Hi Sweetie, I can relate - I have RA (probable) , IBD and spondylitis. My mom has Alzhemiers but is now in a home and I am married and work full time. You have some very heavy demands on you right...
Hi Sweetie, be sure your hubby is tested for Lyme disease. Good luck and tell us all how you make out. the Coffeefiend...
http://www.amazon.com/Patient-True-Story-Rare-Illness/dp/0802135838 Hi Jojo, here is the link for the book I told you about. :) the Coffeefiend...
That is awesome about making things for charity! And the best way to cope with inconsistent energy levels is to tailor your activities to your energy levels. Now that you know what you have, it will...
Wow, Jojo, you have had a rough go of it. I did prednisone for a month when I was first diagnosed. I would recommend being patient with yourself, my best guess is that it will take a while for your...
Hi Analex, your story sounds very familiar. I am 39, have some sort of spondylitis (HLA-B27+) and IBD, also allergies and asthma; about 4 years of joint pain in hands, ankles, wrists, feet, elbows...
Hi Jojo, sorry to hear you aren't feeling well. I have something called eosinophilic gastroenteritis (I am HLA-B27+) and have excess white blood cells in my digestive system and sometimes in my...
Sorry, Alicat, to hear about all your tooth problems. Have they checked you for Sjogrens? I do know that really accelarates tooth decay. I tend to have a dry mouth and chew sugarless gum to try to...
Hello and once again, thank you! What is a normal c-reactive protein level? Mine is 5.9. My nurse practitioner told me it was not normal. My now ex-rheumy said the standards have changed and I am now...
Since you are already on Ambien I am guessing sleep is a problem and I find that poor sleep really exacerbates things. That aside, I find it helps to listen to a soothing CD - I hear it helps to...
Hello good people! I am awaiting a visit to a new rheumy; in the meantime I am working in a high stress job and in a lot of pain. I'm using up to 20 advil and tylenol a day but still really hurting....
Hello and Welcome! Sorry to hear your DH has this, BUT...it sounds like they caught this early which is the best possible thing. He's lucky to have such a supportive wife! I have heard good things...
Hi All, counting the days until I see the new rheumy; in the meantime I am trying to control the joint pain (most likely spondylitis or RA). I have tramadol and my old rheumy tried to give me...
I vote for Tramadol, I have IBD and take this with no problems. Makes me a little tired so best for nighttime but it gives me a break from the pain. Good luck!...
Hello Everyone ! I hope you are all doing well. I am having a rough time in getting a dx and was hoping someone can help. To make a long story short, I am 39 y/o woman; I am HLA-B27 +, have IBD...
Hello All! I'm 36, female, have Eosinophilic Gastroenteritis (kinda like crohn's) I am HLA-B27 + and have undifferentiated spondyloarthropathy. However, I have increasing peripheral joint pain -...