And just another CT Scan - Results updated on my personal link 5/16/2014

Kitt,
I am sorry you have to go through all of this. I will keep you in my thoughts today. I was 19, and I had to take my mom to her cancer treatments, and hated watching everything they put her through. I have nothing but gratitude for anyone who is dealing with cancer, or any other disease that doesn't have a great outcome. For you to help us, and give advice and share your courage, is so kind of you. I wish there was something I could say to help, or just to make it better, or easier. I can't. Just know you will be in my thoughts today, and hope everything goes well, and there is no new developing cancer..thoughts and prayers with you today.

KK.,

You have never let anyone of us down...

We love you, and are here for you during your time of need.

Let the feelings come. You don't always have to be strong. Lean on your wonderful family, friends and your community here at HW.

We love you and are sending prayers of courage, miracles and hope.

Let us know how you are doing soon.

(call me if you need an ear.)

XOXOXOXOXO

S.C.

Hey baby sister, stinky here, first I love you, and I know that you will understand when I say I am still
rattling my beads for you daily. "I am waiting Faithfully for our God to say Yes"!
Did I say I love you, you know how mushy I am! Peace Always!

Larry ***

Kitt. What the heck are you talking about??? Letting us down???? NO!!!!!! Unless you are super-human (and even then it would be a stretch), you have absolutely let not one single person down! You, whether you like it or not, are human, you have needs, you have your own problems, you have emotions. And they are valid. Just because you have the title of "moderator" does not mean we expect you to never have a bad day or need support! If you were in front of me right now, first I would shake you, then I'd give you the biggest hug.

Sorry if I sounded kinda harsh. But you need to treat yourself the way you treat all of us. With kindness, caring, compassion, support, etc. I am so sorry you are going through so much. I cannot imagine the fear and stress you are feeling. I wish I had a way to take it all away.

I can tell you that I will pray for you and send positive thoughts your way. I hope you will come to us and let us be there for you, as you have been for us. You deserve to put yourself first. It's time to let those around you try to carry some of the burden if possible. Take it one day, one hour, one minute at a time; whatever you need to do to get through the moment. Be good to yourself, and let others be good to you too. You do NOT have to do this alone.

I know that we do not know each other very well, but I do know that you are extremely caring and selfless. You have posted comments to me to help and support and guide me through things. I hope that when you are having a tough time, you will ask yourself this--"what would I say to a friend/family member/forum member who was having the same struggles that i am?"

Please try to put yourself first when you need to. You deserve all the help and support and love that people want to offer. As I said before, you do not have to do this alone.


Lots of big hugs,


Sunny.

Kitt,

I have arrived late and so my special prayers will be after the fact :(
You however, are always in my daily prayers! How did you make out?

Don't ever feel bad to be on the receiving end of support- life is give and take and from my experience here you give way more then you take. I know you'd prefer to be giving instead of taking....

Wishing you all my best and will be waiting for your news.

weary

Aw Shucks,

I Love you all and I'd like to take this opportunity to thank each and every one of you for being a part of this cancer  journey I am on. I have spent 18 months on this journey and I expect to keep on winning this battle that I wrestle with daily.

I made it through the CT scan yesterday and I believe that is the 10-12th scan I have had since August of 2012.

As most of you know I was dx with Colon Cancer on 8/10/2012, had Colon resection on 8/16/2012 and was dx with Stage IIIC adenocarcinoma of the colon.

After placement of my power port in September of 2012 I was started on 12 rounds of chemotherapy.  I completed my chemo in January of 2013 and my CEA tumor markers were within normal range and my CT Scan was clear. 

That lasted until March of 2013 when I had my first post therapy CEA lab work and CT scan and there is was, Metastatic adenocarcinoma of the colon through out my lymph node system - not confined to the original location of the primary cancer. I spent much of 2013 in chemotherapy. On December 31 I had my last chemo as my Onocologist felt the chemo was not working. 

I chose to take a break from chemo and have run out of break time now as my CEA lab value tumor marker has risen from 206.4 on 12/31/2013 to 571.5 on 5/14/2014. 0 to 5 mcg/L is the normal range for CEA lab values.  Ct Scan result and visit to oncologist tomorrow. He has been kind and worked with me closely during this break time.

My CT scans and labs indicate the disease has spread (metastasized) to distant locations.   Chemotherapy in metastatic colorectal cancer has been proven to extend life and improve the quality of life. If managed well, the side effects of chemotherapy are typically far less than the side effects of uncontrolled cancer. Chemotherapy alone cannot cure metastatic colon cancer, but it can more than double life expectancy and allow for good quality of life during the time of treatment.

 

Did I mention I have anxiety but truly have been managing it well.  Coming here and helping others is a huge part of my therapy.

 

Thank you for reading my daily responses as well as putting up with my quirky sense of humor from time to time.

 

Thank you for the prayers and for the support.

 

Love ya my friends and my peers,

 

Kitt

 

 

Let us down?  Seriously?  You are always here for us no matter what.  You manage to find time to help us with our problems when you have so many of your own.  You never ask for anything in return.  So when you need us now, know that we are here.   I, too, am rattling my beads for you!!  And God will say "yes" at some point.  Please believe and know that.  You hold us up when we are too weak and scared to stand on our own.  Please know that we are here to support you in your time of need for as long and as often as you need it.  My prayers are with you now and always.

We are all here for you Kitt just like you have been for us! :)

Kitt,
You are such a wonderful person. I don't know you personally but I have seen lots of your posts. You have done anything BUT let people down. You are a beacon in the dark for people that struggle with lots of different problems, and even though I don't have a LOT of experience with you, I know that I am so very thankful that you exist, that you have shared what you have, and that you can come here to share with us your pains as well.

Keep your chin up. You are quite obviously such a strong individual. Try so hard to think happy thoughts because you deserve them. Remember that. Breathe in. Breathe out. Breathe in again. Today is today and tomorrow is tomorrow. You are wonderful. Positive vibes and hugs your way.

http://www.caringbridge.org/visit/marytobias

I am blessed and I owe so much to all of you........my support team.  The news was good yesterday; I have posted my link to my Caring Bridge so you may read the most updated report.

I am thrilled and believe faith is the key to healing.

This morning we have an appointment with our attorney to update our wills...........last done in 1979 -  updating my "papers" is much more anxiety provoking today than it was in 1979 when all was well and the last thing on my mind  was terminal cancer.

I march forward into this appointment knowing after today my anxiety should drop as I get back to being just a lady who is a member of a great peer support forum.

Love to each of you and I wish you peace.

 

Kitt