my heart is breaking for you. my husband and i will be married 20 years this fall and i have had lupus and other illnesses for 15 plus years. i was on topomax at first it made me really tired. i...
Robyn.. i just had a kenalog injection 2 days ago and i am feeling like i am getting sick. it takes about 72 hours for the sterioid bombs to kick in ....especially if it is a long acting steriod. try...
Hi Rhondamac... I haven't been on in awhile either. Sorry to hear about your mom. Your rheumatologist should put you on a medrol pack or something as stress=flare hope you are feeling better soon....
raynaulds common with lupus especially if your feet or hands get cold. um.. i have a low grade fever all the time. I have the hot face and burning... especially my eyes thats when i can tell i am...
I use a biologic infusion or my rheumy does ... Orencia. and a friend that has lupus uses a biologic remicade. I notice a huge difference when it is time for my infusion. about 3-4 days before my...
I have used it in joints, but i am going on vacation for a graduation and i got a shot of it in my glute. i had the shot about 2 days ago and still getting really tired, i know it can take time to...
You said this headache is different. My Dr. said this time of year in the US has been the highest for allergies/ and sinus problems. My guess is you have a combination headache. I can get migraines...
if you go to like walmart hobby lobby you can get the squeeze handle scissors.. I like to sew but cutting sometimes gets to be to much so i switch between traditional scissors and the squeeze ones....
Thank you. I have suffered for years. I actually had a hysterectomy complete and that helped mine tremendously. but lately i am getting them again, i take topomax 200 mg as a preventative i will kick...
Being Chronically ill we all are going to tend to have some form of depression at times. Some may be chemical and some situational. I over the past pretty much 18 years have had guilt about being...
When you first get a diagnosis... there are different stages for people, mourning the life you had before, or denial, or i am going to fight this or whatever. when i looked up SLE.. the first...
Glad you are doing better... Before SLE and other crud i wasn't allergic to anything... i tried home remedy for thrush... had an allergic reaction... i just laughed... benadryl stays in my medicine...
When i get infusions once a month when i am in a flare i get solumedrol shots usually 80 mg and it helps esp until the full affect of the infusion kicks in. I try to stay off prendisone because i...
Thank you for the post. Barb..get well soon, hugs and my thoughts and prayers are with you and your lungs. : )...
Yes, you can get a prescription for an anti fungal. when you take it make sure you take a pro-biotic as well during it. Thrush is called oral candidiasis I am blanking on the common most used med for...
On that note does anyone know of anything (oh i have lupus SLE and tons of other junk) that helps with oral candidiasis.. or thrush like babies get... when i take the prescription antifungals they do...
The worst part is the prep. Endoscopies sound worse than what they are... you will be knocked out and if you r not tell them you want to be. I have had so many endo and colon and i am 40 i must have...
Niki, Oh man I have been in your shoes and worn them out. 1. Keep a health journal, daily 1-10 scale 10 being i am jumping off the bridge I never use ten. 2.any noticeable symptoms, get photos of...
There are migraines that start in your stomach ... strange i know. I have had migraines it feels like since the revolutionary war.lol.. but sometimes i will just get the stomach nausea and an aura...
HI, I have had SLE and tons of other issues. but i want to address seraphina and iviedmom. I was dx when my kids were young 5,6,7 i am married. during their growing up years i was a dental hygienist...
The white on your tongue is most likely candidiasis. or Thrush is what they call it in children.. it can make you sick because it can go into your esophogus. It is a fungus and easy to get when you...
I do get terrible migraines esp in flares and my fatigue is unreal... like brushing my teeth is the boston marathon.lol try to move.. if you can't do what he asks then try 10 minutes in your house 3...
hi welcome to the site... a job isn't or even a career isn't what makes the man or person. I was a dental hygienist and loved it, i got sick and now i struggle with the guilt i put on myself for not...
welcome to the sight. Wishing the best for all of you. It is frustrating when you have so many symptoms and feel crazy at times. Take care.... Tons of good wishes and hugs... Fern...
my meds are Methotrexate, orencia infusion once a month, glucophage, klonapin for sleep restless leg and i can take it for anxiety. omaperozole for gerd, the pain is right where the pancreas is or...
Ive been in a flare for a month or so, this one is worse than the ones i have had before, is that normal? idk, i feel almost outside my own body at times.pins and needle pain on top of the normal...
The tinnitis, ringing in the ears.. are you on any medications? that is a common symptom of some meds. and migraine headaches. Hope you get answers soon all of you....
I had bright red in my stool recently, and went to the dr. actually emergency room. the er doc said if you are not losing like 2-3 pads full you are ok.but he didn't say for how many days. if that...
thanks...
I have been down for about three weeks feeling overly crappy, taking no prendisone. yesterday i decided i was going to take a medrol pack, my daughter is visiting from out of state. i hate being on...
If you are on prendisone and you have your tests done like your ana and sed rate and all of the others are they as accurate as if you are off of it? Especially if you are in a flare? I just wondered...
Hey, question does anyone know if you are on prendisone when your blood tests are taken is your ANA and sed rate and all the other stuff as accurate as if you are off it? just a thought. fern...
I personally would leave it alone for now. If the govt has a shut down, it will affect the ss system I would rest. Are you completely migraine free? Do you sleep well at night. I know how the...
it is hard not having a firm dx. harder sometimes really knowing whats wrong. I am so tired of being my own patient advocate. I know too much, sometimes i would rather be oblivious to everything. i...
I have been diagnosed with all ... started with the persian gulf. I was diagnosed with fibromyalgia before the lupus, then lupus ... RA in a few joints i had a hysterectomy, so i have tiny bit of...
hey having trouble with swelling and pain, lupus, rhuematoid and osteo mild, fibro, gerd, ibs gulf war syndrome, and others, ny main meds are methotrexate and orencia infusions klonipin at night to...
rashes for me mostly face and chest sometmes hands. I hope your scope goes well, and gets you some answers....
I think that is very typical. you start to feel a bit better and then think i don't really need this. Being dependent on meds or anything means you are giving in, or giving up some of your control....
Oh dear, I take oxy extendend release 20mg am and 20 at night i do have break through meds vicodin but i don't like to take it. one because narcs tend to give me migraines if i take to often so do...
I would go down 20 then to 15 for two days then 10 for three then 5 for 7 then 2.5 for 7 then 2.5 every other day for 5 or 6 days... You will need a pill splitter. You can ask your doctor. For...
webmd.com type in generic name it is an antimalaria drug. i am terrible at computer stuff. it gives a bit of info there....
Hi, i also had a neg ana for a long time.. different symptoms... but no real answer ... long story short..it was my family doctor of years that suspected an auto immune problem the biggest thing was...
We actually talked last night about everything. I was military in the persian gulf and got sick. it took about 10 years to figure out what i had and since then the downward spiral. I often don't tell...
I am dealing wth the opposite over the years i have put on the lbs. I think it would only be right if we could all get together to even everything out. : ) Steriods and other meds and actually not...
Praying for her health and her family...
I thought when i was having these intense moments like you explain i was either in panic mode but i mean i could be sitting in the recliner. That wave comes over you, like a flush feeling .... warm...
thanks....
I have been married almost 20 years. I feel a chasm between us and it scares me. The affection is not there, though he says he isn't going anywhere.When i had burning tongue so bad he said he...
I have been taking mtx for a long time in pill form one time weekly and i don't take remicade i take orencia infusions. The MTX has given my liver a few fits and i have had to go off a few times but...
ps it is a good idea not to read all of the side effects of a medication. because your mind is powerful. topomax at first may make you sleepy it may not be the skelakitn you may need to give these...