Yes. I am being treated at a transplant clinic. My weight loss was yet another choice I made. I just eat what I think is right . Drink plenty of water. And never eat unless I am really hungry. I...
We just flew in to Arizona for my checkup on Monday and returned Monday evening. Quick visit. I was told I am fine. MY last three years my blood work is almost identical, Dr. quite did't understand...
So what next. Well I have had ESLD for about 11 years now , so I know what your mom is going through, encepalopathy put me in the hospital about 3 times in one year. Now it is just tests every 6...
betilu62 I was diagnosed about 12 years ago with cryptogenic liver disease (unknown). ESLD stage 4 . I was on the transplant list for about three years, then taken off since I stablized. So I feel...
Recently I have been dealing with really bad acid reflux, no matter what I eat. My pain still under the right rib, but I have had that pain since after my gallbladder out in 1979. I get it every time...
Michelle' Wish I could help in some way. I have had the stabbing in my side since before my gallbladder was removed in 1979. Since then I have gone through many changes. Some real scarry. So I will...
Merry Christmas everyone. I have osteoperosis, osteoarthritis, osteopenia, degenerative disk disease, bulging disk ,acid reflux, My left knee had to get another injection. I was really miserable ,...
Everybody is different, when I took it seemed to be working but as a couple of weeks went by . I had a peresonality changed. lexapro build up in my system. Hope you have good results . lavendar...
I think you should forget it. All hospitals have the same ugly robes or gowns. Chuck it up you had a bad day. Although they are ugly I have never had problems with unclean laundry. If I had I would...
Wish both of you the best . Best news I have heard in a long time....
Don't give up. I had my only child when I was 27 he had to have surgery immediately, for hernias he had and he was jaundiced. We managed, then two months later there goes my gallbladder and appendix,...
Thor: Be willing to get more help for dad. I have been on this forum for more than 10 years, time of ESLD diagnosis. Anyway here I sit just waiting, and now so concerned by your dad being alone. I...
I tried amitripteline for about 2 weeks. It made me act crazy (I must have liked it). My husband hid them all from me. So I had no weaning time. Now I am on trazodone. I'm beginning to think I should...
just-man I have had hearing aids for 10 years. This year they can no longer adjust the volume. I do have liver disease ,I believe the disease is a major factor in my hearing loss and my vision loss...
Hi Loujay: Just ask for records, I have quite a file full. It some how helped my mental status to have them. I have also collected all my liver scans and MRI. I also have a small tumor on my liver...
:yeah: I have been feeling so well. I feel guilty. The past weeks have been great for me. Kind of like the calm before the storm. Energy back , pain almost gone at times. My feet feel as if they are...
Hi madjik, I don't have Hep C, I have cryptogenic liver disease. Which means they don' t know. The Dr.s on my team call it something different every time I go. I believe it was fatty liver this past...
Slee: A few months ago I had nose surgery because I was having problems breathing. It went fairly well, but now have another nose infection, blisters in one nostril. I have an appointment in a week...
I am one that feels as if someone is standing on my head. I blame berometric pressure. Pushing down on me. Of course the weather. I have osteoporosis ,osteoarthritis, degenerative disk disease,...
Hi everyone, I was very surprised to read ,about the eye problem. I started having problems with my eyes for a while . Today was my most miserable day. My eyes were really in pain, burning, itching...
I am truly sorry for your loss. I can not even begin to imagine the loss of my spouse. Please keep posting, you still have a lot to give. As for me ; I'M fine. lavendar...
I think my pain is related to fibromyalgia or one of the many types of arthritis pain I get every day. I remember the horrible pain I was in when my gallbladder and appendix had to be removed because...
Hi everyone, hope everyone is doing well. I have a question , to anyone. What type of pain do people who have cerrosis or any other type of liver problems get. Lave,...
The minute I saw your post. I said a prayer that what ever whom ever I AM beyond happy for you. Keep me in happy tears. Lave....
I have been diagnosed with osteo arthritis, osteo perosis, osteo penia, degenerative arthritis, my knees have been injected with sinvisc so many times, they can't do any more. So sometimes I am in...
I take 1 omeprazole daily. Sometimes I do get terrible pain in my stomach could be the hernia I have. Usually one additional omeprazole resolves the problem. lav....
My yucky foul rotten back of the throat taste seems to have decreased, since I had my nose sinus infection taken care of . Right now I have another infection and the stuff is draining to the back of...
I take about 9Tbsp. a day lactulose . Sometimes more. And xifaxon one. I did notice my new prescription says 1 xifaxon twice a day. So which should I take more of the lactulose, xifaxon or both. I...
Lost the first part of my post . Maybe today is a forgetting day. HE still bad. I guess I am blanking out for part the day and as my husband says "doing stupid things" I went in for my regular check...
HE GOES TO MY APPOINTMENTS WITH ME. LAST TIME WAS ABOUT MY FALLING BCKWORD AND MESSING UP YET ANOTHER THINGS TO MYSELF, AND YET HE IS Rr IGHT THERE HE .NEVER SAW A THING.THREE DAYS LATER HE TOOK ME...
I am so happy to finally have gotten back . For so many months I was not recognized as a member,. MY encephalopathy is so bad at times I totally black out. My husband is so sick of my in and outs. He...
It is always when we come. And I too have had the experience of explosive gas. I tried to tell the nurses who were wiring me up that I really needed to go to the bath room "they just didn't hear the...
You have a great start don't drink. Drink water if your thirsty some times your body gets dehydrated, from fast food; restaurant food, or junk food. Mine was called cryptogenic (unknown) ESLD and...
the hepatolagist last called it chronic hepatitis. I did have hepatitis A as a child . It seems every time my immune system drops and brings on the hepatitis . Last report at mayo was still on...
Thank you all for all your very helpful posts. I ended up in the hospital about 10 days ago, with HE. I have no idea how I got there and that was two days later when the nurses were giving me...
The road seems longer when you are alone. My husband has had to spend days with his mom who now has alzhymers. They live in another community about an hour away. I seem to get worse when I am not in...
just got out of hospital this is what my 'DRs words to me were forget the colore just make something lav....
When I first went to mayo .I had all kind of Dr.'s. Then when they could not give a diagnosis the hepatalogist, after asking what type of diet I should have. Have big steak. well I was on my No red...
I believe I posted one of these . I hope someone tells me when my skin changes color to me it always looks the same. Right now I'm dealing with HE I have taken about twice the amount of lactulose...
I just got over a bout with HE . It's not a ride on a merry go round it is more like runaway roller coaster. I cannot explain it . First it is words that come out of your mouth don't make sense. I...
Hi all, I did post the other night ,and as you all know HE has been with me quite often. I went for my yearly health exams to Mayo Clinic in Scottsdale . Every thing went well but he told me I should...
I have been a member since 2006 had the disease about 11 years. Went for my yearly exam this year and they are beginning to annoy me . I was almost Immediately put on the liver transplant list .Then...
Why Mayo, why not a higher power needed her more. She was here for a reason, now the block heads will have to go on their own. At least this block head. I do miss her,she was my first mentor on the...
Thanks for the rapid response I guess I'll write myself a letter and tell them that it came from u I'm gonna knock myself to sleep so I can get up on my feet, And call the pharmacy down the street,...
I hope you understand my questions. I have been having very bad episodes of HE . So I decided to go back on Lactulose (is it still good to use when the expiration date is 12/1013) I still have six...
I tried Gabapenten for about 4 years ,for??why??. I was already taking 8 a day which is limit 2400mg. I wanted to relieve all over pain from arthritis, sinusitis and almost every problem already on...
:yeah: If it's true that NO NEWS is good news. I'VE been good for 9 years, I've had my time already. I couldn't ask for more. Even though It was a rather depressing time. I only wish I would have...
Lost post-pain-ESLD-Tylenol not working-constant fibromyalgia pain-arthritis pain-migraines-. Oxycodone made me vomit and I am not supposed to take pain meds anyway what can I do besides meditate....