Posted 10/10/2014 9:31 AM (GMT 0)
Yes, I agree with all of you.....I had an almost anxiety free day yesterday (except for the morning when I ALWAYS have it until I get up and get moving). Today I thought I was going to have a day off from watching my ALS patient because her daughter said she was going to take her to her doctors appt. but called at the last minute and said "I can't make it". So now I've been recruited to do it and even though I'm happy to take her, her appt. is first thing in the morning so I have to drive in the dark to be at her home at 7 am and spend at least an hour getting her ready to go. It's VERY difficult for this poor woman as she is very weak and any small bit of exercise makes her short of breath. THAT makes me anxious, for fear something will happen to her while I'm caring for her. At least her son will be driving to the hospital but he can't toilet her (she's VERY modest) and she's mostly concerned about that while she's away from home. I try to tell myself that I'm being selfish getting anxious over this, when I should be grateful I'm relatively healthy and this poor woman is in such bad shape, but I just can't help it. I'm going to stay strong though, because other than myself and her son, none of her other five children seems to ever be willing to help their own mother who is such a sweet lady and in such pain. I don't need accolades that I'm a great person for doing this....I guess I just hope that when my time comes, I will have someone who's willing to do the same for me. I have three wonderful sons but I'm afraid they'll be so freaked out if something happens to me, that they might end up avoiding me and hiring an outsider to care for me. So it's kind of a selfish thing I'm doing too. Thank God she is very comfortable with me now but I just wonder how she feels inside (ALS does not affect the brain and she is extremely sharp mentally) knowing most of her kids aren't really there for her. Life is cruel at times and this kind of thing tends to bring back my anxiety. I look at her and say "there but for the grace of God go I" and sometimes that helps but I can assure you it's very difficult to watch someone deal with this horrible disease.