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Pyoderma Gangrenosum

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Posted 10/28/2006 10:58 PM (GMT 0)
I get of the sores they are from last yr and I almost lost finger in the one
They show up starting out looking like pimples and actually will grow from there to ulcer like sores down to bone

Autoimmune disorder linked to Crohns BUT is very definitely made worse or can start by STRESS,anxiety and trauma to the body ......I have now 3 going on one on baby finger and 2 small ones on right forehand .....I asked Normal to post this link as I am always talking about these and wanted some of you to get idea of what I am talking about

any questions about them please ask .......Not wanting sympathy just wanting peeps to know that A/P can do just about anything to our bodies ( as well I have other DD )

Thanks for you time and hope it helps you to understand what I am talking about more

Lyn
Posted 10/28/2006 11:19 PM (GMT 0)
THe links weren't working. Didn't know you guys were married :-)

Yikes... now I see it(had to edit out the text in front of 'photobucket') Never seen anything like it.

Post Edited (I_willconquer) : 10/28/2006 5:22:02 PM (GMT-6)

Posted 10/28/2006 11:24 PM (GMT 0)
lol not married she is adopted daughter lol......no and not too many docs had either even top notch dermy's took yrs for a dx
Very painful and hard to live with believe me but if stress and anxiety levels are kept down I am "Good to Go "
Posted 10/28/2006 11:28 PM (GMT 0)
'normalsfun' is not a man? I have no idea where I got that lol. Glad you got a diagnosis.
Posted 10/28/2006 11:29 PM (GMT 0)
We are not married I am just helping her out.

I am totally female...
Posted 10/28/2006 11:31 PM (GMT 0)
I promis I'm not dyslexix. I read your sn to read 'Norman', not normal. Sorry.

Howly I only saw one pic, and that was of your hand. I hope I didn't say anything too insensitive to make you take em down sad
Posted 10/28/2006 11:34 PM (GMT 0)
Not at all hun I am tough lol
no kidding aside it was an honest mistake no offence taken Normal s my (online ) adopted daughter and a great role model for my teen daughter Caitlyn
Thanks
Lyn
Posted 10/28/2006 11:42 PM (GMT 0)
Takes more than that to offend me. Lyns like my online mommy. I took em down cause they werent working and didnt want too many people to get worried they didnt work.
Posted 10/28/2006 11:44 PM (GMT 0)
Thanks LIl one appreciate all your hard work on this for me
Mom out
Posted 10/29/2006 12:37 AM (GMT 0)

Yikes, I get ulcers from Lupus/APPS/colitis, but not quite as big as yours. Mine start out as very large red looking bruises. I hope you are doing better this year. I can understand fully what you are going through, ulcers are so painful. And stress does make them worse.Thanks for sharing, and hopefully you'll have an ulcer free year.

Hugs Judy smurf

Posted 10/29/2006 12:51 AM (GMT 0)
HOLY CRAP!
I haven't read back about these but they must be h-e-double hockey sticks to live with!
Posted 10/29/2006 5:46 PM (GMT 0)
thanks Patty yes they are he** to live with
but I carry on as we all do
I have a few now that are not good at all and taking a toll on me for sure
I will be deleting these after a couple of days so the room is free for other info and problems peeps have
Just wanted to give peeps an idea as to what I mean when I say outbreak in sores ya know
Be well
Lyn
Posted 10/29/2006 8:03 PM (GMT 0)
Lyn,

How long does it take for these awful sores to heal once they have broken out?

big ((((((((hugs)))))))))) to you Lyn, I hope and pray they settle down very soon and heal.

take care

Ann
Posted 10/29/2006 8:14 PM (GMT 0)
hey sis
thanks for your concern 'sometimes will and can take months to heal
depends on severity of them
hoping to yak to you soon
missing you as well
Luvs ya
Lyn /Sis
Posted 10/29/2006 8:29 PM (GMT 0)
Hey Lyn/Sis,

You have got some nasty ones there, will pray that the ones you have at the moment will settle down and heal very soon.

Yeah, hope to talk to you later

luvs ya too

Ann
Posted 10/31/2006 6:13 AM (GMT 0)
Just another chance for a look see before I delete okay 'any questions ask away
Luvs yas
lyn
Posted 10/31/2006 6:58 AM (GMT 0)
Oh Lyn, I can't imagine the agony that those sores must cause you. I know that you said no sympathy, and I hope that I am not offending you by saying that my prayers go out to you. Thank you for your courage in posting the pictures for our enlightenment regarding your problem. I have a deep respect for your courageous spirit.

Scaredy Cat
Posted 10/31/2006 7:12 AM (GMT 0)
Hi Lyn, they look terribly painful. Said a prayer for your current outbreak. Hope you feel better soon.
Posted 10/31/2006 8:06 PM (GMT 0)
SC ....no offence taken all the prayers I will take with pride .................thanks

hopefulmigrainer .....ty too for your thoughtfulness and prayers
Yes they a bleeding painful but I am a survivor and a firly stubborn one lol so I take it with a grain of salt ........ride it out ya know
You's take care and again thanks for the prayer's most welcomed
Lyn
Posted 10/31/2006 9:32 PM (GMT 0)
Lyn, my lovely Lyn, I have seen pics from you before, so I know a bit about how bad these sores can get. Is there anything you can tie down as a trigger for these this time -- anything we (I!!) can help you with? You are always there for all of us, and have been there so much for me. I wish there was more I/we could help with. Not sympathy, ya know, just wishing I could do something practical to help!!

You know that pic where it shows your face? -- You really are very beautiful. Ok, so you look a bit pissed off -- heck, who wouldn't be with those sores! -- but you have an amazingly strong and wonderful face. I wanted to tell you that because I think that it's important that your face struck me more than any of those sores.

Lots and lots of love to you Lyn.

Rosie xxxxxxxxxxxxxxxxxxxxxxxxx
Posted 11/1/2006 12:37 AM (GMT 0)
Thanks sis '
All I ned is your love and support thats it sis all ........You have always been there for me
I want to thank you
yes I was pissed lol
Pic was taken when in extrme pain lol
Thanks for the compliment thats the native face OMG I just relooked at that one dang it is horrid you got your glasses on
Love ya and miss you tons sis
Lyn /Sis
Posted 11/1/2006 9:01 PM (GMT 0)
Am going away on a trip to a fancy dancy motel with howie cait and her friend from Sat to sunday night
hopefully getting away from family here and problems within family will help with these sores
Have a great wknd all
I am looking forward to a pool ,hot tub and doing go carts with us all lol
Be well and stay strong
Lyn
Posted 11/1/2006 9:44 PM (GMT 0)
Hope all goes well for you mom...I hope the time away does it for you.

Big hugs you deserve it....
Posted 11/1/2006 11:52 PM (GMT 0)
Thanks my lil one
I will be calling you lol
Love mom
Posted 11/2/2006 12:18 AM (GMT 0)
Hope you have a wonderful time Lovely Lyn. -- And, yes, my glasses were firmly fixed in place!! -- I could tell it wasn't a great pic of you, but your strong features shone through all of that: you are very striking and beautiful, and I'll hear no more against it, ok?! smile

Love ya!

Rosie x
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