even close. So I pushed just like you. Saw a rheumatologist who did a whole bunch of antibody testing. Antibodies are all specific to certain disease. Then they told me that they wished they could tell me I had Lupus but it is bigger than that. I have heard what I deal with called Mixed Connective Tissue Disorder. Basically several auto immune diseases “over-lapping” each other.
So more testing....now I am hypothyroid, addison’s disease, Sjögren’s syndrome, Lupus, are the main diagnosis with some spin-off problems like ITP (low platelets, osteoporosis,gall-bladder doesn’t work and gastroparesis (very slow gut motility). The rheumatology appointment was everything in learning how to understand my body and read my body and care for it.
It is all a challenge to manage but I do really well....amazingly....
So now I have a wonderful rheumatologist, my new wonderful endo/internalize, (I am so thankful for that, you have no idea) a nurse practitioner that’s only so so and a GI doctor that is also only so so.
Maybe you could seek out a rheumatologist for some anti bodies testing?
Hang in there and know you are not mistaken....no-one would just make pain and illness like this up. Be very kind to yourself and try not to live to far into the future this will take time. You don’t want to wear yourself out trying to push to hard to fast. Work at it with determination and intent but take care of yourself along the way. My total dx took years all total.
Wishing you some rest, and peace. Tuffymason