What disease do I have??

Hello forum readers. I am 16 years old and am currently suffering from a disorder that I have had my entire life, and spent the last 2 years trying to find, with still no conclusion. It started off, one day, when I became extremely hypersensitive to how my stomach was feeling after drinking alcohol for the first time. I felt like my stomach/ esophagus area was closed and... Im not sure if you've heard of the enteric system(look it up)... But there is a connection between you're stomach and your brain. Anyway, I felt this form of "brain fog" and "disconneccted" from the world, kind of like what I saw and thought wasn't actually my own thoughts. Keep in mind I've had this my whole life and am now just hypersensitive about. After about a year of thinking I was depressed or psycho, I went to a doctor and was diagnosed with Eosiniphilic esophagitis, which is an inflammation of the esophagus and causes food to get stuck when swallowing, which I've had trouble swallowing my whole life.
Yes! I found out what was wrong with me! Not quite, after getting rid of milk and completely treating my esohpagus to a point that is as normal as anyone else's, I still felt this brainfog and disconnectness.
Ever since then I've been to ultrasounds, spine x-ray, gastro-emptying testing, psychologists, endoscopies, and a hundred appointments, no doctor has yet to understand my symptoms and put a name to what I have.
During this year I've pinpointed these symptoms and here they are: electric/tasering feeling in my esophagus, clench shoulder and arms, involuntary clenching of stomach (related to taser feeling), clogged ears feeling (can't unclog). Over the years (16 in fact) I've subconsciously been able to "close my stomach". Well that's what it feels like. It feels like I clench my stomach to relieve this unbearable electrifying pain. I've just now realized it because I don't know what it feels like not to have a tasering feeling in my stomach/esophagus. Keep in fact when I clench it will change the way I feel (enteric system) and I willl feel my whole body is clogged, im holding onto to something. This is not anxiety. Trust me, I've to several psychologists. When I clench, I feel somewhat tired and relaxed, yet still brain foggy. When I'm not clenching I feel this tasering throughout my whole body I can't seem to relax or stop moving. This explains why I could never sleep my whole life and why I always had this energetic push and never felt lazy and always needed to move (sounds good but isn't for me). What food I eat also indicates how my stomach feels. Pasta is slimy to when I eat it covers up my esophagus/ stomach and relieves the pain somewhat. Crackers are dry and not sit well in my stomach and will increase the jitery/ taser/ electric feeling in my stomach/esophagus
So I write in this forum to you guys to please reply whether you know anything about this or could direct me in a path. Seriously any kind of information will help and will be life changing. Maybe have you guys experienced these same symptoms, maybe in a different fashion? Or you know a doctor? Or you know someone who's had this feeling. If so, please reply because this will end my struggle. Thanks for reading.

Good question deborah. As a young child(3-6 yrs old) I was actually thought to have anxiety. I would lick my lips and rapidly blink my eyes. But I never felt anxious or nervous and when my mom asked me about the lip licking, I was confused why she thought I was nervous. I think the rapid eye blinking and lip licking was due to the taser feeling in my stomach/ esophagus, and the results just happen to be the same as a kid with anxiety. I think I was trying to cope with the pain that way. I haven't had the licking and blinking since

Hey JF. I agree with Deborah; you seem like a smart kid. One diagnostic challenge you are probably aware of is that certain physiological and psychological symptoms can mimic one another. So, for example, you have some symptom or set of symptoms and you think it is caused by a physiological problem, but it is actually caused by anxiety or some other psychological problem. (You are sure that could not be the case, but turns out it is). Or, the other way around -- you think your symptoms are driven by anxiety, but then you find out you actually have some physiological problem Or maybe you have both, and confounding factors can complicate a diagnosis.

Another thing you should be aware of is the cognitive bias that may exist in various forums, in "guessing" at a diagnosis. What I mean by that is if you present a set of symptoms on any "anxiety forum" the participants in that forum may be inclined toward a diagnosis of "anxiety" -- while if you were to present the same set of symptoms on a "GI diseases" forum, you might be more likely to get "GI disease" guesses. This is not because anyone wants to lead you astray. The people here (and on many other forums) really do try to be helpful most of the time. But there is just a certain orientation, based on personal experience and the topic of the forum, that can influence people's thinking...

What I suggest is this: in consultation with your parents, try to get a very good, comprehensive, multi-disciplinary medical workup. I don't know where you are located, but in the United States this is the sort of thing you could get at Mayo Clinic, Cleveland Clinic, Johns Hopkins, and I am sure at some other places. If you find a physiological issue, you will of course deal with it -- through dietary change, or medication, or whatever is recommended. If, after a comprehensive multi-disciplinary medical workup by doctors you trust, no physical cause for your symptoms is found -- or if physical causes are found but the treatment recommendations do not fully resolve your symptoms -- then it might be reasonable to conclude that the issues may be at least in part psychological. In that event, it would be worthwhile to consult with a psychologist or psychiatrist. (That would not be an unusual outcome; psychological issues can cause very real physical symptoms).

Best wishes.

Hi

Welcome to the forum.

Anxiety can cause all sorts of symptoms both physical and mental so I would speak to your doctor and see what they suggest.

Have a look tour resources for some useful links.

Hibee